Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.


Tuesday, July 5, 2011

Chemo Round 3

More pics of home...

Faye's 4 Steps to Delicious Cupcakes:

Licking the beaters...

Placing the cups...

Posing for a pic while they cook... (don't they look exactly alike?? Soooo Cute!)

And last but not least, making them pretty!

Nixon's Baby Blessing!

Good face, Nixon!

Getting ready to head back to the hospital and giving a few more smiles to Nixon!

These check in days are always long days...they got started in clinic with a little play dough to pass the time.

Waiting a looong time for the lumbar puncture and bone marrow biopsy...Good thing they brought UNO! It's a great way for Faye to pass time.

She hadn't eaten since 8pm the night before and couldn't eat until after the procedure. But they didn't get her back to do it until 2:30! It's hard for them to explain to Faye why she can't eat when she's hungry. But she hung in there and as soon as she woke up from the anesthesia, she said "I want milk". Luckily Stacey was prepared with chips and dip and she ate while watching Cinderella. The nurses thought she was an old pro eating immediately like that!

They were finally admitted to a new room around 5:30 and started chemo around 11pm. The next day the chemo made her really sleepy, no appetite and she got a fever. But, luckily it went away. The day after, I know, Nick had a small scare when her arms were turning purple. Something was wrong with her circulation but Nick said it was just another day in the life of cancer and chemo so there must be a lot of things like that that happen and we never hear about it.

Grandma and dad brought doughnuts over the other morning! Nothing like a doughnut day with grandma!

Sunday, Faye had a great day with more energy but started to again get very itchy and red.

She loves practicing her letters.

It is very important to Faye that her babies are taken care of. Just last night she was putting both of them to "bed" and the babies had just "fallen asleep" when Faye's IV tower started beeping.....Faye got irritated and said 'That beeping is going to wake up my babies....they are sleeping.'

Faye's 4th of July was filled with: getting some of Mitchell's parade candy, bike rides in the hall, walks, pushing "babies" in their stroller, jumping on colored squares in the hall, jumping over colored squares, racing to the nearest EXIT sign and being chased... also a lot of scratching! Her upper back and lower neck now have little scabs all over from the scratching. She also started to get a little swollen all over. You can just start to see it here:

This morning she was much more swollen and her eye was swollen shut! Stacey tried wiping it with a warm rag but eye boogies weren't the problem. They thought because she slept on that side during the night that it was just fluid retention so they gave her more Lasix. (Which is not a fun combo with the Benedryl for itching... very sleepy and lots of potty breaks :( ) After getting the Lasix, the rest of her body went back to normal but her eye is still swollen shut. They sent an ophthalmologist up to check her out. He gave her an eye exam with eye charts and said her vision is good and a bunch of drops to dilate her eyes so he can check them out better later.

Faye really is fighting- and here's the evidence! You should see the other..... uh Cancer!

Poor girl! I hope they get it sorted out soon!

(I've updated the Fundraiser 07/04 page and want to say THANK YOU to everyone who came out to Faye's 4th of July booth in Riverdale! I know it means a lot to this cute little family!)


Melissa, Benton, and Cambree said...

Stacey, she looks just like you in that picture of you two making cupcakes! So darling! Looks like you guys find fun stuff to do while waiting for the doctors to make her all better. Love all the pictures!

Lark (SparkyLarky) said...

Oh I Cannot believe the eye! But she sure is a trooper! And she is not letting it get her down.

What a fantastic family.

More prayers!

Lark (SparkyLarky) said...

Stacey, Thank you for placing the "Baking Up a Cure" button on Faye's blog. YOU are a sweetheart!

Cherish every moment...NO worries, WE got your back!


Piano Mom said...

Nick & Stacey, I think about you guys all the time. I love little Faye, she is adorable and such a fighter! I'm sorry about the swollen eye issue, these chemos do the strangest things with some odd one-of-a-kind side effects. You guys really look good, I bet the time together at home was like Heaven. I think I cried every time we had to drive back to the hospital to start a round of chemo. But, you guys are more than half way done now!!! Only 2 more to go. Faye is doing so well and I hope that you two are getting some together time. The treatment is so long and weary on everyone in the family. Just remember when you are looking out that hospital room window watching the world move on that you are not alone. We know how it feels and we are thinking and praying for you guys.