Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

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Monday, June 20, 2011

It's not all that BAD!

Let's start out with some good news! Her fever didn't stick...by the morning she was at 97. They had given her antibiotics at night....so maybe that was the key. Also some good news they say since her cultures are coming back negative, and she is doing so good, they say they are going to get us sent home again tomorrow, as long as everything goes well. And they also say that we should be able to get this weekend at home. But as anyone else knows who has gone through this knows...when they tell you at the beginning of all this "take it one day at a time" they were not kidding.

But for your enjoyment...or more for mine because I think this little girl is absolutely adorable here are a few pictures from right before we got to go home and such!


Before she left she was all ready to go again, getting dressed up to show off for those nurses.
But not before a quick blood pressure and temperature check!


Hanging out with all of her friends!


When we were packing the room up Faye put the letters back in order and was practicing her writing.


Nurse Katie! I just missed getting a picture of them hugging on our way out, and Faye wasn't about to pose and do it again, she was ready to go.


What would going home be without a garage bike picture?


And all too quickly....here we are headed back! Believe it or not this is the first time we have ALL been together in the car since the day we brought Nixon home from the hospital.


Waiting in the emergency room! I wasn't really mad, although I look like I was not about to give a smile! Sure we were all disappointed, but whatever we knew stuff like this was bound to happen.


And lastly in honor of fathers day yesterday....this wonderful multi-tasking dad. Holding Nixon while filling out admission papers.


I am so grateful for Nick, he was the only one that kept it together when we found out we were headed back to the hospital. He is one amazing dad. I am so glad that he is the one to stand by me during all this. He really is the glue that holds this family together.
Hopefully next post will be more great pictures from home! We better get right on making those sugar cookies, cupcakes, and pizza this next time, cuz who knows when she will head back again!

5 comments:

Lark (SparkyLarky) said...

Whoop, Whoop! I am so happy for you all to get to spend some time at home!
And I have to agree it sounds as if your hubby is a great Dad!
Cookies, Cupcakes and Pizza....Faye you are a girl from my own heart! Eat up and vegg out!

Happy thoughts and Prayers always!

The Nelsons said...

Home again tomorrow!? Wow. That's awesome! And you're right we really can't speculate about anything. I love seeing those pictures! Especially Faye in that angel wings getup!

Michelle D said...

So glad to hear things took a positive spin. You guys are really amazing how you have handled things. Hope you get to enjoy some more time with the family all home :) Take care and still praying for your family.

Lori said...

Here's hoping she gets to come home and stay through the weekend... that way I can have some much needed Faye time! Looking forward to being in Texas with ya'll this weekend!!!

Thiago & Teri said...

This is great news Stace..crossing my fingers that it actually gets to happen this time. I thought about you all weekend, so I am glad to hear some good news for a change. Could she be any cuter in her little going home outfit, makes me just flat out smile. What a girl!