Every morning at about 5 they come in to draw labs (take blood to see what her counts are) usually Faye is asleep, and doesn't wake up when they do it. But the other morning they went to draw labs, and she sort of pulled her arm away saying "I don't want to be hooked up" not realizing they were just doing labs. When that was explained to her she fell back to sleep.
Every morning we are also given a printout that looks like this:
Nick explained to Faye the other day that the last highlighted number is her ANC (immune system). He explained to her that when that number starts getting bigger she gets to go home for a bit. So now everyday when the nurse brings us our printout Faye grabs it and scans the paper looking for her ANC.
When Faye gets cold her skin looks a little modeled (purply and veiny). When the doctors come in to check on her just like they do everyday they ask if she always looks a little modeled. Because thats something they also look for when she has a fever. Well today she was looking at her skin and asked me "Mom do I look a little Modeled?"
Today she got a visit from Ronald McDonald (Faye just like anyone else who visits would not say anything to him) But he gave her a Happy Meal toy and she thought that was pretty exciting, but other than that wanted nothing to do with him.
So yep we are doing good, everything is going good, and as long as we can keep Faye fever free we will hang out as long as her little body needs us to.
One of the readers of this blog posted on the previous posts comments this story. I was very touched by it, and wanted to post it for the rest of you to read. They said they saw it on another blog, and changed it a little to fit for Fayes situation.
Faye Meldrum "A Very Brave Soul"
Not too long ago in Heaven, there was a little soul who took wonder in observing the world. She especially enjoyed the love she saw there and often expressed this joy with God. One day, however, the little soul was sad, for on this day she saw suffering in the world. She approached God and sadly asked, "Why do bad things happen? Why is there suffering in the world?"
God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see unlocks the love in people's hearts."
The little soul was confused. "What do you mean?" she asked.
God replied, "Have you noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone." The little soul began to understand and listened attentively as God continued, "The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this −it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer−to unlock this love−to create this miracle−for the good of all humanity."
Just then the little soul got a wonderful idea and could hardly contain herself. With its wings fluttering, bouncing up and down, the little soul excitedly replied, "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create that miracle!"
God smiled and said, "You are a brave soul, I know, and thus I will grant your request. But even though you are very brave, you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however, they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. These people are your parents" God and the brave little soul shared a smile and then embraced.
In parting God said, "Do not forget, little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed." Thus at that moment the brave little soul was born into the world, and through her love and suffering and God's strength, she unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys−some regained lost faith−many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened and God was pleased.
The world has been forever changed because Faye is a part of it.