Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

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Sunday, May 22, 2011

Chemo: Round 2

**UPDATED** a few pictures have been added from her first day back.

Faye was readmitted to the hospital on Thursday. She and Stacey got to the hospital early in the morning for labs, an echocardiogram, and an EKG but had to wait in the waiting room until 5pm to get her new room. They started chemo at 11pm.

Just passing the time, relaxing in Nixon's car seat!

Waiting for her echocardiogram, she was getting tired and onory at this point, and fell asleep shortly after this picture was taken, which was good so she would hold still for the echo.

Stacey was told that one of the chemo medicines (Daunorubicin) Faye has been receiving is now unattainable (for whatever reason). Which is a little disheartening since we know the old medicine was working and she didn't have any bad reactions to it. Hopefully this new one will be just as good. So instead of having Cytarabine, Daunorubicin, and Etopocide she will be getting High Dose Cytarabine and Mitoxantrone. (Today was her first day with the new Mitoxantrone.)

Faye is doing alright being back at the hospital. She is much less peppy than she was at home. Chemo is likely draining a bunch of her energy. She has some random freak-outs during the day but aside from those she seems to have accepted hospital life again. It doesn't help that she can't get a full night's sleep because of all the potty breaks. All the fluids being pumped in her resulted in 10 trips to the bathroom Friday night to Saturday morning. Another new yucky thing about this round is the eye drops. She had to have them a couple times in the last round but this time, because the High Dose AraC really dries your eyes out, she has to have them every 6 hours everyday until 24 hrs after her last dose. They have to pin down her head, arms and body to do it. Definitely Not Fun.


Getting the EKG done. You can see how happy she was about it. It got even better when they went to take all those blue stickers off that were quite sticky. Luckily, they have these wipes that help get them off a little easier.

Just a random freak out!

Saturday night was a little scary because of a fever (102°). She got Tylenol, antibiotics and a lot of people coming in to check on her. Right when she was about to fall asleep, she rubbed her arm and her PICC line dressing came off. The nurses came in and changed it, which she hated as usual. Afterward, she cried about how itchy it is and how much it hurt for about an hour until she finally calmed down and fell asleep. Poor girl! That seems like torture to have something so itchy and bothersome and not be able to scratch it or rub it to make it feel better. Thankfully though the fever has gone down today and they suspect it was just a side effect of the new chemo. But they need to keep a close eye on her.


Saying goodbye to Nixon while getting a quick line flush done.

Nick and Stacey are supposed to have a conference with the bone marrow specialist this week to talk about Faye and Nixon. So, we should have some more information on that soon!

And here's a little glimpse at how Faye's warming up to her doctors!

video

3 comments:

Lark (SparkyLarky) said...

Oh I so had hopped she could remain on the same meds. However There is a reason for everything!
Keep your spirits high, family close and know there are prayers flooding heaven on your families behalf.

Eric and Jenny said...

I have been saying all sorts of prayers for you guys this week, I am sure it was so hard on everybody having to go back to the hospital. You just never know what new meds will do, could be the key to everything. I hope this week goes smoothly and little Faye doesn't have too bad of a time. Love you all!

Chalisse Martineau said...

Thank you for keeping us updated. I think about Faye and everyone all the time. Faye is so amazing and I am in awe of her.