Three-year-old Faye was diagnosed with Acute Myeloid Leukemia on April 11, 2011. After 135 days in the hospital, Faye was able to spend 3 years at home. On September 5th 2014 she was told that she had relapsed. She was able to achieve a second remission and had a bone marrow transplant on Oct 17th 2014.

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Sunday, November 16, 2014

Would you like to know what's going on? So would we!

Our apologies for the lack of updates recently on Faye.  Truth is we're not sure what to say.  We have been waiting for her ANC (a measure of infection fighting white blood cells) to be above 500 for 3 consecutive days.  Once that happens they declare 'engraftment' of the marrow transplant.  She hit 690 on Monday, dropped to 530 on Tuesday and hasn't been above 500 since.  No one is quite sure why.  It could be nothing and it is just taking its sweet time or it could be a problem. 

Two current theories are:
  1. When they harvested Nixon's marrow they took all they could from him for it to be safe for him.  However, it was on the low end of what they would have liked to be given to Faye.  It could just be that it is taking more time because there weren't enough cells.  If we get to day 40 or so and we still haven't engrafted they may take more from Nixon and top her off. 
  2. They tested for all sort of viruses thinking if she had one it could be causing some immune suppression. Results showed positive for one but the levels were such that it could be the cause of her being slow to engraft or could not. 
  3. There could be a host of other things also. 
 She will be getting a bone marrow aspirate and biopsy done on Monday to test the cell levels in the marrow, to see how much of them are Nixon, and look for any residual leukemia.  So for now we continue to wait and hope for the best.  Keep those prayers coming to help Faye demonstrate once again that miracles happen everyday.  We love you all and are sincerely grateful for you. 

Nick & Stacey.

4 comments:

Holly said...

Thank you for the update. You all continue to be in our prayers. We believe in miracles and know God has a plan in all things. We love you all very much!

Thiago & Teri said...

Goodness Stace. You are all I've been thinking about. Wish I had some wonderful and comforting advice. Wish I could take aware your uncertainty. Just keep keeping on. Try to remember heavenly fathers have is steering it all. Easier said than done I am sure. My love and always my prayers. Always. Thanks again for what you teach me every single day. My heroes.

Texasholly said...

Praying you will get answers today and that Faye is engrafting (not even sure that is the right way to say that!).

Katie Ellis said...

Sorry the hospital part of this journey is taking so long but I am still so grateful that Faye is feeling great. Prayers/hugs/love!!