Those first few days were a whirlwind! But some moments that are forever in my memory!
Like this room....I will never forget getting asked to come sit in this room (shown below), they shut the door, Nick and I are sitting next to each other with Nixon in the car seat on the floor. And we are facing three doctors! They tell us Faye has leukemia and the type she has is AML. She will be in the hospital for 6 months, with a possible chance of getting to go home for a few days in between each round. That's about all I remember, that and looking at a bunch of papers they kept showing us and asking us to sign. Then it seemed like 6 months was forever away!
Faye has been through so much on this journey and she has been so tough through it all! I am amazed at what a strong little girl I was given! She truly is amazing!
Since we are only doing four rounds....our treatment has come to an end at five months! Yep tomorrow is five months to the day since Faye went to the emergency room and tomorrow is when they said we get to go home! It seems so surreal! Looking back, like I said, 6 months seemed forever away! But we have done it!
The plan is we will come back once a week to check levels, and get transfusions as needed! Then in a week or two when her counts are good and recovered we will get another bone marrow biopsy. Once she has shown she can hold her own as far as her blood and platelet levels they will remove her PICC line and we will then have clinic visits once a month, to make sure this cancer stays away!
She will still be confined to home...or an occasional visit to the park for the first little bit. After a month or two she will be able to do more normal things like go to the grocery store, start attending church again (which she is so excited for), and going to the movies (which her dad is so excited for).
So tomorrow have a party for Faye! Have a party to celebrate that all of your support, love, concern, gifts, and prayers have given all of us our own little miracle! Don't party too hard because we still need the next miracle or keeping it away. Keep that love and those prayers coming!
I think it is very fitting our friends from Logan are having a movie night in the park showing Tangled tomorrow...so if you are in Logan go check it out!
At Gibbons Park 800 w. 2475 s. Nibley, UT 8:30-11:30
Faye would love to be there!
This is Faye showing us where her ANC is at. When it was 20 we told her that her ANC was at her knees, then it went to 40 and we told her it was at her thigh....now it is 80 so we said it is at her neck! They told us when it gets above 100 we could go home. So Faye knows when it gets to her head she is good to go!
So we will see you all at HOME!