Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.


Thursday, June 9, 2011

Infection: Day 8

Faye is just a tiny bit better, we think. They still have to be on top of her Tylenol or her fever spikes and even then, as it's wearing off Faye "checks out" and huddles on the couch whimpering and complaining about her stomach pain. She's still on oxygen as well. The Drs said this would help keep her heart rate down since when she's starting to get hot again she starts breathing rapidly.
She still hasn't eaten! In 8 days! That seems so crazy. Yesterday when Stacey asked her if she could eat anything she said no but added "I am going to be so hungry tomorrow!" So, she picked out her lunch from the menu and ordered it for today, but Stacey said that was a no go as well. Yesterday she was feeling up for a couple hours of UNO. She doesn't look very happy in this picture but she was saying things like "That's tricky" and "Boom Baby!"
This is when she got her PICC line dressing changed. When they walked in she knew exactly what they were there for and just sighed and stuck out her arm. Then, she got a little scared and decided she didn't want them to do it, but once they started there was no crying at all!
This is Faye sound asleep but still holding tight to her bucket!
No hands!!


Peggy said...

I'm glad to hear she's doing a little better. Hang in there, Faye!

Chalisse Martineau said...

What a sweet little girl! We hope you feel better soon Faye.

Lark (SparkyLarky) said...

Even if it is a "little" bit better, we'll take it! Stay strong Faye!

Dan & Staci said...

Oh keep fighting Faye. What a trooper she is. She is such a fighter and a strong little girl. We love you all so much and continue praying for you!

Isabel said...

Thanks for being so faithful in updating us! It's good to hear the word "better" but I know we need to keep praying. I know that Heavenly Father is in control, he will take care of you all! Hugs and kisses!

Eric and Jenny said...

It's got to be a good sign that at least she is thinking about food, maybe? I am so glad to hear there has been at least bits of improvement, that is better than a little bit worse. Come on little Faye hang in there, you can do it sweet girl!

Thiago & Teri said...

Hey there is the weirdest thing whenever I try and comment at work it doesn't let me, and then I come home and it is just fine. Weird...anyways...

for some reason I can't get you out of my mind this week, my thoughts seem to be centered on you all of the time. Just wanted you to know that you are in my prayers always...I keep waiting to see the post saying little Faye is back to her self. Glad to hear she is a little better, every day hopefully gets her stronger.

I was going to try and call you this next week at the hospital if thats okay. If not just send me an email, and we can chat that way. Otherwise I will try and give you a call.

Please hang in there and know how loved you all are. Once again give our sweet girl a hug and a fact give Mitchell and Nixon one too...from their aunty Teri. hahaha.