Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.


Sunday, August 21, 2011

Let the ExCIteMeNT begin.....but don't stay TOO long!

Well our plans of being boring were short lived! Yesterday she ate hardly anything, and she seemed not quite like herself. Last night her and I were laying on the couch watching Gymnastics....Faye was super concerned about the girl that hurt her knee. But she was feeling a little warm to me. I always hesitate having them check....I try to convince myself I am just being paranoid, but its better to get a start on it, if anything is wrong! Sure enough last night Faye spiked a fever of 103, we gave her Tylenol, and it quickly came down, but then again at 5:00 am we got to 102. She woke up in good spirits this morning, so we will see as the day goes on. The doctors came in this morning and were impressed with how well she was looking, after having a fever last night of 103.

(Three medicines in the morning....and that was even before the fever!)

Yesterday they sent us down to get x-rays of her chest to make sure there was no pneumonia forming in her lungs. Her lungs looked good, but the x-ray showed that her PICC line, which is usually supposed to be going down, had somehow moved and is in her's hard to explain, but they showed me the x-ray and her PICC line is right next to her throat, when it should be more down to her heart. It is defiantly something that needs fixed, and hopefully tomorrow they can reposition it. Luckily they can still use it to send antibiotics in, at first they thought since it had moved so much they would have to place an IV. but after talking to the vat team they saw that it was still in a vein, and safe to use.

Let's let this fever know it is not welcome!

Nothing like a good nurse to come in and brighten Fayes day!
We LOVE that nurse Katie!


Piano Mom said...

Oh, I am so sorry! I hope the fever goes away quickly. I'm glad they did x-rays to make sure her chest is clear. I'm sorry about her picc line, that has got to be frustrating. Hopefully it will all work out without having to be replaced. Have they done cultures of her blood to determine if it's an infection somewhere else?

These are the times we all hate AML the most! Hang in there. We're praying for your family.

We love you little beautiful Faye!

Lark (SparkyLarky)@ Lark's Country Heart said...

That sure isnt a great way to wake up...darn it! Rest assured that we are praying double time!


Kristen's mom said...

a sweet lady named Linda Smith requested a pillowcase from me for your little Faye some months ago. The very next day she said that she went ahead and made a pillowcase and sent you. I was still wanting to send something to fay and was wondering if you could email me your address.
Those darn fevers! they get us every time, don't they?
Have a good day.

Cute Carbines said...

Bummer!!!! Those fevers are the worst! I understand what you mean about not having them check it. When Jon had his he got mad at me for having the nurses check him. I hope hers goes away quickly. Love You!