Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

fundraisers

Monday, July 11, 2011

Something to CeLEbrAtE!!!

So much to celebrate over this last weekend. To start it out Faye had a wonderful birthday! The whole day was wonderful, Faye was spoiled and LOVED every minute of it!
She even woke up that morning with a little more normal eyes! The one really swelled up eye went down a bit, while the other eye swelled up a little more. But still she was not bothered by her eyes, and she was not about to let them get her down on her special day. The first thing she said to me when she woke up was "oh mom, we need to tell dad to bring a measuring tape, because I need to see how big 4 is"





Nick, Mitchell, Nixon and Grandma were going to head up later in the afternoon.....Mitchell told Nick "let me see another picture of Fayes eyes, so I don't act surprised or freak out when I really see her".





For her birthday we had an extra lot of dressing up to do! And of course we had to make our way out into the hall, to let everyone know we had a birthday girl on our hands!





Showing me she is unhooked. The nurses and doctors were nice enough to let her break away from her IV cart to party for a bit! It's probably the best present she got!





Here comes Dad....let the partying begin!





"look at all the stuff coming my way"





And of course birthday kisses from Grandma!





When we asked Faye what kind of cake she wanted she told us she wanted one with Sleeping Beauty on it. Nick and I had decided that if she was going to spend her birthday in the hospital we would get her a cake from this little cake shop by our home. The week we were home Nick and I snuck away, left the kids with Grandma and picked out the cake. We then also paid for it. When Nick went to pick it up they said they needed to refund us our money, and that someone had gone in, paid for the cake and wanted to remain anonymous....Nick and I couldn't believe it, we hadn't even really told anyone that we were getting her a cake from there.....such a wonderful surprise! Thank You whoever you are!





The night before Fayes birthday I was decorating her room after she had gone to sleep. She woke up while I was standing on a chair trying to hang things from the ceiling.
"what are you doing?"
"I am decorating your room for your Birthday"
She then looks like she is going to cry.
"Faye do you want me to wait for the morning, and you can help me?"
She then got a great big smile on her face and fell back to sleep.





Quite the haul......(any packages that had come for Faye in the last little bit we also saved....to make the birthday that more exciting!)





It wouldn't be a birthday without Mitchell!





And for her birthday she wanted to feed Nixon a bottle! You can see that she didn't last very long...she was already getting tired of holding the bottle!





Faye also LOVED the birthday video, she has watched it many times, and every part she says is her favorite!





The cake was delicious!





A visit from Some of the Purple Team (they are the team we see every morning and they give us updates and check on Faye) we only think it is fitting that we get to be part of the purple team! The one on the right is Fayes primary oncologist Dr. Margolin...she is fantastic!





Checking to see how big 4 is! 39 1/2 Inches if you were wondering!





After all the partying was done, and we could celebrate the puffy eyes going down, we were also excited to celebrate that the itching has gone down considerably also....because I don't know how much of this her back could have taken!





I was telling Nick I have come full circle. When I was pregnant with Faye I was so ridiculously itchy. I would scratch so much my stomach started to bleed a little, and I was always making Nick scratch my back. Well now I could feel for Nick and Faye! Nick because he would scratch my back for hours....and Faye because there are just places you can't scratch yourself, and starting to bleed! It's all no fun. We sure are glad that is over!

Aunt Katie flew in yesterday, she is spending the week with the boys. We made her wear a mask because she had just gotten off the plane, and who knows what she was carrying with her! You can never be too careful.





Took a quick walk around the halls Daddy style!





It's about time Nurse Katie met Aunt Katie! Nurse Katie was excited to meet Aunt Katie, she thanked her, because of Aunt Katie, Nurse Katie was the first one to break through Fayes shell!





Everything is back to normal......taking care of babies!
Even the baby needs a floppy hat.





Playing with the doctors!





And finally we can see those bright eyes looking back at us!






For all those who worked on, attended and supported the fundraiser on Sat, Thank You, we heard nothing but great things about it, and are truly grateful for all that you did! A simple Thank You just does not seem to do justice for the gratefulness and love we have felt! From the few photos and video we have seen from it, it looks like it was a party, wish we could have attended!

10 comments:

Tracy said...

I am seriously so uplifted every time I look at the blog! You guys are so full of courage and strength and it doesn't seem right that you are comforting the rest of us. Kinda backwards, but I am sure so many others feel the same way. I am so blessed to know you all and to have been a part of this last week. It was amazing! So happy her birthday was great!

Sharp Family said...

She is sooo stinkin cute!! You all don't know me, I've posted on here before, I saw your blog on a friends face book page! We ran in the 5k saturday, which was a blast by the way, and we also participated in some of the activities! What an amazing family you all have!! they seem like very special people who love and care for sweet little Faye soo much!! Saturday was soo fun and so much hardwork and effort went into that day! How lucky you all are to have such incredible friends and family in your life at this time!! I am soo glad to see Faye is doing well!!! Continued prayers!!! The Sharps!

July 11, 2011 6:08 PM

Ryan and Hetz said...

Oh my! I am such a cry baby! She is so amazing to me. I'm so glad she was able to have a HUGE birthday! I loved that you decorated the room and got her the special cake and she got all of those presents. Happy Birthday Faye. You are an inspiration to me and I think I check the blog at least two times a day :)

Thiago & Teri said...

Oh Faye...what an absolutely beautiful little 4 year old. What a great celebration, from her outfit, to the decorations, to the cake (that was really sweet of someone to pay for it.) Sounds like you guys made it a fabulous day for her and I am so glad. I thought about her all day!!!

Ash talked to your mom the other day and she said the fundraiser was a huge success, I am so glad about that too.

Love you bunches!!

Lark (SparkyLarky) said...

YIPEE! I am so glad it was a great Fund Raiser! And Faye...I love the Crown! I do believe you are a girl after my own tastes! :)

I so wish I would have know ahead of time, the day of Faye's Birthday....I should have sent something! (sorry!)

I cant wait to hear more great news from you, about Faye and family!

((hugs & Prayers))

Isabel said...

Wow, that just had to be the funnest and most special birthday in the galaxy!! So glad her darling little face is back to normal! Faye, did you know you were the one who help me realize I really want to be a nurse?!? You have changed so many lives at such a young age! I am sooo happy to see you getting tons of love!

Kt said...

Happy Happy Birthday Faye! I wanted to send her a little something. Can someone email me an address of how to get her a gift! kt.james121580@gmail.com. I appreciate this blog so much and Faye is always in my thoughts! It seems I check on her cute little face almost daily. Big Thanks to everyone doing such a wonderful job on the blog. Nick & Stacey you are always in my thoughts and such incredible parents. Miss You guys!

Katie Wilkinson

Melissa, Benton, and Cambree said...

Happy Birthday Faye!!! I loved that pink birthday cake, looks delicious! Glad she was spoiled, looks like she got a lot of fun things! Her poor little back makes me itch, I'm so glad it's improving!

Smilen Champ said...

Happy Belated Birthday Faye,
You are a beautiful, precious and special Earthly Angel, You are a courageous, strong and determined fighter. You are a brave warrior, smilen champ, and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. Faye will be in my thoughts. I am hopping for the best for her. www.miraclechamp.webs.com

Sharp Family said...

I saw this on a blog of someone else and wanted to share it with you all. I changed it to fit Faye! I hope you like it!!

Faye Meldrum "A Very Brave Soul"

Not too long ago in Heaven, there was a little soul who took wonder in observing the world. She especially enjoyed the love she saw there and often expressed this joy with God. One day, however, the little soul was sad, for on this day she saw suffering in the world. She approached God and sadly asked, "Why do bad things happen? Why is there suffering in the world?"

God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see unlocks the love in people's hearts."

The little soul was confused. "What do you mean?" she asked.

God replied, "Have you noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone." The little soul began to understand and listened attentively as God continued, "The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this­­−it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer−to unlock this love−to create this miracle−for the good of all humanity."

Just then the little soul got a wonderful idea and could hardly contain herself. With its wings fluttering, bouncing up and down, the little soul excitedly replied, "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create that miracle!"

God smiled and said, "You are a brave soul, I know, and thus I will grant your request. But even though you are very brave, you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however, they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. These people are your parents" God and the brave little soul shared a smile and then embraced.

In parting God said, "Do not forget, little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed." Thus at that moment the brave little soul was born into the world, and through her love and suffering and God's strength, she unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys−some regained lost faith−many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened and God was pleased.

The world has been forever changed because Faye is a part of it.