But THEN the doctor removed her restriction to stay in her room! She hadn't been complaining about staying in the room but as soon as she was given permission to leave she couldn't get out fast enough! Her and Stacey walked the floor circle and when they came to the wagons and cars they have, Faye hopped right into a pink one and they made the circle again. After lunch she wanted to go back and ride in the pink car, but her tower was running out of power and so had to stay in the room to let it charge. They went out and did another circle before Faye had to come back to her room for another blood transfusion. Her hemoglobin levels were too low again. She was not happy about staying in her room, so she cried and eventually fell asleep.
This morning she had to have the dressing on her picc line changed. She really didn't like that! But at least she has those cars to look forward to! Pray that she doesn't get sick again so she can keep leaving her room and getting around a little.
Mornings are a little rough on Faye and parent. She is pretty grumpy in the morning. She warms up after a bit but doesn’t talk or want to deal with the nurses. She does what she has to but won’t let them look in her mouth. They're working with her on that.
Grandma Mary Ann left her iPad with Faye and she is loving it! She's using her Aunt Holly's Netflix account to watch lots of fun movies.
Stay strong, Faye! We all LOVE you!!