Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.


Thursday, June 2, 2011

Feeling Crummy

Last weekend, Mitchell stayed over at the hospital with Faye and Nick! Faye LOVED having him there to play with. (Uno and bouncy ball games are a favorite.) Other than a few inevitable squabbles, they really made each other happy. On the first night, after getting ready for bed and laying down, Mitchell said, "I forgot to give Faye a kiss." He got out of bed and climbed into hers to give her a kiss on the head. Once he laid back down, Faye followed suit with the same routine. Then it turned into "Oh, I forgot to give hugs." So Cute!

On Wednesday, Nick and Stacey requested a new Primary Oncologist. The reason? After 2 months in the hospital, they still hadn't met her! They were told from the start that she would be in to meet with them and talk to them. Whenever they asked about her, the nurses or whoever would say they'd pass their message along to her. But, she never came by... or called or emailed... or even slipped a note in Faye's menu holder! Nothing. So, they've requested a new one and should be meeting with her/him soon.

Faye's ANC reached 0 on Tuesday. That's what they want, but it's also scary until they start climbing back up, which they have not started to yet.

Yesterday, Faye started slowing down. Her bike rides were lackluster and she wasn't bouncing around the room, which she does even when she's in need of a blood or platelet transfusion. Today, she got a fever of 103. She said her stomach hurt. She won't eat or drink. Her blood pressure is low. And she threw up. Yuck. Poor little girl. She's back on the IV getting Tylenol and antibiotics but other than that they just wait to see what happens. If her stomach keeps hurting she'll need an ultrasound. And if her blood pressure goes any lower she'll need some kind of nutrient supplement in her IV.

Feel better Faye!


The Nelsons said...

test test

Lark (SparkyLarky) said...

Keep Turning to the Lord. And know that prayers are heading there.

GoldenGirl said...

I put her name in the temple every time we go and remember her in our prayers daily. Just keep hanging on! We love you.