Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

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Tuesday, April 19, 2011

ITCHING to Get Out

Something is making Faye ITCHY! She doesn't complain, just itches a lot. On Sunday, she was able to get unhooked from her IV tower for the first time and take a bath. Then she took some Benedryl and got some cream to help the itching. Her skin was getting all red from the scratching. It only helped a little and she woke up Monday morning still itchy.

But THEN the doctor removed her restriction to stay in her room! She hadn't been complaining about staying in the room but as soon as she was given permission to leave she couldn't get out fast enough!
Her and Stacey walked the floor circle and when they came to the wagons and cars they have, Faye hopped right into a pink one and they made the circle again. After lunch she wanted to go back and ride in the pink car, but her tower was running out of power and so had to stay in the room to let it charge. They went out and did another circle before Faye had to come back to her room for another blood transfusion. Her hemoglobin levels were too low again. She was not happy about staying in her room, so she cried and eventually fell asleep.

This morning she had to have the dressing on her picc line changed. She really didn't like that! But at least she has those cars to look forward to! Pray that she doesn't get sick again so she can keep leaving her room and getting around a little.

Mornings are a little rough on Faye and parent. She is pretty grumpy in the morning. She warms up after a bit but doesn’t talk or want to deal with the nurses. She does what she has to but won’t let them look in her mouth. They're working with her on that.

Grandma Mary Ann left her iPad with Faye and she is loving it! She's using her Aunt Holly's Netflix account to watch lots of fun movies.

Stay strong, Faye! We all LOVE you!!

15 comments:

Eric and Jenny said...

I am so glad she got to get out of her room for a bit, I can't imagine how stir crazy the poor little dear must be. I don't blame her one bit for not liking those nurses bugging her, I hate that myself. Day after day after day would get really old! Hang in there all of you, every day brings you a little bit closer!

Cute Carbines said...

I am so glad she is loving netflix!! I am glad we could be useful! By the way, Julia, you are doing an awesome job on this blog! Stacey, I am sorry she is itching so much. I hope she enjoys that haircut!

Lark (SparkyLarky) said...

I dont blame you Faye...staying in one room is boring! I just had surgery on Monday so I understand!

Hey I just picked up a Surprise for you! So I will be sure to mail it off to you by Wed. I think I will send a "treat" for your Mom, Dad, and brothers too!

You keep doing what the Nurse & Doctor's tell you, and you will feel a lot better.

Thiago & Teri said...

Yay...for getting out of the room and pink cars. Super fabulous!!! No fun itching though, that gets very old. Love you all!

Ashley and Devan said...

Sorry about the itching, I hope she gets some relief soon. I am happy for her that she is no longer restricted to her room and that she likes the pink cars. We are praying for you guys. Also, I told my little boy, Hunter, about Faye. They are close in age. He would love to send something to Faye and Mitchell. If you can send me your address that would be great. Ashdavis1229@yahoo.com

Dan & Staci said...

It sounds like she is making the best of the situation and I am so glad she was able to get out of her room and get a bath. I bet that was refreshing for her! We love you guys and thanks for the updates I do look forward to them and you are always in our prayers!

Katie Ellis said...

Darn itchiness. I know you can sympathize, Stace. Hope you enjoy your family day tomorrow and that it lifts her spirits a little.

Our Story: Continued said...

Praying for you guys! I'm high school friends wtih Brooke and she shared with me your story. I hate that little Faye and your beautiful family has to go through this! Praying praying praying! ~McKenna

Sharee said...

I read about another little girl tha has cancer and when her hair fell out they put it outside for the birds to make a nest. I don't know if that is something she would like, but you never know!!

Jessica said...

I am happy she was able to get our for a little bit. I couldn't handle being stuck in one room for a long period of time, let alone making one of my kids do it! Faye you are always in our thoughts and prayers.

kcintexas said...

So happy that Faye has been able to tour a little bit! Seeing some new scenery gives a person a new outlook. And a pink car! Wow! Hope those pesky itchies go away soon. Am praying for you all.

Keri said...

do they have her on phenergan. Its an anti nausea medicine through the IV. It can cause sever itching and unsteady type feelings in your skin. The more often you use it the more prone you are to allergy. just a thought if they had her on a Nuasea med. The pink car sounds so much fun.

Amy Martin said...

What a brave little girl! We're praying for you Faye.

Amy said...

Our thoughts and prayers are with sweet Faye and your wonderful family.

J said...

Hey stacey, I am the mia maid advisor in my ward and I am getting my girls to dress up as disney princess's and going to the cancer unit in slc. I wonder if you could ask your ward if your girls would be willing to do that for Faye and the other children in the hospital. I am sure they would love to do it, and Faye and the other kids would LOVE seeing a princess, or ten. :)