134 Days at the Hospital
152 Days Total
125 Lab Draws plus
15 Blood Transfusions
30 Platelet Ttransfusions
4 Bone Marrow Biopsy's
4 Lumbar Punctures
5 Echo cardiograms
2 CT Scans
4 Rounds of Chemo
This Little Girls Future is Looking Super Bright!
(When my friend Jenny came to stay with us and watch the boys, one weekend her and I got to do a little shopping, I found these PJ's on the clearance rack at Gymboree and just knew I needed to have them for Faye. We both got a little teary just thinking about this and how much more it means to my sweet little Faye! I have been hanging on to them, and Nick and I gave them to her for her first night of staying home!)
None of this could have been possible with the amazing Nurses and Doctors at Texas Children's! When Faye first got there she wouldn't say anything to anyone, but by the time the party was over, she was giving hugs, high fives, and taking pictures!
One last hospital dressing change to send us on our way! Also at first Faye would scream the whole time this was being done, now when they walk in she says to them "I am going to be tough!"
"Big Love" they came every Thursday with carts of stuff for the kids and families...treats, toys, and personal hygiene stuff. Faye loved when these guys came, and they were always so generous! These people are Awesome!
One last weigh in...imagine at first it was such a chore to get Faye to even stand on this scale...now she just hops right up!
Andrea...Nurse Practitioner from he purple team! She will sorely be missed...we Loved our Purple team. They have different teams of physicians on the floor with a different color to label each team. We got spoiled by having them switch us to the purple team every time we would get readmitted. It was nice having the same people come check out Faye everyday!
Faye's new friend Aiden...he recently had a relapse of AML so they are back again! But these two became quick best friends. The second he would walk out of his room he would yell "Miss Faye" and be wondering where she was. This picture brings tears to my eyes. We were getting ready to go home, while Aiden was getting ready to head down to get a bone marrow biopsy to see if this round of chemo was working. The first round that Aiden got after his relapse didn't work so they had do a new round of chemo trying different medicines. As they left I couldn't help but cry. It made for such a bittersweet day, we were heading home, but the McSpadden family was waiting to hear news that could change everything! Luckily we found out later that day that the chemo was working! YEAH...such wonderful news!
Love this boy Aiden, you cant help but love him. And his parents, they are wonderful! They have been great to have around to be able to talk to. I will miss our walks and talks following Faye and Aiden around the halls!
Stephanie (another Nurse practitioner from the purple team) Giving Faye a "WAY TO GO" high five!
One last hug to send us on our way!
And one Final shot to say.....WE DID IT!
I think its funny to look at this picture compared to our first pictures! At first we were geared up ready to go, but these last pictures you can tell this was wearing on us! Especially towards the end I would just tell Nick "I need a vacation". But being home is just as good as any vacation! Its been super fun being at home. I will post tomorrow about the Welcome home party, and the fun we have been having!