Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

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Thursday, August 11, 2011

Reality......

Yesterday We hit a bit of reality! When this first all started and in our first few days at the hospital, I was introduced to a mom who had finished treatments with her little boy just a few months prior. Her son also was diagnosed with AML, we were sort of in the same situation, except she was pregnant, and had a baby all while dealing with cancer. She just happened to be on the floor, and some of the nurses asked her to stop by and talk to me. We just chatted for a minute, she gave me her information. She gave us a few pointers, like getting our own mini fridge to keep in our room (that has been a lifesaver). She was so wonderful, and had only good things to say about the nurses, and her experience with cancer. Well, come to find out yesterday morning, they were back after 9 months cancer free, his cancer was back, and they were back on the floor. Talk about a flood of emotions.
As if one dose of reality wasn't enough, there is another mother (I hope you dont mind me sharing) here that volunteers. I had heard from someone else that her daughter had AML a few years back. The mom was the bone marrow match, and they had gone to a BMT ( bone marrow transplant). Her daughter was 16, and ultimately because of such strong and severe cancer cells, she did not make it. I had a minute yesterday to talk to her about her experience, she mentioned it's not something she likes to bring up, because she doesn't have that wonderful ending, but it is not something she minds talking about and sharing. I am grateful to her, and to see how wonderful she is and how much her life has been changed by what she went through.
The reality is that just because you may finish treatments, your fight is not over. Just like another mother (www.littleairbear.blogspot.com) who has been finished with treatments for 7 1/2 months says she would be lying if she didn't dread the visits to the clinic to check to make sure her little girl is still in the clear.
It's true, the fear is always there. But what it all comes down to is those feelings you have, the feelings that I was blessed with when this all started. I always come back to the knowledge that everything is going to be okay. Sure your mind can wander, and you can second guess your decisions. But after talking with Nick about all of these wonderful mothers I have met along this path. The reality is....it's going to be okay!

At church on Sunday There was the most beautiful song sung in Relief Society, I truly needed this reminder.

Come Unto Him
by Sam Cardon and Steve Jones
He came to us. He loved us that much. There isn't a soul he's unwilling to touch. No life so dark, he cannot light. No sadness, no sorrow, he cannot right.
Come unto Him.
He came to earth. He lived as a man. There's no earthly care, he can't understand. No earthly pain he did not feel. No hunger, no heartache, he cannot heal.
Come unto Him.
Come learn of Him. He's meek and humble, and lowly of heart. Come unto Him.
He lived like us, acquainted with grief. To those who believe, he offers relief. He opens eyes. He forgives sin for the humble--the faithful, who follow Him. Come unto Him."

8 comments:

Jessica said...

Stacey, you are amazing! I am so impressed by your whole families faith and determination. Faye is always in my thoughts and prayers. I love to come here and read all your updates and see Faye. Keep Fighting Faye!!!

Lark (SparkyLarky)@ Lark's Country Heart said...

I feel as if sometimes YOU and YOUR FAMILY are comforting ME! Thank you for all your "moments" you share with me (us) daily. I am constantly praying for a CURE for ALL Cancer.

Keep your strong faith, it shines for all to see!

Thiago & Teri said...

Oh Stace...what a world we live in. You are right, it is so hard to not let your mind wander, I am sure those negative thoughts trickle in every now and then. However, you know the answer you received. Heavenly Father has a plan for you and for Faye and he will not lead you astray. Stick to what you know to be true, all will be just fine. I know it. Love you much, keep smiling and keep up your positive attitude. You are amazing!!!

Eric and Jenny said...

Oh Stace sometimes reality is so awful, thinking of all that could go wrong. But I think it's just like you said all we can truly trust is the spirit that whispers into our hearts along the way. Trust that...

Love that song, and it came to you at such a needful moment, not a coincedence I am sure.

Love you lots all of you.

Isabel said...

You are an amazing woman and such a great example! I'm so glad we have the gospel to give us that knowledge that Heavenly Father and Jesus-Christ will be there to take care of us in our darkest hours. That families are forever. I agree, your faith and positive outlook is such an inspiration! We love you and we will keep praying!

The Nelsons said...

That song was so simple and powerful. I'm so glad I was there to hear it too. I wish I found opportunities to feel that spirit every day. Love you guys.

Melissa, Benton, and Cambree said...

That really is a lot of information to take in and process. I'm glad you met so many strong women. I'm sure you will always be worried and I guess that's where your faith has to come in and help you through this scary time in your lives. We're constantly thinking of you and your family. Love you tons Stacey!

Lori Savikis said...

I agree... everyone should have a Mitchell! He is the perfect big brother for Faye!!! LOVE her resting with the baby in her belly... LOVE her calling Mitchell sweetheart while playing house... LOVE the picture with her and her friend Riley... LOVE her making you play match game with pumpkins that don't match... LOVE FAYE!!!!