tag:blogger.com,1999:blog-16170846406854880842024-03-13T11:29:19.985-07:00Floppy Hat FayeThe Nelsonshttp://www.blogger.com/profile/03476803471867642977noreply@blogger.comBlogger76125tag:blogger.com,1999:blog-1617084640685488084.post-72579340055531196952015-07-28T08:50:00.002-07:002015-07-28T08:50:26.409-07:00Still trying to get to normal!I was telling someone the other day that it has been long enough since our lives got turned upside down. You would think I would have life together more, by now. She said "It takes nine months for you to have a baby, and they say another nine to get your life/body back". Well it has been more than nine months, and I still have things to catch up on. Many things I have meant to do, like post the video of her coming home. I did watch it the other day, still makes me cry. I planned to keep up on this blog when we were home.... way down on the priority list.... it got trumped by survival! ;).<br />
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Either way, we wanted to share an article we wrote. Some members of our church asked us to write an article for a blog that they have. We were a bit hesitant. But it was nice for Nick and I to sit down and reflect on the blessings and thoughts we had. We could go on and on, and way to many details of every single tender mercy and how we feel so incredibly blessed. But we narrowed it down to 5 basic categories, so here is a link to the article <a href="http://www.aggielandmormons.org/2015/07/highlights-from-low-point-5-lessons.html" target="_blank">Aggieland Mormons.org</a> <br />
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We can't help but feel incredibly grateful for the love and support we were given. Without a doubt it played a huge part in the outcome. Its hard to understand why our outcome is what it is. Why other kids/ families didn't get the same outcome that we have had. But when those thoughts enter my mind as they often do, I am reminded of a prayer that was said, in Faye's hospital room that first week four years ago "there are things that happen in this life that do not make sense, and probably never will make sense in this life". I have found such comfort in those words. So for now while there is so much that doesn't make sense, one thing I am sure of is we do have a Heavenly Father that truly loves us so much, and is mindful of every single struggle, and trial we are each faced with.Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com2tag:blogger.com,1999:blog-1617084640685488084.post-1725123000878568982014-11-16T19:27:00.003-08:002014-11-16T19:27:54.741-08:00Would you like to know what's going on? So would we!Our apologies for the lack of updates recently on Faye. Truth is we're not sure what to say. We have been waiting for her ANC (a measure of infection fighting white blood cells) to be above 500 for 3 consecutive days. Once that happens they declare 'engraftment' of the marrow transplant. She hit 690 on Monday, dropped to 530 on Tuesday and hasn't been above 500 since. No one is quite sure why. It could be nothing and it is just taking its sweet time or it could be a problem. <br />
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Two current theories are:<br />
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<li>When they harvested Nixon's marrow they took all they could from him for it to be safe for him. However, it was on the low end of what they would have liked to be given to Faye. It could just be that it is taking more time because there weren't enough cells. If we get to day 40 or so and we still haven't engrafted they may take more from Nixon and top her off. </li>
<li>They tested for all sort of viruses thinking if she had one it could be causing some immune suppression. Results showed positive for one but the levels were such that it could be the cause of her being slow to engraft or could not. </li>
<li>There could be a host of other things also. </li>
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She will be getting a bone marrow aspirate and biopsy done on Monday to test the cell levels in the marrow, to see how much of them are Nixon, and look for any residual leukemia. So for now we continue to wait and hope for the best. Keep those prayers coming to help Faye demonstrate once again that miracles happen everyday. We love you all and are sincerely grateful for you. <br />
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Nick & Stacey. Nickhttp://www.blogger.com/profile/07116055017389063180noreply@blogger.com5tag:blogger.com,1999:blog-1617084640685488084.post-90190185508291171292014-11-02T05:54:00.001-08:002014-11-02T08:54:30.707-08:00Happy Halloween!<div class="separator" style="clear: both; text-align: center;">
<span style="color: #e69138;"><span style="font-family: Verdana, sans-serif;">Saturday the 25th</span><span style="font-family: Verdana, sans-serif;"> was day 8 post transplant. We are considering ourselves pretty darn blessed. Faye is really handling this all very well. The Drs are all very happy with her progress. </span></span></div>
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<a href="http://1.bp.blogspot.com/-0f14N1OlsVk/VFRKQXwsruI/AAAAAAAADj4/_XQlYzMDBBI/s1600/20141025_150612.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-0f14N1OlsVk/VFRKQXwsruI/AAAAAAAADj4/_XQlYzMDBBI/s1600/20141025_150612.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Some friends made her this little mermaid outfit for fun. Faye wears it around and the nurses love that she just wears it like everyday clothes!</span></div>
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<a href="http://3.bp.blogspot.com/-fgj4Ygf6b0w/VFRKPZEyOhI/AAAAAAAADjs/CobQs76uZLY/s1600/20141025_194312.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-fgj4Ygf6b0w/VFRKPZEyOhI/AAAAAAAADjs/CobQs76uZLY/s1600/20141025_194312.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> We have mentioned that we are just sitting around waiting. Everyday Faye gets blood drawn and sent to the lab. The doctors look at everything. Like right now they can tell from her blood her sodium is low, so they adjust her TPN (nutrients through the IV). But the waiting is related to her blood counts to begin recovering and evidence of the engraftment of Nixon's cells. So we look for her White Blood Cells to start coming up. As of Saturday her White blood cells were .04 for the past four days. But over this week they have sort of teased us.... up to .08 down to .05 and up again to .08. Today they were at .1 something. The Drs said today it looks like it might be early signs of engraftment but we still need to wait for those numbers to get higher. </span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">So here is Faye marking the "counts" for us.</span></div>
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<a href="http://3.bp.blogspot.com/--zK0b_GSp4g/VFRKQBwXCEI/AAAAAAAADj0/_NKc6qrkom4/s1600/20141026_112100.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/--zK0b_GSp4g/VFRKQBwXCEI/AAAAAAAADj0/_NKc6qrkom4/s1600/20141026_112100.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> When Faye is home she will go into her room and play with these little princess dolls for hours all by herself. She asked for Dad to bring them up to her the other day. The second she got them, she quietly played with them by herself for a few hours. I couldn't help but smile. If she would catch me watching her she would smile, get shy for a second, and then go right back to what she was doing.</span></div>
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<a href="http://1.bp.blogspot.com/-E4UxkvtLbw4/VFRKRMF4paI/AAAAAAAADkA/lidreJRK3lk/s1600/20141026_150349.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-E4UxkvtLbw4/VFRKRMF4paI/AAAAAAAADkA/lidreJRK3lk/s1600/20141026_150349.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Her hospital room happens to be right across from the playroom. When we would stay on the 9th floor </span><span style="color: #e69138; font-family: Verdana, sans-serif;">(oncology)</span><span style="color: #e69138; font-family: Verdana, sans-serif;"> we would never let her go to the playroom because if the playroom was open anyone could go in it. Brothers and sisters of patients, whoever. We were so cautious of her being around any germs we just avoided that place. But this floor is much different. Only patients or the parent caring for them are allowed into the playroom. And also there are only 15 rooms on this floor so there are a lot less patients compared to the 36 rooms they have upstairs. They are currently in the process of getting a bunch of brand new toys and Faye is happy to check them all out!</span></div>
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<a href="http://3.bp.blogspot.com/-m-wXEVGJvxg/VFRKRnp8nJI/AAAAAAAADkM/Pjd2MRsAfeo/s1600/20141027_195909.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-m-wXEVGJvxg/VFRKRnp8nJI/AAAAAAAADkM/Pjd2MRsAfeo/s1600/20141027_195909.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Day 10 post transplant they send the occupational therapists and physical therapists to check on them. A lot of the kids get really sick and don't even get out of bed. They are sent to help them regain their strength. They both came and checked on Faye and said how Awesome she looked. They were super impressed with her.</span></div>
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<a href="http://3.bp.blogspot.com/-YKFJJY6w46k/VFRKSBvTeJI/AAAAAAAADkc/O4dcCJ7_4Qc/s1600/20141028_102229.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-YKFJJY6w46k/VFRKSBvTeJI/AAAAAAAADkc/O4dcCJ7_4Qc/s1600/20141028_102229.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Faye painted this sign and we took this picture! We know it is not much but we are so thankful for so many things. We are incredibly grateful for how well Faye has handled all this! We are amazed at how people have just stepped in to help. My mom has been staying at our house since the 3rd of October. Our ward has really stepped up. They bring us food, they clean our house, they are doing so much we are not even aware of all the behind the scene things that are happening. Our community has also been so amazing. Everyone came together last Saturday and had a yard sale, bake sale, carnival, and Lemonade Stand. It was all very humbling and amazing. </span></div>
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<a href="http://3.bp.blogspot.com/-dLnUkeR62AM/VFRKVvpOLBI/AAAAAAAADlE/kucCK-cEQo8/s1600/20141028_122744.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-dLnUkeR62AM/VFRKVvpOLBI/AAAAAAAADlE/kucCK-cEQo8/s1600/20141028_122744.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> We were just hanging out in the room and watching a show or something when Faye comes over and leans on my arm... I kinda loved it! As crazy as all this is, I am loving being able to hang out with this girl. I just look at her and feel so much love. I am so proud of her and her positive attitude about all this.</span></div>
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<a href="http://3.bp.blogspot.com/-oxqsNi29-8c/VFRKVcXRiDI/AAAAAAAADk8/wbyy8RpuB9Y/s1600/20141028_124402.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-oxqsNi29-8c/VFRKVcXRiDI/AAAAAAAADk8/wbyy8RpuB9Y/s1600/20141028_124402.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Every day she has to take a bath. I start asking her around 4 if she wants to take a bath but she puts it off for as long as she can. At the end of the day she tries to get out of it by saying she is so tired and when she finally does it she gets out of the bath and complains she is "freezing". Not so fun. So this particular night she promised me one round of "Daddy UNO", then she would take a bath.</span></div>
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<a href="http://4.bp.blogspot.com/-euQX5o8fWxI/VFRKVCbHA_I/AAAAAAAADlA/_9DtWjW7qjg/s1600/20141028_203307.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-euQX5o8fWxI/VFRKVCbHA_I/AAAAAAAADlA/_9DtWjW7qjg/s1600/20141028_203307.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> "Daddy UNO" = You each have piles of 2, 3, 4, 5 cards. You start with the 2 cards, and when those are gone you can move to the 3 cards, then 4 and so on. Faye loves to play UNO. Her and daddy came up with this way to play to stretch out the game and mix it up a little. It is basically like playing 4 UNO games without having to shuffle and deal in between.</span></div>
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<a href="http://4.bp.blogspot.com/-QSTktR7MLAM/VFRKYCZhPfI/AAAAAAAADlc/ivDVwSCtytU/s1600/20141028_221602.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-QSTktR7MLAM/VFRKYCZhPfI/AAAAAAAADlc/ivDVwSCtytU/s1600/20141028_221602.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> First Night sleeping without a "Sleep Cap" because her hair is done falling out in clumps. She still has some hair but it just super soft white hair. Those fall out one here and there so she doesn't wake up with hair all over her pillow. But while her hair was falling out, it was nuts. It was amazing how quickly it was gone.</span></div>
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<a href="http://4.bp.blogspot.com/-fsJVUDhMq_Q/VFRKWv-UEpI/AAAAAAAADlU/wz-61R-my8E/s1600/20141029_120048.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-fsJVUDhMq_Q/VFRKWv-UEpI/AAAAAAAADlU/wz-61R-my8E/s1600/20141029_120048.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">Friends sent the wig with the mermaid clothes but this is the first time I got Faye to wear the whole ensemble. She only wore it long enough to take this picture. That wig was itchy on that bald head.</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> We got on Skype with Nixon the other day and showed him Faye's bald head for the first time. His response: "What? That is weird". We said, "Yes. Faye has no hair". He says, "No hair. That is impossible". Faye and I got a big kick out of it! Nixon tells dad and grandma all the time that he wants to go to the hospital. When he saw Faye and I on the screen and that we were both at the hospital he said, "What!? You are both at the hospital. I want to go to the hospital!".</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">The boys went to a church Trunk or Treat on Wednesday. We were going to Skype the boys to see them in their costumes so Faye wanted to get dressed in hers too.</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> SUPER FAYE!</span></div>
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<a href="http://3.bp.blogspot.com/-FPzTw07AJJo/VFRKaLdFpII/AAAAAAAADls/PM65wmkkht8/s1600/20141029_181004.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-FPzTw07AJJo/VFRKaLdFpII/AAAAAAAADls/PM65wmkkht8/s1600/20141029_181004.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">A new doll house in the playroom!</span></div>
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<a href="http://1.bp.blogspot.com/-AF3d4cjmffg/VFRKbFK_dnI/AAAAAAAADl0/FKTFKg4Znsc/s1600/20141030_141810.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-AF3d4cjmffg/VFRKbFK_dnI/AAAAAAAADl0/FKTFKg4Znsc/s1600/20141030_141810.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> This is Maddie. We met Maddie last month when we were upstairs. We met her through a friend of a friend. She is 7 also and just arrived on this floor on Thursday to start everything to get her Transplant next week. Faye was so excited to see her. Faye hasn't been able to play with anyone forever. They spent the better part of Thursday afternoon playing games with each other.</span></div>
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<a href="http://1.bp.blogspot.com/-lYd02Da9NtI/VFRKbKftdwI/AAAAAAAADl4/EJqkyl5SVrY/s1600/20141030_145815.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-lYd02Da9NtI/VFRKbKftdwI/AAAAAAAADl4/EJqkyl5SVrY/s1600/20141030_145815.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Thursday night we spent painting our nails and watching Hocus Pocus. Every Halloween Nick tries to talk me into watching it. He took some initiative and brought it to us last week. Neither Faye or I had seen it yet so we were excited to check it out. We both liked it.</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Happy Halloween from Super Faye!</span></div>
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<a href="http://2.bp.blogspot.com/-XUHT1Hlg37U/VFRKcM5mG2I/AAAAAAAADmI/lstKKnZOHPw/s1600/20141031_100106.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-XUHT1Hlg37U/VFRKcM5mG2I/AAAAAAAADmI/lstKKnZOHPw/s1600/20141031_100106.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Faye put on her costume first thing in the morning. She was ready to go. All of the nurses on the floor were super heroes also. I really tried to get Faye to take a picture with all of them..... but I could never quite convince her it was a wonderful idea! At 2 they had a little party. There were four stations set up with candy and a little game to play. Faye went to every station at least 5 times... why not!</span></div>
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<a href="http://4.bp.blogspot.com/-A6rL-JYk6xw/VFRKcTyp82I/AAAAAAAADmM/LXtNut2PNCE/s1600/20141031_142304.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-A6rL-JYk6xw/VFRKcTyp82I/AAAAAAAADmM/LXtNut2PNCE/s1600/20141031_142304.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> They also had a cityscape. Perfect for super hero pictures! This is the most posing we got from her.... what can I say, she gets it from her mother!</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">One of the Drs had a Superhero party for one of her kids a week or so ago. She brought a bunch of these felt capes, the background, and even a telephone booth too! I took advantage of the capes and took this! It took a bit of coaxing to get Faye to want to take anther picture.</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Super Faye... Super Stacey! </span></div>
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<a href="http://3.bp.blogspot.com/-cV1L6wbvsIY/VFRKdx4Z-mI/AAAAAAAADmw/l2v3Cxx9hJQ/s1600/20141031_145241.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-cV1L6wbvsIY/VFRKdx4Z-mI/AAAAAAAADmw/l2v3Cxx9hJQ/s1600/20141031_145241.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Here is her bit of candy. When we were done she brought it in her room, dropped it out on her bed, and sorted it out!</span></div>
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<a href="http://4.bp.blogspot.com/-BfCTgl7S53I/VFRKeZShakI/AAAAAAAADm4/31JbDHWQhAg/s1600/20141031_152516.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-BfCTgl7S53I/VFRKeZShakI/AAAAAAAADm4/31JbDHWQhAg/s1600/20141031_152516.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> The boys went to Chick-fil-A night tonight. After eating Mitchell started to feel sick (remember that stomach thing... still working on it). So he didn't end up going trick or treating. Luckily he already had the trunk or treat earlier in the week so he got a little bit of trick or treating that night. Nixon ended up going out, but that's it. I told Faye what happened. Later I was telling Faye, "you sure have a lot of candy". She has a bunch of packages of M&M'S to hand out just in case but no one Trick or Treated here besides the party at 2. A nurse heard Faye's favorite candy was Twizzlers, so she brought her a bulk container of individually wrapped Twizzlers. Faye said "I am going to save my candy and share it with Mitchell because he didn't get to go Trick or Treating!"</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">Just for fun I am including the boys, just because they are too darn cute!</span></div>
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<a href="http://1.bp.blogspot.com/-YsW-XbvByq4/VFRKefj3LsI/AAAAAAAADm8/-uAfP0_8uv0/s1600/DSC00043%2B(2).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-YsW-XbvByq4/VFRKefj3LsI/AAAAAAAADm8/-uAfP0_8uv0/s1600/DSC00043%2B(2).JPG" height="320" width="179" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"> Big thanks to my mom. She did such a great job getting their costumes ready. Mitchell was Batman when he was 4 so we had that costume already for Nixon. But the other two my mom did everything to make them happen!</span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">We sure missed these boys this Halloween! The plan was going to work out great. Since Nick and I trade on Fridays we would both get to see everyone for Halloween. Nick would see the boys all dressed up on Wednesday night and then could come hang out with Faye for Halloween afternoon. And I could be with the boys Halloween night. But plans don't always work out. Because the boys still aren't 100% we decided it was best to just stay. Nick is missing his girl, and I am missing those boys. But whatever we have to do to make it so we get lots of future time together we will do what we have to!</span></div>
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<a href="http://3.bp.blogspot.com/-D1RO9yE6p8A/VFRKiHWN3vI/AAAAAAAADoE/8tdsaI8qwDI/s1600/DSC00055.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-D1RO9yE6p8A/VFRKiHWN3vI/AAAAAAAADoE/8tdsaI8qwDI/s1600/DSC00055.JPG" height="179" width="320" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">Just tonight as I was typing this post up this is how I found Faye sleeping. You can tell she is getting tired of all this. Mostly not being able to sleep through the night. Because not only do they wake her up every few hours for vitals, they have her on Lasix which helps get fluid out of her body. It makes her have to go to the bathroom a lot. She gets that every 6 hours over a 24 hour period. We are all getting excited to be home together again! There is a chance we might be able to go home at the end of next week. We are keeping our fingers crossed that everything lines up so that can happen. We have learned that you don't plan on anything until they come to you and say... you are going home tomorrow. The doctors have said that if everything keeps moving on its current pace the end of next week is a good possibility. She needs to show engraftment (evidence of Nixon's marrow creating new blood), move to oral meds (not getting everything through her IV), and start eating more so we can get her off TPN. Still a lot to happen but the idea that there could be an end to this hospital stay is exciting! </span></div>
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<a href="http://2.bp.blogspot.com/-_d2ZIprhT_8/VFRfxORYtrI/AAAAAAAADo8/bmA0wJ1JUBo/s1600/20141031_220522.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #e69138; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-_d2ZIprhT_8/VFRfxORYtrI/AAAAAAAADo8/bmA0wJ1JUBo/s1600/20141031_220522.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">Until then we will just keep on keeping on. </span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;"><i>"Life is not easy for any of us. But what of that? We must have perseverance and above all confidence in ourselves. We must believe that we are gifted for something and that this thing must be attained."</i></span></div>
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<span style="color: #e69138; font-family: Verdana, sans-serif;">-Marie Curie</span></div>
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<br />Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com2tag:blogger.com,1999:blog-1617084640685488084.post-22387361211286603232014-10-25T07:35:00.000-07:002014-10-25T07:35:52.879-07:00Hair we go again.......<div class="separator" style="clear: both; text-align: center;">
<span style="color: #674ea7; font-family: Verdana, sans-serif;">Where to start? I guess I will go with the pictures and add stories in!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">One day a visitor came to help Faye write a poem, story, or essay. She didn't talk much. He mostly wrote it himself with the few things he got out of Faye. The poem is about Super Faye, who likes to eat Turkey Sandwiches. It was really cute. When he was done helping her write the poem, he asked her if she would draw a picture to go along with it and he would put it in a book. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Of course, right after he left she got right on with her artwork! </span></div>
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<a href="http://2.bp.blogspot.com/-Kwdmu0wXofM/VEp7cwEP-mI/AAAAAAAADOw/7Su7Ei7WbK8/s1600/20141013_134703.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-Kwdmu0wXofM/VEp7cwEP-mI/AAAAAAAADOw/7Su7Ei7WbK8/s1600/20141013_134703.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">She messed up a few times because this girl is a perfectionist... if it doesn't turn out just how she has it imagined.... it could be the worst thing that has ever happened to her. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">After 4 tries the 5th drawing was a winner!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">SUPER FAYE</span><br />
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Sleepy!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Another successful dressing change for Faye and Emily.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Don't take my picture!</span><br />
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<a href="http://3.bp.blogspot.com/-KUZkDbh4Ous/VEp7eEv4TZI/AAAAAAAADO8/rbgq9gAEPcM/s1600/20141014_153216.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-KUZkDbh4Ous/VEp7eEv4TZI/AAAAAAAADO8/rbgq9gAEPcM/s1600/20141014_153216.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">She received her last dose of Chemo on Wednesday morning. She had been throwing up quite a bit one morning so we decided to give her a little more medicine than what she was already getting to help with the nausea. She didn't want to get the medicine because she knows it makes her sleepy. But the nurse and I knew it would make her feel better! So sleep that nausea away sweet girl!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Nixon got to come visit for his last final check up before transplant. Of course what would a visit be without raiding Faye's treat drawer? Fruit by the Foot is the treat of choice!</span></div>
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<a href="http://1.bp.blogspot.com/-5m6zbeR9bQM/VEp7fTyPJTI/AAAAAAAADPM/HdJtGgwxAdQ/s1600/20141015_162039.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-5m6zbeR9bQM/VEp7fTyPJTI/AAAAAAAADPM/HdJtGgwxAdQ/s1600/20141015_162039.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Nixon had to get one more blood draw. When we took him into the room he instantly knew what was going on. He didn't cry. He just said "it hurts". It was funny because he was saying all this as he is climbing into the chair and pulling the arm rest down, so he got it in front of him all by himself. He did great. Once they poked him he cried. I only had to hold his other arm a little bit. The second they were done, he looked at the lady and said "I don't want to do the other one." Lucky for us, the first time worked like a charm and we didn't have to do it to the other arm . Although later while we were waiting to see the doctor, he looked at both his arms and said "I want 2 band-aids." Weird kid!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> So Nixon was here on Wednesday and came back on Friday for the transplant. Guess who stopped by on Thursday? Batman! Nixon loves Batman! So just for Nixon, Faye took a few pictures with Batman!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Batman told Faye to tell Nixon hi for him! </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Later on Thursday, Faye had to do a breathing treatment. It took like 45 mins. She just had to breathe into this thing until all the medicine was gone. They give it to all the kids with compromised immune systems to help them not get pneumonia. She was a trooper!</span></div>
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<a href="http://1.bp.blogspot.com/-zwVVuzP5jws/VEp7hhymfUI/AAAAAAAADPk/jAWQBZVjYY8/s1600/20141016_165254.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-zwVVuzP5jws/VEp7hhymfUI/AAAAAAAADPk/jAWQBZVjYY8/s1600/20141016_165254.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Also this whole Bone Marrow Transplant is quite the family affair. Nick went on Tuesday to give blood, so they could use it for Nixon if they needed to. (They have the same blood type). They did in fact end up giving him a transfusion when he gave the bone marrow. Just because he is so little and how much they took out of him. If they did not give Nixon a transfusion, he would've needed to take iron pills for a month. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Remember our friend Nurse Maria? She came on Thursday to say hi. She brought Faye some puzzles for her birthday! (Bone Marrow Transplant)</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">The morning of the Transplant. I tried so hard to get Faye to help me think of words to the "Coronation Day" song from Frozen.... to fit "Its Transplant Day." "They opened the windows, and the doors, I didn't know they did that anymore... who knew you would need so many IV pumps...." you get the idea. But that is as far as we got... Faye was not entertained by my creativity.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I did, however, get a crazy morning hair picture to go along with my vision! ;)</span></div>
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<a href="http://4.bp.blogspot.com/-jWcchiTS_WA/VEp7i2nHayI/AAAAAAAADQA/D9Zn9TVY2hI/s1600/20141017_081430.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-jWcchiTS_WA/VEp7i2nHayI/AAAAAAAADQA/D9Zn9TVY2hI/s1600/20141017_081430.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">My best friends from High School sent these bracelets to Faye and I. We got them at the prefect time. Nick brought them to us the morning of the transplant when he came up with Nixon. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">"Your BRAVE is Beautiful"</span></div>
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<a href="http://2.bp.blogspot.com/-PNWLbGKMREM/VEp7joMk7KI/AAAAAAAADP4/HMpXXoJhLL0/s1600/20141017_083205.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-PNWLbGKMREM/VEp7joMk7KI/AAAAAAAADP4/HMpXXoJhLL0/s1600/20141017_083205.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Thumbs up from this tough guy. He is ready to go.</span></div>
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<a href="http://4.bp.blogspot.com/-3V_KdqSFt3w/VErc4S1bniI/AAAAAAAADYo/wQ6iJlTmVhI/s1600/20141017_090830.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-3V_KdqSFt3w/VErc4S1bniI/AAAAAAAADYo/wQ6iJlTmVhI/s1600/20141017_090830.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Still waiting.... but having a wonderful time!</span></div>
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<a href="http://4.bp.blogspot.com/-8H8PZOgU6PI/VErc4KRYnsI/AAAAAAAADYk/l7FiNsY3cwU/s1600/20141017_091417.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-8H8PZOgU6PI/VErc4KRYnsI/AAAAAAAADYk/l7FiNsY3cwU/s1600/20141017_091417.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Then they moved on into another waiting room.... where he was given these cute little PJS!</span></div>
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<a href="http://3.bp.blogspot.com/-g1nld2hwQ40/VErdGus-WDI/AAAAAAAADZU/odu79EjhnzE/s1600/20141017_094406.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-g1nld2hwQ40/VErdGus-WDI/AAAAAAAADZU/odu79EjhnzE/s1600/20141017_094406.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Still good! We were amazed that this boy never once complained about being hungry... he is our eater!</span></div>
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<a href="http://4.bp.blogspot.com/-zJdBOpEBMVI/VErdRhyI_WI/AAAAAAAADaE/KFYK2NQDG24/s1600/20141017_104053.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-zJdBOpEBMVI/VErdRhyI_WI/AAAAAAAADaE/KFYK2NQDG24/s1600/20141017_104053.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">While Nick had taken Nixon down to the PACU, Faye and I were left to entertain ourselves....I for one think she looks very entertained! </span></div>
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<a href="http://3.bp.blogspot.com/-2rKpvvnZxeI/VEp7tzY5xpI/AAAAAAAADQc/m1tCVdAXZpA/s1600/20141017_104823.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-2rKpvvnZxeI/VEp7tzY5xpI/AAAAAAAADQc/m1tCVdAXZpA/s1600/20141017_104823.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">As soon as they took Nixon back, Nick came up to be with us girls. Faye had been waiting for Nick to come back so she could build the Rapunzel Lego tower with him. Nick is the assistant. He finds the pieces, Faye puts it together! They make quite the team.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I went down to wait for Nixon. The Drs said he did awesome and they were able to get everything they could from him. They said all the nurses loved him, even when he was sleeping they kept commenting on how cute he was! When they took me to see him he was partially awake.... meaning he sort of would open his eyes! He kept trying to sit up, but you could tell he had no clue what he was doing. Finally, we talked him into trying a popsicle. He would just lay there, I would hold the popsicle, and when he opened his mouth, that was my cue to put the popsicle in his mouth.</span></div>
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<a href="http://3.bp.blogspot.com/-UxGUR7Et0tY/VEp7t6vwgcI/AAAAAAAADQY/ax_BIvZ4vUY/s1600/20141017_124619.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-UxGUR7Et0tY/VEp7t6vwgcI/AAAAAAAADQY/ax_BIvZ4vUY/s1600/20141017_124619.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Once he was more awake, I got a thumbs up.... everything was great. He wasn't such a fan of having to still be hooked up to things like the IV, blood pressure, and oxygen monitor. </span></div>
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<a href="http://1.bp.blogspot.com/-dtoHO-eC6l0/VEp7lJhJicI/AAAAAAAADQQ/1ChLChqA4kA/s1600/20141017_125443.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-dtoHO-eC6l0/VEp7lJhJicI/AAAAAAAADQQ/1ChLChqA4kA/s1600/20141017_125443.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Finished three popsicles and had enough of the nurses fussing over this cute boy--we were ready to head up and hang out with Faye!</span></div>
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<a href="http://4.bp.blogspot.com/-8rFACNVCzuY/VEp73fJqWYI/AAAAAAAADRE/ERvGR5j6Atc/s1600/20141017_140136.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-8rFACNVCzuY/VEp73fJqWYI/AAAAAAAADRE/ERvGR5j6Atc/s1600/20141017_140136.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> The cells from Nixon then had to have the platelets removed (because Faye and Nixon are different blood types) and then they came to Faye!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Before we knew it, we were ready to go. The Cells were here and it was go time! </span></div>
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<a href="http://3.bp.blogspot.com/-Cit4OW7c_hI/VEp702G4fZI/AAAAAAAADQo/LhKEKXRB4RQ/s1600/20141017_150316.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-Cit4OW7c_hI/VEp702G4fZI/AAAAAAAADQo/LhKEKXRB4RQ/s1600/20141017_150316.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Nixon didn't feel like cooperating in any of the pictures!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Never had I been so excited to hold a bag of "cells".</span></div>
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<a href="http://3.bp.blogspot.com/-zis20JWrSvo/VEp73zM_NDI/AAAAAAAADRA/nYrBltJPYGo/s1600/20141017_150425.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-zis20JWrSvo/VEp73zM_NDI/AAAAAAAADRA/nYrBltJPYGo/s1600/20141017_150425.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Nixon was starving, so he ate Faye's chicken nuggets...all at the same time I think.</span></div>
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<a href="http://1.bp.blogspot.com/-wMQ5EdLwSH4/VErdadB-PiI/AAAAAAAADak/WqPUP1ydA_g/s1600/20141017_142937.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-wMQ5EdLwSH4/VErdadB-PiI/AAAAAAAADak/WqPUP1ydA_g/s1600/20141017_142937.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Before the transplant they had to give Faye Benadryl just as a precaution before getting the cells. So she was super sleepy. She basically slept through the whole thing. They told us that getting the transplant was pretty anti-climatic. They just hang it and gravity does its magic and the cells work their way into her picc line. </span></div>
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<a href="http://1.bp.blogspot.com/-Bf_4cVMDEO8/VErdlRecSVI/AAAAAAAADbc/tg2Km4eQQwk/s1600/20141017_154834.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-Bf_4cVMDEO8/VErdlRecSVI/AAAAAAAADbc/tg2Km4eQQwk/s1600/20141017_154834.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> They were going in slower than expected, so they had to keep coaxing the cells to move. They said the longer the blood sits, the thicker it gets, so it sticks to the tube more. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Child Life made up these banners to place in Faye's room!</span></div>
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<a href="http://3.bp.blogspot.com/-LRef0wsxyXI/VErwSp0ROkI/AAAAAAAADeY/QTG7XeWLw-Y/s1600/20141024_182455.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-LRef0wsxyXI/VErwSp0ROkI/AAAAAAAADeY/QTG7XeWLw-Y/s1600/20141024_182455.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">And just like that the transplant was done! </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Saturday they started her on TPN because she wasn't eating enough and they expected her appetite to go down even more as an effect of the chemo.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Nixon handled everything so great. He was jumping down the halls in the hospital by that evening and that night was jumping on a small trampoline we have at home. Saturday, he would stop what he was doing for a second, put his hand on his back and say "oh my back" and then go right back to what he was doing. He complained about it off and on on Saturday. After that he was totally over it.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Nixon came back Saturday to have the pressure bandages removed. There were just some smaller bandages still on him. They said to let those fall off, just leave them alone. I guess Nixon didn't think he needed to. On Monday, he took them off himself. Here's the damage... not too bad right!</span></div>
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<a href="http://1.bp.blogspot.com/-pKTWM-YT8LM/VErwSAMHQQI/AAAAAAAADeQ/LZP420kHwlw/s1600/20141020_195619.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-pKTWM-YT8LM/VErwSAMHQQI/AAAAAAAADeQ/LZP420kHwlw/s1600/20141020_195619.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Sunday, Faye requested that Jay come visit. So I loaded him up and brought him along. It was good for everyone. Nick and I loved seeing these two together and how excited they were to see each other.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Spent Monday hanging out doing our nails. Although this girl takes after her mother and the nail polish had been picked off by that night! ;)</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Monday night we settled down to watch Once Upon a Time. Faye asked if we could make some popcorn. They told us to not force her to eat anything, but if she felt like it, go ahead and let her. So I was happy that she was asking to eat something and I made us some popcorn. She had a bit of popcorn (in her origami bowl she had made earlier in the day) and a few sips of root beer. Not to soon after, it all came back up. Poor girl was throwing up so much, in between it all she says "that is a lot of throw up." In theory it was a good idea--popcorn and a show anyways!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> We had a friend bring Faye some Halloween stuff. They brought Faye a candy bowl and a few treats to put in it. We had these suckers and everything to make them into ghosts that we had gotten from the young women at church. So when Faye had the treat bowl, she decided now was a good time to make the ghosts. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> BOO!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">And we also used the crepe paper streamers to create this spider web, complete with spider!</span></div>
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<a href="http://3.bp.blogspot.com/-SWUPgVo5AQk/VErd1VMmh4I/AAAAAAAADcc/xd6F1ciObTk/s1600/20141021_141518.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-SWUPgVo5AQk/VErd1VMmh4I/AAAAAAAADcc/xd6F1ciObTk/s1600/20141021_141518.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> She wrote on every tag! "Happy Halloween, Trick or Treat, or Boo... Love Faye"</span></div>
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<a href="http://3.bp.blogspot.com/-B2I5XnKqtUY/VErd39UcZrI/AAAAAAAADck/uZ31FuJbt28/s1600/20141021_141535.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-B2I5XnKqtUY/VErd39UcZrI/AAAAAAAADck/uZ31FuJbt28/s1600/20141021_141535.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Elementary kids from a school made and decorated pumpkins to go along with a book to have delivered to the hospital! Faye got the Junie B Jones Pumpkin. I thought it was so cute! (It's a fake pumpkin,but so darn cute!)</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Low platelets lead to random dots!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> So she was given more platelets.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">When we were here last time, Faye had a bucket that basically stayed right at her face when she got really sick. She would fall asleep with the bucket wedged between her chin and chest, if you would try to move it, she would wake up. I had written on it "Bucket of Comfort" and Faye decorated it. So when we found a sharpie, she got right on decorating her bucket. </span></div>
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<a href="http://1.bp.blogspot.com/-3qITu-I9jKk/VErd8yqnkdI/AAAAAAAADc8/I5CtOMoeHeM/s1600/20141022_125401.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-3qITu-I9jKk/VErd8yqnkdI/AAAAAAAADc8/I5CtOMoeHeM/s1600/20141022_125401.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">This room works out perfectly. Her IV pole can stay plugged in, and she can still reach the snack drawer to see what she wants.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif; margin-left: 1em; margin-right: 1em;"><a href="http://3.bp.blogspot.com/-NUxI9znsq5Y/VEreAmgdsfI/AAAAAAAADdM/d-hdaE6iWrw/s1600/20141022_200151.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-NUxI9znsq5Y/VEreAmgdsfI/AAAAAAAADdM/d-hdaE6iWrw/s1600/20141022_200151.jpg" height="180" width="320" /></a></span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">As you can see she still doesn't love getting her picture taken. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Yesterday she was able to leave the floor for a bit. Levels in her liver have been a little high, so they wanted to do an ultrasound to make sure her liver is still working the way it needed to. You can't see the mask so well, but from now on, whenever she leaves the floor, when she goes home, and when she comes back to clinic--if ever she goes anywhere--she needs to wear this lovely mask.</span></div>
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<a href="http://1.bp.blogspot.com/-HvDpNkSGJqs/VEreBQoPMJI/AAAAAAAADdU/1u1ePtjFzUQ/s1600/20141023_154624.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-HvDpNkSGJqs/VEreBQoPMJI/AAAAAAAADdU/1u1ePtjFzUQ/s1600/20141023_154624.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I really tried to sneak a picture in.... she wasn't having it!</span></div>
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<a href="http://4.bp.blogspot.com/-aazHyqYClxs/VEreHfxraEI/AAAAAAAADds/7eb6QLSRxrA/s1600/20141023_154919.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-aazHyqYClxs/VEreHfxraEI/AAAAAAAADds/7eb6QLSRxrA/s1600/20141023_154919.jpg" height="320" width="180" /></span></a></div>
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<span style="background-color: white; color: #674ea7; font-family: Verdana, sans-serif;">They told us today the liver looked great and all the tests they have sent out are coming back in our favor!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">And then of course the wonderful hair! It finally started falling out on Wednesday and she already has quite the bald spot in the back. You know when babies are small they get that bald spot from rubbing their head when they sleep.... same thing! She won't let me take a picture of it.... yet!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">But here is the bath just last night. All of this hair came off just between washing and rinsing her hair! I know a little gross... I debated posting this picture... but it is what it is!</span></div>
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<a href="http://4.bp.blogspot.com/-BftNUu3kWio/VEreFNZTswI/AAAAAAAADdc/zuQ1Ru_lDOE/s1600/20141023_200257.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-BftNUu3kWio/VEreFNZTswI/AAAAAAAADdc/zuQ1Ru_lDOE/s1600/20141023_200257.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Which is why we have moved onto using the "Sleep Caps." That's what she called them last time. It's our way of containing the hair. Otherwise it would be EVEYWHERE! It still gets out a bit, nothing a lint roller can't fix! But we have found if we keep the cap on, we are able to contain it a little more. When she wakes up in the morning we comb a bunch out, and after baths we lose a bunch more. I forgot how crazy all this hair falling out is... it really is everywhere. </span></div>
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<a href="http://2.bp.blogspot.com/-jTMWINbxEAU/VEreJPe-8aI/AAAAAAAADd0/_PowJHalH2I/s1600/20141023_201346.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-jTMWINbxEAU/VEreJPe-8aI/AAAAAAAADd0/_PowJHalH2I/s1600/20141023_201346.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">So today is Day 7. They told us to expect her to start feeling crummy on Day 4 or so. And so far she hasn't. Still throws up every once in a while. The other day we were playing UNO and she looks up at me and says "throw up" and I have about 3 seconds to get her bucket. Then she throws up and keeps on playing UNO like nothing happened. This girl is tough. But because we are on day 7 and still feeling pretty good we will take it and feel incredibly grateful.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">While things are happening at the hospital, a lot is going on at home! Mitchell has not been feeling well. Every time he would go to eat something he would feel sick. Nick took him to the Dr, and the Dr said it was gastritis which can be caused from stress. Anyone who knows Mitchell knows he carries the weight of the world on his shoulders. Off and on he has had his moments of break down. He has had to deal with more than any 9 year old has to deal with and for the most part he does okay. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Today was his last day of school. We are anticipating Faye coming home and we have decided it is best to keep Mitchell out of school when she comes home to keep as many germs out of our house as possible. We are going to hibernate for a good few months. Besides clinic visits and Nick going to work, we are hunkering down! So I will be doing homeschool with Mitchell and Faye... should be fun! I am lucky to have a wonderful friend in the ward that has homeschooled her kids forever, and she is helping me to figure out what the heck I am doing. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">You can tell that this is wearing on everybody. We all have our "this is crappy" moments then we get over it, buck up and move on. We realize it could be so much worse than it is. I was telling Nick earlier this week that I think I am crazy. I try to feel some sort of emotion about this. I think "I should be mad, I should be sad, I should feel something and I don't." But it hit me on Wednesday, I had a moment of emotion where you think "what if we do all this and it doesn't work?" Like I said, we have our moments, and then we get over it, toughen up and move forward. But they do happen.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Like this post on Facebook from Nick:</span></div>
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<a href="http://4.bp.blogspot.com/-zqKlUaTi8jM/VEr6l45x6GI/AAAAAAAADes/SzzJVUYRk44/s1600/10659391_10153223797666091_2076283965409684182_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-zqKlUaTi8jM/VEr6l45x6GI/AAAAAAAADes/SzzJVUYRk44/s1600/10659391_10153223797666091_2076283965409684182_n.jpg" height="320" width="320" /></span></a></div>
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<span style="color: #38761d;"><span style="font-family: Verdana, sans-serif;">I took Nixon to the hospital on Wednesday afternoon for his final lab work and exam in preparation of donating his marrow to save his sister this Friday. I hung out with Faye while Stacey went with Nixon in the clinic. I walked in the room</span><span class="text_exposed_show" style="font-family: Verdana, sans-serif;"> and gave Faye a hug. She immediately began to cry on my shoulder because she didn't feel good. Her eyes were sad and she looked very tired. 15 minutes later I sat next to her with my arm around her while she vomited for a while into her bucket. Then she just asks for a tissue, blows her nose, lays back on her bed, and handles it with a bravery and courage that inspire me. <br /><br /> This experience has made me feel such a profound sorrow that I never knew was possible. However, it also reminds me of the profound love I have for her and the incredible blessing of being a father to such amazing kids and a husband to a wife I will never deserve. There is no greater joy than the unconditional love of family. Thank you all for lifting us up and helping take care of these five superheros! #SuperFaye #SuperStacey #SuperNixon #SuperMitchell #SuperJay #SuperFayesFighters</span></span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I am adding #SuperNick because he keeps this thing moving. He takes on so much more to make this easier for the rest of us. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">And then tomorrow they are putting on this awesome event for Faye! Mitchell is doing a Lemonade stand, there is a yard sale, and activities, photo booth.... everything that everyone is doing is incredibly humbling, amazing and generous. </span></div>
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<a href="http://1.bp.blogspot.com/-2YQ9Y3l9tAk/VEr3rfIos5I/AAAAAAAADek/I00-JddPlq4/s1600/10365882_673928786054843_2884004975247041790_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-2YQ9Y3l9tAk/VEr3rfIos5I/AAAAAAAADek/I00-JddPlq4/s1600/10365882_673928786054843_2884004975247041790_n.jpg" height="320" width="244" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">We usually switch on the weekends, but Nixon and Jay now have colds. We told ourselves when this started we would keep Faye as safe as possible, so if that means not getting to go home for the weekend, and Nick not getting to hang out with Faye for a few days, that is what we will do. I was going to finish up the Halloween costumes this weekend (anyone who knows me knows I LOVE creating those Halloween costumes). Good thing my mom is visiting, because she would always make us amazing Halloween costumes when we were little, so I completely trust her and her abilities to pull it together and I am incredibly grateful for her help. It's not worth the risk of one of us bringing something back to her, even if neither of us are showing symptoms. Another wonderful part of all this, plans are always changing... we are rolling with the punches!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">If I have not learned anything else from this week..... update the blog more often.... these long posts get a bit overwhelming! ;)</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">And just for your enjoyment a few video clips from the past two weeks! Nick and Faye dancing, the actual transplant, Jay coming to visit, and this past week was our Primary Program at church (this is where all the kids 3 to 11 share their testimony on our Savior, and what they have learned in their classes over the year. Obviously Faye was not able to participate in person, but they had us record her part and they played it during the program!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Enjoy!</span></div>
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Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com3tag:blogger.com,1999:blog-1617084640685488084.post-8652634327901166532014-10-10T08:39:00.000-07:002014-10-10T08:43:09.080-07:00Bow and Arrow<div class="separator" style="clear: both; text-align: center;">
<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Oh my goodness, to say a lot has happened in a week and a half would be an understatement. It has been very busy... good busy, but still busy. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Faye was just getting used to hanging out in the hospital....</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">But come Wednesday the 1st it was time to get some work done. She was set to get a number of tests done, to check to see if she was in remission, and then if she was in fact in remission she would need a bunch of tests to get a baseline to see how her body is working now, compared to how it is working after the bone marrow. Faye started out first thing in the morning with a Pulmonary test. This is a breathing test to test her lung capacity and strength. She had to put her mouth on a tube, she had a screen in front of her with lit candles, and she had to try and blow all the candles out, she did great at this test. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Next it was on to the bone marrow biopsy. They try and get it done as early in the morning as they can, because she hasn't been able to eat or drink anything since midnight, which really is like 9 because she fell asleep. So here we were waiting... it was about 10 and she was getting a bit grumpy because she was hungry. I couldn't help but stare at her feet and realize the importance of the test we were waiting for, this test is about to determine the path, and the plan for this journey.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">After the Bone Marrow, we headed back to the room, she was super grumpy, she wouldn't even eat, which was the whole reason she was grumpy, was because she was hungry. After she ate, she felt much better. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Dr. Krance, the Bone Marrow Transplant doctor came and talked to us. He told us that if everything looked great they were ready to take Faye on the transplant floor on Tuesday the 7th. Oh my goodness, this was getting so close, this was getting scary, and ever so real. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Again Nixon also had to come down on Wednesday for more tests too. This time wasn't as successful as last time. He knew what was going on, and he put up much more of a fight. I ended up holding him on my lap, and hugging him as tight as I could. They got it working in the first poke, and halfway through the draw it stopped giving blood. So here we were again, getting more pokes than we want. They tried the other arm, and they couldn't get it to work. So we moved to a room with a bed, laid him down, I practically had to lay on him to hold him down, and they got it to work. I was trying to talk to him the whole time they were doing it, to get him to take his mind off of it. I told him I am sure they could get him a popsicle, and between screams he said "I want a purple popsicle" This poor kid....</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> But nothing that a popsicle and iPad can't fix. Again he got over it quickly.... he got quite the bruises to show for those pokes.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">While I took Nixon for blood work, Nick took Faye to get and EKG, and Echo. These are both tests to measure, and look at the heart. All of this Chemo really takes its toll on the heart, it causes the heart to work so much harder than it is used to.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">It wasn't just a big day for Faye and Nixon.... Baby Emily got her PICC line placed. She handled it like a champ.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> Twiners!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">And by Wednesday night the preliminary results came back that there is No Residual Disease.... Wonderful news, they still had to send and get more extensive tests done on the bone marrow, but for what they had back already this was wonderful news! And because of this, it looked like we were headed to the Transplant floor on Tuesday.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">SUPER FAYE has done it again!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Wednesday night also I think this all got to Mitchell. He came home from scouts just crying. Nick talked to him to figure out what was wrong. Mitchell couldn't really tell him a specific thing. Nick talked to Mitchell and told him that sometimes there are all of these little things that happen, and eventually they all just add up into one big thing, and it breaks you down for a bit. I know while we are all "Handling" this, it still is taking its toll, and we all break down at times. But we realize we just need to take a moment, regroup and be ready to handle everything again. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Nick is incredibly good at being aware of what each of us need. He is so great at realizing what is important, and he is very in tune with each of our kids and what they need, every single time. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">When Mitchell woke up Thursday morning and was still upset, Nick decided Mitchell needed a vacation day......</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">So down to the hospital Nick and Mitchell came to hang out with us. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">This girl was excited!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">We spent the day playing games, and building Legos.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Thursday evening we got the news that we could go home on Friday for the weekend. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> </span><a href="http://1.bp.blogspot.com/-uT5jlQdOvVw/VDfU3Kq9aBI/AAAAAAAADKY/IlgsMwY33TI/s1600/20141003_140251%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-uT5jlQdOvVw/VDfU3Kq9aBI/AAAAAAAADKY/IlgsMwY33TI/s1600/20141003_140251%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Again this girl was SUPER excited! Big thumbs up from her!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Nick took Grandpa Meldrum to the airport in the morning, and then came to pick us up. We were all packed up and ready to get out of here.</span></div>
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<a href="http://4.bp.blogspot.com/-QGKPLheagDA/VDfU3XqtIlI/AAAAAAAADKk/xTXWuYGwxVc/s1600/20141003_140812%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-QGKPLheagDA/VDfU3XqtIlI/AAAAAAAADKk/xTXWuYGwxVc/s1600/20141003_140812%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Loaded up and ready to go! </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> I don't know who is more excited!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">One of Faye's friends had a Ding Dong cake waiting for her when she got home! It was delicious, she loved it!</span></div>
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<a href="http://3.bp.blogspot.com/-gdWP0prxkXU/VDfU5YTHkdI/AAAAAAAADK8/6Q45Ysu8B-Y/s1600/20141004_225136%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-gdWP0prxkXU/VDfU5YTHkdI/AAAAAAAADK8/6Q45Ysu8B-Y/s1600/20141004_225136%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">One of our Favorite things to do as a family are make homemade pizzas. Everyone gets their own personal pan pizza, and can put whatever toppings on it! Everyone is happy, and everyone wins. Faye requested this as one of her meals when we were home! </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Grandma Mary Ann flew in Saturday night. We are so grateful she is willing to come take care of the boys during the week. She only booked a flight here, not sure when we are going to let her go home.... if ever!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">The night before we went home, Faye and I got on Targets website and Faye picked out some new bedding. And a lamp for her room. She was so excited when we got home to see her new bedding. Some friends had gone over on Friday to clean the house, and they added more decorations, drapes, and throw pillows to the room. She loved it so much she got 12 uninterrupted hours of sleep on Friday night! We had to keep checking on her in the morning to make sure she was okay. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> "Floppy Hat Faye" she had hanging up in her room every round last time. And all those hats were hanging in her room. When we came home last time, Nick made a hat rack for her to be able to display all of her hats. Most of them don't fit her anymore, but can't bring ourselves to do anything else with them!</span></div>
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<a href="http://2.bp.blogspot.com/-n2NKXmGUI20/VDfVAnqw8HI/AAAAAAAADM4/F8ksEyBkBTY/s1600/image%2B(5).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-n2NKXmGUI20/VDfVAnqw8HI/AAAAAAAADM4/F8ksEyBkBTY/s1600/image%2B(5).jpg" height="239" width="320" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Before we knew it, it was time to head back. Before we went home we had Nurse Maria as our nurse for 4 days. And before we knew we were headed home over the weekend, I had told Faye that when I went home on the weekend I would make Pumpkin Bars and bring her some. Nurse Maria heard of this, and Faye said she would share with Nurse Maria. Well just because we went home, that was not stopping Faye from sharing with Maria. So on Tuesday before we went to check into the 8th floor, we had to make a stop onto the 9th floor to deliver Maria her pumpkin bars!</span></div>
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<a href="http://4.bp.blogspot.com/-HvxzY9iKwe4/VDfU6ZRXZ_I/AAAAAAAADLU/SPPcQmhH8VE/s1600/20141007_102136%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-HvxzY9iKwe4/VDfU6ZRXZ_I/AAAAAAAADLU/SPPcQmhH8VE/s1600/20141007_102136%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Tuesday was a long day of waiting, getting checked out, and waiting! Dad is the best at passing the time!</span></div>
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<a href="http://1.bp.blogspot.com/-s_jhbz4HXNc/VDfU68dEl2I/AAAAAAAADLI/MSt5kywRcGc/s1600/20141007_104412%2B-%2BCopy%2B(2).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-s_jhbz4HXNc/VDfU68dEl2I/AAAAAAAADLI/MSt5kywRcGc/s1600/20141007_104412%2B-%2BCopy%2B(2).jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">At around 4 we got into her new room. This girl never ceases to amaze me. Up to this point every time she has had to get a dressing change (they change the cover of her PICC line) she has screamed and fought it like crazy! But not today, today she took it like a champ, she held her arm right out, every once in a while we would hear a "ow" but that was the extent of her complaints. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">And of course Emily had to endure a dressing change too! </span></div>
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<a href="http://2.bp.blogspot.com/-l8kweljpvvw/VDfU7QhNQ7I/AAAAAAAADLM/3uj8mXD0vRE/s1600/20141007_171534%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-l8kweljpvvw/VDfU7QhNQ7I/AAAAAAAADLM/3uj8mXD0vRE/s1600/20141007_171534%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">After an already long day and Faye handling it all it was time to get hooked up, and start her medicine. She wouldn't start chemo til tomorrow, but to prep for the chemo they started a medicine that helps prevent seizures (which the chemo can cause) and antibiotics, to help her body fight off sickness! When she figured out that she was getting hooked up, she whined for a minute "I don't want to get hooked up". But then she looked at me and just let them do it. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Over the weekend when we were home we had a talk with Faye. We told her that when we went back to the hospital there were going to be a lot of things that maybe she didn't want to do, but she had to do them, so either she could do it willingly, or they are going to have to make her. And the sooner she did everything they asked her to do, the sooner we would get to head home. I guess the talk worked, because she was doing awesome!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">After a long day of getting all settled, we were getting ready for bed. I asked Faye if she wanted to say the prayer or if she wanted me to say the prayer. She opted for me to say it. I asked her what we should pray for. She sat there for a minute, then she got a big smile on her face and held her finger up like she had an idea. "We should pray for Nixon that he will be okay when he has to do the "Bow and Arrow" (thats what Faye calls it) next Friday". It is amazing to me these little kids, and their innocence. We are truly grateful for all of you who read this, support us and pray for us. It is definitely felt here. And because all of you pray for Faye, she has the strength to pray for her little brother.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Again the youth in our ward sent us with a box of decorations, we are slowly working on getting her room decorated! I don't know who is having more fun... her or me? </span></div>
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<a href="http://3.bp.blogspot.com/-ALwPRt26BgQ/VDfU8en2USI/AAAAAAAADMA/5zvjkQ3_32c/s1600/20141008_154847%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-ALwPRt26BgQ/VDfU8en2USI/AAAAAAAADMA/5zvjkQ3_32c/s1600/20141008_154847%2B-%2BCopy.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> Although we might need some help, because anything that we have taped up, fell down in the middle of the night... Dad might have to come save the day, and fix it all for us!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Here we go again, tons of game playing, which she continues to win mostly! </span></div>
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<a href="http://2.bp.blogspot.com/-EX3r34l-n7I/VDfU8tbHcHI/AAAAAAAADLw/ztyhWmxtsXc/s1600/image%2B(1)%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-EX3r34l-n7I/VDfU8tbHcHI/AAAAAAAADLw/ztyhWmxtsXc/s1600/image%2B(1)%2B-%2BCopy.jpg" height="320" width="239" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> More decorating.... she loves making the decorations, its the picture taking that is hit and miss!</span></div>
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<a href="http://4.bp.blogspot.com/-h-i7PDtM-xI/VDfU9bJXoqI/AAAAAAAADLs/Suteq1CboZk/s1600/image%2B(1).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-h-i7PDtM-xI/VDfU9bJXoqI/AAAAAAAADLs/Suteq1CboZk/s1600/image%2B(1).jpg" height="320" width="239" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">My Aunt Kim had this made for Faye. Isn't it amazing. She told us that when her nephew was in the hospital after a horrible car accident, he wasn't able to sit up, so they had a poster made like this, and they hung it on the ceiling so he could look up and see this poster. Everyone who passes Faye's room has commented about how amazing this poster is! </span></div>
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<a href="http://1.bp.blogspot.com/-7eDsHQLsLiY/VDfU-YnvW8I/AAAAAAAADL4/PpJgZRaIOow/s1600/image%2B(2)%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-7eDsHQLsLiY/VDfU-YnvW8I/AAAAAAAADL4/PpJgZRaIOow/s1600/image%2B(2)%2B-%2BCopy.jpg" height="320" width="239" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Its the quote at the bottom that is truly amazing:</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">"A HERO is an ordinary individual who finds the strength to PERSEVERE and ENDURE in spite of overwhelming obstacles" ~Christopher Reeve </span></div>
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<span style="color: #3d85c6; font-family: Verdana;">You are all HEROS to us! We couldn't do all this without your love, support, and encouragement.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">In. The box was this "make your own owl mask" </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Once Faye had the mask made we decided we needed to send Dad a picture. With the caption:</span></div>
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<a href="http://4.bp.blogspot.com/-aIrpZf9PT1I/VDfU__cHEJI/AAAAAAAADMU/H_7jExSjxqU/s1600/image%2B(4)%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-aIrpZf9PT1I/VDfU__cHEJI/AAAAAAAADMU/H_7jExSjxqU/s1600/image%2B(4)%2B-%2BCopy.jpg" height="239" width="320" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;"> "Owl" see you on Friday! "Whoos" excited!</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Last night I was talking to Faye about her hair.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Me: Do you think I should cut my hair like you?</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Faye: Mine will grow back faster! Because yours is falling out, and mine isn't.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">(we joke, are you sure Faye got the chemo, because I am losing more hair than her)</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">They tell us it will start falling out.... but for now it is holding on strong.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">Faye is feeling pretty good, she has gotten 9 doses of 16 of the first chemo. And Sunday she will start the second chemo, which the doctors have warned us that this first chemo the kids handle pretty well, its the second one that she will start to not feel so well. </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">So like another cancer mom told us "Plan for the worst, hope for the best". So that is what we will do.</span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">So there you go, I think we are all caught up. The current plan is that she will get 8 days of chemo, rest next Thursday, and do the bone marrow transplant on next Friday! </span></div>
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<span style="color: #3d85c6; font-family: Verdana, sans-serif;">So watch out, Faye is coming... and she has got this!</span></div>
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<a href="http://1.bp.blogspot.com/-tXhlznLsRc0/VDfVBy1mzDI/AAAAAAAADNA/lrv5tzmC1v4/s1600/image%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #3d85c6; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-tXhlznLsRc0/VDfVBy1mzDI/AAAAAAAADNA/lrv5tzmC1v4/s1600/image%2B-%2BCopy.jpg" height="320" width="239" /></span></a></div>
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<span style="color: #3d85c6; font-family: Verdana;">Also in exciting news... the more extensive bone marrow tests we talked about.... they have all come back NEGATIVE! Which in this case negative is good!</span></div>
Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com5tag:blogger.com,1999:blog-1617084640685488084.post-90346173768659967392014-09-30T20:43:00.001-07:002014-09-30T20:43:43.384-07:00We are planning on a plan<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Last Monday we were able to meet with the transplant doctor, Dr. Krance. He gave us a better idea as to what to expect once we make it down to the Bone Marrow floor. The schedule if everything goes according to plan is: she will receive strong doses of chemo that will wipe out all of the marrow in her whole body. That chemo will be given over 8 days and on the ninth day they will take 1 pint of marrow out of Nixon. That same day (after they do what they need to do to get it ready for Faye) they will give it to her. It is amazing what our bodies can do. They put this marrow into Faye and it finds where it needs to latch onto and starts doing its job right away. Then (if everything goes smoothly and perfectly) she will spend 4 to 5 weeks on the bone marrow floor. Then she is clear to head home. The part that we weren't ready for was that although she is home, she is not allowed to go out of the home for another 6 months, except for the visits 3 to 4 times a week back to clinic for them to check up on her, see how she is doing, and make sure everything is still doing what it needs to. There are too many possible complications and risks to list so we are going to expect best case scenario and have back up plans far enough back on the burner we don't have to continually think about them but close enough we have a plan of action if needed. </span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Miss Rosie was nice enough to come down and hang out with Faye so Nick and I could talk to the Doctor uninterrupted. (Forgot the cord to the camera, so a picture of a picture will have to do)</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">She received her first ever set of Legos. Rosie helped her put them together. Needless to say she loves them. The hospital is a good place for those. I told her if she were to try and build them at home, I know of two little boys that could cause quite a bit of drama.</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Our little attempt at some sort of school til we figure out how to make that all work. Now knowing that she won't be able to go back to school for probably the rest of the year, some big decisions need to be made.</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">"Mom look at my new braids!"</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">We played "Go Fish". And she got every single group.....</span></div>
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<a href="http://1.bp.blogspot.com/-g9vaUTxg5A0/VCnP8ODpk3I/AAAAAAAADC4/vXo_WNtI92c/s1600/20140923_190205.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-g9vaUTxg5A0/VCnP8ODpk3I/AAAAAAAADC4/vXo_WNtI92c/s1600/20140923_190205.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">For four nights in a row we were lucky enough to have Erica (Or "Ninja Nurse" as Nick named her). She is so quiet when she comes in, usually Nick will wake up for a bit every time someone comes in to check on Faye, but there were a few times he didn't even hear her. She is good. The last night she was with Faye she came in and said Faye was her only patient. She was waiting for someone to get admitted, but they hadn't gotten word that they were here yet. So she asked Faye if she needed anything. Faye wanted her to play a game with her, but was too shy to ask. As soon as they started playing "Old Maid," she was good to go.</span></div>
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<a href="http://4.bp.blogspot.com/-R9hFmfqwPlE/VCnP8elqQXI/AAAAAAAADDA/CWHEVuvG8Dc/s1600/20140923_200945.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-R9hFmfqwPlE/VCnP8elqQXI/AAAAAAAADDA/CWHEVuvG8Dc/s1600/20140923_200945.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">More Lego playing and feeling quite well.</span></div>
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<a href="http://1.bp.blogspot.com/-YKEIY5xdBPs/VCnP8i5gT7I/AAAAAAAADDI/PQVy6ka12qU/s1600/20140925_144205.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-YKEIY5xdBPs/VCnP8i5gT7I/AAAAAAAADDI/PQVy6ka12qU/s1600/20140925_144205.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">After the boys and I came up to visit for Jay's Birthday, Mitchell was feeling sad. He said "I liked it better last time when Faye and I could play games together." Last time we had Mitchell who was old enough to know what not to touch and a newborn who would lay where you put him. This time... not so much. Having a 3 year old, and a very busy walking one year old, makes so much harder to come and hang out all together.</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">So one night Nick and Mitchell left the little boys with Grandpa and came and hung out with Faye and I!</span></div>
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<a href="http://1.bp.blogspot.com/-zEqqiqR_cjM/VCnP9JPWBuI/AAAAAAAADDM/9ID7C4vkFWU/s1600/20140925_184858.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-zEqqiqR_cjM/VCnP9JPWBuI/AAAAAAAADDM/9ID7C4vkFWU/s1600/20140925_184858.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Best double date ever....</span></div>
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<a href="http://4.bp.blogspot.com/-0a4-uQ8p0Y0/VCnP9YBvDeI/AAAAAAAADDQ/Wx3Hm1NQMsc/s1600/20140925_200421.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-0a4-uQ8p0Y0/VCnP9YBvDeI/AAAAAAAADDQ/Wx3Hm1NQMsc/s1600/20140925_200421.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Even after all these years its still hard having to say goodnight at the door ;)</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">A few silly faces.... just for fun!</span></div>
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<a href="http://2.bp.blogspot.com/-LjXLlGSkbps/VCnP1NQY9_I/AAAAAAAADCc/f5kn_zZK_1g/s1600/Photo%2BCollage%2B92514%2B1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-LjXLlGSkbps/VCnP1NQY9_I/AAAAAAAADCc/f5kn_zZK_1g/s1600/Photo%2BCollage%2B92514%2B1.jpg" height="320" width="320" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Nick's Dad arrived on Wednesday to be able to watch the boys while Nick is at work. And Fridays Nick and I switch, so Nick brought Grandpa down to be able to see Faye. </span></div>
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<a href="http://4.bp.blogspot.com/-2ejyP6hq_2U/VCnS2XOF73I/AAAAAAAADE0/xBGURsLuM9w/s1600/20140926_154503.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-2ejyP6hq_2U/VCnS2XOF73I/AAAAAAAADE0/xBGURsLuM9w/s1600/20140926_154503.jpg" height="320" width="180" /></span></a></div>
<span style="color: #6aa84f; font-family: Verdana, sans-serif;"> Of course Nick had to bring Nixon because we already knew from testing last time that he was a match for Faye, but because we are actually going to need him now, they needed to do more testing to make sure everything was ready to go.</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">He was great. They weighed him, measured him, and checked his temp and blood pressure. He did awesome.</span><br />
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<a href="http://4.bp.blogspot.com/-xRqV3iNmy60/VCnP9yinYnI/AAAAAAAADDc/u9S3BiElsRQ/s1600/20140926_135327.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-xRqV3iNmy60/VCnP9yinYnI/AAAAAAAADDc/u9S3BiElsRQ/s1600/20140926_135327.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">After all that, they took him to get some blood drawn. First they started in his left arm. The lady from child life (people who help calm kids down, explain everything, and help it seem not so scary) held my phone while Nixon was playing it with one hand. The nurse poked his arm, but she couldn't get blood or find the vein. She kept moving the needle around. Believe me, I was squirming watching it, but Nixon would look over every once in a while and say ow, then go right back to his game. After a while she wasn't able to make it work and he had had enough. She decided to try the other arm. At this point he still wasn't crying, but knew that what they were doing did not feel good.</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">So onto the next arm. The second they poked him, he started crying. Luckily it worked the first time. He cried the whole time until they took the needle back out. Once they took the needle out, he stopped crying and said to me "Look mom 2 band-aids!" As we were waiting to see the doctor, he would tell me every once in a while that it hurt.... but in my book he is a champ!</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Saturday morning was not a fun morning. Nick called and said she had been screaming and complaining about her stomach for 20 mins. He didn't know what to do, or how to get her to stop. Eventually she threw up and they gave her some medicine to help her stomach and to help her sleep it off. She slept for a few hours and woke up feeling fine.</span><br />
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<a href="http://4.bp.blogspot.com/-IouQKdT_SMo/VCoGakVNhkI/AAAAAAAADFg/bMnKVPQdXXo/s1600/20140927_091650.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-IouQKdT_SMo/VCoGakVNhkI/AAAAAAAADFg/bMnKVPQdXXo/s1600/20140927_091650.jpg" height="320" width="180" /></span></a></div>
<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Also her Wonder Woman stuff came in the mail. For those of you who don't have Facebook, Wonder Woman sent Faye a special video saying she was going to send her her Crown, arm Cuffs, and a special Super Faye cape. </span><br />
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<a href="http://3.bp.blogspot.com/-hd_QgD-yITU/VCnPycJgdwI/AAAAAAAADCI/fZpt_LRLIdY/s1600/WIN_20140928_162601.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-hd_QgD-yITU/VCnPycJgdwI/AAAAAAAADCI/fZpt_LRLIdY/s1600/WIN_20140928_162601.JPG" height="320" width="213" /></span></a></div>
<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Now Faye wants to be Wonder Woman for Halloween! </span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">I know we post a lot of what is going on here at the hospital, but there is also a lot going on at home. Everyone has/is being so amazing...being totally willing to watch the boys while Nick works (before family got here), doing laundry, cleaning our house, mowing the lawn, bringing food, bringing gifts, sending cards, messages, and phone calls. The list goes on and on..... we truly do feel so incredibly blessed for everything that everyone is doing for Faye and our family.... it is amazing!</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">On Saturday at the baseball and soccer fields in our neighborhood, kids could buy a water balloon for $1 to throw at their coaches or brothers and sisters to raise money for Faye. It was fun to see and hear about.</span><br />
<span style="color: #6aa84f; font-family: Verdana, sans-serif;">This picture is of Mitchell's baseball team getting their coaches.... they were such good sports!</span><br />
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<a href="http://2.bp.blogspot.com/-ZUjsRCwqjSk/VCnP-loWnII/AAAAAAAADDs/AX5LTzzbEQU/s1600/20140927_132005.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #6aa84f; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-ZUjsRCwqjSk/VCnP-loWnII/AAAAAAAADDs/AX5LTzzbEQU/s1600/20140927_132005.jpg" height="180" width="320" /></span></a></div>
<span style="color: #6aa84f; font-family: Verdana, sans-serif;"> And then we were able to help fill water balloons for more kids to do the same to their coaches. Nixon was an especially good helper.... or good for comic relief, either way we had a great time!</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Faye is staying busy doing art projects.</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">This big box is all from her Softball team. She was so excited about every single thing she pulled out of it.... it was like a never-ending box of fun.... giving Faye plenty to do! This girl sure </span><span style="color: #6aa84f; font-family: Verdana, sans-serif;">is </span><span style="color: #6aa84f; font-family: Verdana, sans-serif;">loved!</span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">This hospital stuff is starting to become more of a routine now. Faye has started taking her mouthwash all at once. She used to have to do it in two rounds because there was quite a bit of it. Now it is no big deal! </span></div>
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;"> She has to do 4 of these a day. The nurse brings in all four in the morning... Faye decided it was a good idea to number them, and even today asked me, "Do you think we should probably do my mouthwash now?"</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;"> We are being pretty boring around here. Our nurses come in just to check on us, and they always ask if we need anything. Faye always says no. But today when the nurse came in and asked, I said "So what do you mean what can you do for us? Like give us some examples of stuff you can do for Faye?" So she said whatever you want. So of course Faye got her to play a few games. Spot It, Frozen Memory, and Frozen Slides. Faye won everything We have this nurse for two more days... she has already declared a rematch!</span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">Now onto the plan. Monday morning her ANC (an indicator of how strong her immunity is) was 570, today it is 1190. We were shocked, Sunday it was 0. Because it was higher than we all expected, they decided that she will probably be ready to check her bone marrow on Wednesday. The results of that will then let us know what to do next. If there are still Leukemia cells present she will be doing another round of Chemotherapy. What Chemo types will depend on how much Leukemia is still lingering. If they can't detect any she will be declared in remission and they will start trying to squeeze her in the marrow transplant schedule and begin that exciting process. </span><br />
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<span style="color: #6aa84f; font-family: Verdana, sans-serif;">So pretty exciting stuff going on around here.... Plans that will inevitabily change are beginning to form. Although we know the plan will change 100 or more times it make us feel better to say we are forming one in our heads.... it all sounds great.</span>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com3tag:blogger.com,1999:blog-1617084640685488084.post-89811148718178495792014-09-22T04:20:00.000-07:002014-09-22T08:23:05.627-07:00I Mustache you......who is having more fun?<div class="separator" style="clear: both; text-align: center;">
<span style="color: #0b5394; font-family: Verdana, sans-serif;">These two........ I cant decide who loves their time together more! Its not just that Faye has her Dad wrapped around her little finger. Dad has Faye wrapped around his too! And as the Mom and Wife of these two I wouldn't want it any other way....not that I don't give them both a hard time about it still!</span></div>
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<a href="http://4.bp.blogspot.com/-vaGPSd3g1k4/VB-LzxJtexI/AAAAAAAAC70/BmmGGO2te60/s1600/20140921_183758.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-vaGPSd3g1k4/VB-LzxJtexI/AAAAAAAAC70/BmmGGO2te60/s1600/20140921_183758.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"> Monday they made Faye go to a pill swallowing class! I went along, but I had to wait outside. All I know is that she swallowed a tiny pill that morning just fine. And after the class she came out in tears, and wanted to go straight back to the room. They wanted Faye to show me how well she could swallow pills. Faye didnt want to. And the next time they brought the small pill for her to swallow she wasnt quite as willing! Sooooo not so sure how effective their pill swallowing plan/class is! On the plus side, she did get picked up and "driven" to her appointment. It's the closest to a celebrity I have ever been! </span></div>
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<a href="http://2.bp.blogspot.com/-8rhvYgIxG8o/VB-P7i3eU8I/AAAAAAAAC88/KDSUXUI4MmQ/s1600/IMG_1495.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-8rhvYgIxG8o/VB-P7i3eU8I/AAAAAAAAC88/KDSUXUI4MmQ/s1600/IMG_1495.JPG" height="320" width="240" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">One of Faye's friends sent her this doll. She had me do the dolls hair, french braid with a ponytail at the bottom. And then, of course, after Faye's bath it was requested that I do the same to Faye. Friends gave us a sleep mask, which Faye took over right away! When the doll came with one it was like a match made in heaven. Faye is not letting some silly 'ol hospital interrupt her beauty sleep! </span></div>
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<a href="http://3.bp.blogspot.com/-7mTybatHi_0/VB-L_OcOy4I/AAAAAAAAC8g/YSZvJjJ-tJo/s1600/20140915_211156%2B(1).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-7mTybatHi_0/VB-L_OcOy4I/AAAAAAAAC8g/YSZvJjJ-tJo/s1600/20140915_211156%2B(1).jpg" height="180" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">We spent a good part of the afternoon coloring this picture! I had so much fun doing it, I asked her if she wanted to do another one....she was excited and she picked out Jasmine. She colored for about 5 mins, and then decided she was done! Of course I had to finish it...but it didn't look quite as good as this one.</span></div>
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<a href="http://2.bp.blogspot.com/-_TH57Bfo1m4/VB-P7LlnXqI/AAAAAAAAC84/BHBojZwyk9Q/s1600/IMG_1496.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-_TH57Bfo1m4/VB-P7LlnXqI/AAAAAAAAC84/BHBojZwyk9Q/s1600/IMG_1496.JPG" height="320" width="240" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">On Tuesday Dad and Mom switched. I finally got to go home to see the boys. And Dad got some one on one time with his girl! Both were equally needed!</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Mom left just in time to miss the first PICC line dressing change. Dad is just getting his hearing back! She always hates having to do that. Eventually she gets used to it. The guy who was doing it said there is some stuff called Brava adhesive remover, they dont carry it at the hospital, but Dad ordered some online and I hope it arrives for this week's dressing change.</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Someone sent Faye this pillow.You take these squares of fabric and punch them through marked holes. She has been working on it all week here and there. Everyone that sees it says how cool they think it is. We like a "take a long time" project!</span></div>
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<a href="http://2.bp.blogspot.com/-U1nKcpQXRew/VB-LYx5IF_I/AAAAAAAAC4k/6LiydHwXeBI/s1600/20140916_161346.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-U1nKcpQXRew/VB-LYx5IF_I/AAAAAAAAC4k/6LiydHwXeBI/s1600/20140916_161346.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Dad had to expand her game horizons by teaching her a few new ones. After far too many frozen board game matches she is now skilled at Suduko, crazy 8s, and old maid. </span></div>
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<a href="http://4.bp.blogspot.com/-cgHtT18QZSs/VB-P-M0a0sI/AAAAAAAAC9Q/qQQCmNNZ7wI/s1600/IMG_1501.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-cgHtT18QZSs/VB-P-M0a0sI/AAAAAAAAC9Q/qQQCmNNZ7wI/s1600/IMG_1501.JPG" height="240" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">On Wednesday she got some platelets.....</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">And then...you knew it was coming! It was time for Faye to get a haircut! We found it is easier to cut it short than have long hair falling out every where. I mean the hair gets everywhere. We are prepared this time with a lint roller to keep the hair cleaned up! </span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">But look how long her hair is....she has been blessed with good hair!</span></div>
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<a href="http://4.bp.blogspot.com/-hNvilvH2zcU/VB-LrldVbXI/AAAAAAAAC6A/tXOeTRpQD_8/s1600/20140917_103458.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-hNvilvH2zcU/VB-LrldVbXI/AAAAAAAAC6A/tXOeTRpQD_8/s1600/20140917_103458.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">They have a little salon on the 16th floor. So Faye got her mask on (to protect from any outside germs) and dad and her headed up to get a cut!</span></div>
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<a href="http://1.bp.blogspot.com/-SUbFwoVQVIA/VB-LrDNlnVI/AAAAAAAAC58/sQ8Lw4kK3cc/s1600/20140917_121336.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-SUbFwoVQVIA/VB-LrDNlnVI/AAAAAAAAC58/sQ8Lw4kK3cc/s1600/20140917_121336.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">At first when we found out the cancer was back Faye told us that she didn't want to cut her hair this time. As time went on she decided she wanted to see which ponytail was longer...this time or last time! So Dad brought her other ponytail down to the hospital so she could compare.</span></div>
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<a href="http://1.bp.blogspot.com/-KlQQBJ7xiIw/VB-LbIWlzqI/AAAAAAAAC5A/eXxNBIdN4dM/s1600/20140917_124345.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-KlQQBJ7xiIw/VB-LbIWlzqI/AAAAAAAAC5A/eXxNBIdN4dM/s1600/20140917_124345.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Its amazing how much longer, thicker..and a bit darker her hair is now.</span></div>
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<a href="http://3.bp.blogspot.com/-5RL3wZmWWnM/VB-Ls0DkWmI/AAAAAAAAC6Q/jd9W1GEIq7Y/s1600/20140917_121546.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-5RL3wZmWWnM/VB-Ls0DkWmI/AAAAAAAAC6Q/jd9W1GEIq7Y/s1600/20140917_121546.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">And the finished product! Honestly we weren't loving it at first. Nick said...."well in about a week or so you don't have to worry about it anymore!" I suppose it is just the shock.You don't realize how different a little haircut can make someone look! </span></div>
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<a href="http://3.bp.blogspot.com/-kkGxOP22vbw/VB-LubPelSI/AAAAAAAAC6w/PwjOnJnVUvo/s1600/20140917_124527.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-kkGxOP22vbw/VB-LubPelSI/AAAAAAAAC6w/PwjOnJnVUvo/s1600/20140917_124527.jpg" height="180" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">But then, of course, after a nice bath, I was in love.....she just looks so darn cute no matter what she does!</span></div>
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<a href="http://2.bp.blogspot.com/-QFEfhRSJ71o/VB-L2GQ0hNI/AAAAAAAAC8Q/Q9txg_vFmHY/s1600/IMG_20140918_190628.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-QFEfhRSJ71o/VB-L2GQ0hNI/AAAAAAAAC8Q/Q9txg_vFmHY/s1600/IMG_20140918_190628.jpg" height="320" width="240" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Faye doesn't love it. She still misses her long hair! </span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">This is how Faye gets around when Dad is here!</span></div>
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<a href="http://2.bp.blogspot.com/-fXxAUCG-Qso/VB-Lh6woCrI/AAAAAAAAC5o/yX2eONlWfgc/s1600/20140919_130033.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-fXxAUCG-Qso/VB-Lh6woCrI/AAAAAAAAC5o/yX2eONlWfgc/s1600/20140919_130033.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">After another platelet transfusion she got all ready to watch the Aggie game with Dad on Saturday! I am pretty sure she was super excited about it. Her face doesn't quite show her excitement!</span></div>
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<a href="http://2.bp.blogspot.com/-VzQ0dSNb6u0/VB-LcsZf_pI/AAAAAAAAC5U/1tOlt3x9pUI/s1600/20140920_103104.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-VzQ0dSNb6u0/VB-LcsZf_pI/AAAAAAAAC5U/1tOlt3x9pUI/s1600/20140920_103104.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">This is Faye's little brother Jay. He turned one on Saturday. I loaded up the boys and we went down to visit Faye so she could see him eat his cake. This is the first time the boys and Faye have seen each other since the 8th. </span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">I think it was much needed! Jay was in haven to be back with his "Mini Mommy". That's a name Faye has taken upon herself at our house.</span></div>
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<a href="http://1.bp.blogspot.com/-bVtTpOZ2LVU/VB-QJwPCduI/AAAAAAAAC-o/QiJTVmwz7Qc/s1600/IMG_1520.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-bVtTpOZ2LVU/VB-QJwPCduI/AAAAAAAAC-o/QiJTVmwz7Qc/s1600/IMG_1520.JPG" height="320" width="240" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Dad and Faye even took a little trip down to the gift shop to pick Jay out a present.....He LOVED it, can't you tell?</span></div>
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<a href="http://3.bp.blogspot.com/-iOkMo-aQCMA/VB-QNDhl9pI/AAAAAAAAC-4/5793zP_AaRY/s1600/IMG_1523.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-iOkMo-aQCMA/VB-QNDhl9pI/AAAAAAAAC-4/5793zP_AaRY/s1600/IMG_1523.JPG" height="240" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"> Monster cake for our little Monster! </span></div>
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<a href="http://1.bp.blogspot.com/-E9z_dqiq4As/VB-gtpLVWKI/AAAAAAAADA8/ClwLRGMgShE/s1600/IMG_1512.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-E9z_dqiq4As/VB-gtpLVWKI/AAAAAAAADA8/ClwLRGMgShE/s1600/IMG_1512.JPG" height="240" width="320" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"> The day that Faye got her bone marrow biopsy, there was alot of waiting and she was getting grumpy because she couldn't eat until after the procedure. So to take her mind off eating we tried to think of a theme for Jay's birthday. We pulled up Pinterest and looked at ideas. She picked out a monster cake. I was then committed and couldn't disappoint!</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Just a bit of video from our time at the hospital!</span></div>
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<a href="http://4.bp.blogspot.com/-EIenOLeKbDE/VB-QTS5iJgI/AAAAAAAAC_s/w58ny06sOQA/s1600/IMG_1543.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #0b5394; font-family: Verdana, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-EIenOLeKbDE/VB-QTS5iJgI/AAAAAAAAC_s/w58ny06sOQA/s1600/IMG_1543.JPG" height="320" width="240" /></span></a></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Faye took cupcakes around to the nurses after Jay wanted nothing to do with Cake!</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">A few last pictures before its time to say goodbye.</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">We had so much fun hanging out with Faye! But our excitement was short lived. Before I even got back home with the boys, Nick called and said Faye's temp was trending upwards. At 8:30 it was 99.8. She felt warm, she wasn't acting like she felt well. Quickly my heart sank. Nick and I had been questioning if we should bring the boys up. Now, if she was getting sick, it's the first thing that came to my mind. But then I thought about how happy they all were to be with each other. It was very bittersweet. I got home and was getting the boys situated when he called and said it was at 100.7 It all of the sudden got real again. It's the one thing they don't want these kids to get...A FEVER! The docs and nurses were on standby with all sorts of medicine and plans of action. Then at 10:30 it went back down to 99, then at 11:30 down to 98, and she has been fine ever since. But to say it scared us would be an understatement.</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">She got a blood transfusion today (Sunday). Those always perk her up.</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">As I was typing up the blog post, Nick sent me this picture with the caption:</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">"This is the face she gives me when she wins every game we play and says 'I am the queen of this game'."</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">Hey, when you're good you're good, right!?</span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">So there you go....another week down! Tomorrow (Monday), Nick and I go to meet with the Bone Marrow Doctors. Hopefully to get some questions answered and to get a better idea of how the rest of this hospital stay is going to go.</span><br />
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<span style="color: #0b5394; font-family: Verdana, sans-serif;">As always a great big hug and thank you to everyone out there for all your love and support! We are blessed. </span></div>
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Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com7tag:blogger.com,1999:blog-1617084640685488084.post-71049300870495116482014-09-15T04:24:00.001-07:002014-09-15T06:33:54.337-07:00Week one down.......and What the heck is Chemo anyways?<div class="separator" style="clear: both; text-align: center;">
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Well we made it through the first week of this hospital stay. The first week is rough. Getting used to living in the hospital, getting started again... it is very surreal walking these halls again, it feels so much the same, but yet so very different. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Faye had her spinal tap on Tuesday morning, and after that she was feeling pretty good.... good enough to go out and pick a toy.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">On Tuesday </span><a href="http://biglovecancercare.org/" target="_blank"><span style="color: #674ea7; font-family: Verdana, sans-serif;">B.I.G Love</span></a><span style="color: #674ea7; font-family: Verdana, sans-serif;"> comes around with two carts, one with toys for the kids, and the other with snacks and hygiene supplies that might be useful to have. They also drop off a paper that you can fill out with needs or wants up to $25 dollars, and they will go to the store pick it up and bring it to you on Friday. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Everyday she takes a few minutes to decide what to eat for the next day. She already is onto hospital food.... its not good! But she is especially not fond of the scrambled eggs.... "not ordering those again"!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">With the start of chemo she also had to start doing mouthwash (supposed to be 4...we can usually get three times a day) and also do some eyedrops every six hours (even during the night) So this is a face of a girl who doesn't love doing either... at first... she now tolerates both (most of the time).</span></div>
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<a href="http://2.bp.blogspot.com/-Z81CyZbJbZs/VBYrMpAE42I/AAAAAAAAC1U/5TJ9BfEa39Q/s1600/photo%2B1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://2.bp.blogspot.com/-Z81CyZbJbZs/VBYrMpAE42I/AAAAAAAAC1U/5TJ9BfEa39Q/s1600/photo%2B1.JPG" height="320" width="320" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Also on Tuesday she had an old friend come visit. This is Hannah, she had just been diagnosed when Faye was about to go home last time. She was at clinic on Tuesday for a check up....I didn't realize that I had taken a blurry picture until I looked at it much later....</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Dad came up to visit and bring a few things.... one of which was the Wii, Mitchell being the most wonderful big brother ever, sacrificed his Wii time to help Faye pass the time.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">This is the face of a girl who just bowled a strike!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">It wasn't too much after our rousing bowling game that Faye started to feel the effects of the spinal tap. She was complaining about her neck hurting, we put a warm rag on it and I would rub it. She fell asleep for a bit, and then woke up with an incredibly massive headache. She would barely open her eyes, and was crying at the pain it was causing. We tried warm rags, I tried to rub her head, but nothing seemed to help. Finally one of the nurses suggest we give her a bit of caffeine, which could help the headache.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Needless to say it worked a bit, head still hurt, but at least it was tolerable.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Little did we know this was the start of it. At around 3 they started Cytarabine, which caused Faye to throw up and have a fever (got up to 103). So between throwing up and the fever, they had to take blood to do cultures, to make sure she didn't have some sort of infection, and started antibiotics. Tuesday night was a long night.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">This is how we spent Wednesday.... feeling crummy! Most of our time for the next little bit was spent like this. She didn't want her picture taken and didn't want to do anything but lay there... and definitely didn't want to eat anything.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Thursday morning we spent with her best friends....a water bottle and a barf bucket!</span></div>
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<a href="http://3.bp.blogspot.com/-XVgZJf2RlV4/VBYrP95WJ5I/AAAAAAAAC2s/uiqJBqRMcrQ/s1600/photo%2B4.PNG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://3.bp.blogspot.com/-XVgZJf2RlV4/VBYrP95WJ5I/AAAAAAAAC2s/uiqJBqRMcrQ/s1600/photo%2B4.PNG" height="320" width="320" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">On Thursdays volunteers bring around pizza. That seemed to perk Faye up when they poked their head in and asked if we wanted some pizza. She looked at me and said "Like the triangle kind?". She asked this because remember the hospital food.... the pizza she had ordered a few days back was this thick circle thing that looked possibly more like a pie than a pizza... I can't really describe it, but I don't blame her for questioning the type of food they bring around here! ;) She only ate one little bite of her cheese pizza she was so excited about and decided she couldn't eat anymore.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Grandpa Joe was in town for work this week.....I think people are going to stop planning trips to visit us because the odds of something going wrong are going up! We were grateful he was here, and he stopped by on Thursday evening because he was flying out on Friday morning. When he came it was the most energy I had seen her have in two days. It was nice to see her perk up for even just a bit!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Soon after Grandpa left we started feeling not so well again.... and went back to hanging out with our best friends and sleeping!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Friday morning we were greeted with a visit from Dr. Thompson. Again, a Dr. from our last time around. Our actual Dr. was out of town when Faye was really sick in one of the rounds of chemo last time, and Dr. Thompson was the one looking over Faye. </span></div>
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<a href="http://1.bp.blogspot.com/-B8IKAD4eYgQ/VBYrL9iud4I/AAAAAAAAC1w/MaKzypPqoTY/s1600/20140912_092626.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-B8IKAD4eYgQ/VBYrL9iud4I/AAAAAAAAC1w/MaKzypPqoTY/s1600/20140912_092626.jpg" height="320" width="180" /></span></a></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">One of the things Faye was known for around here was not talking to anyone. It was Dr. Thompson's mission last time to get Faye to talk to him. That was kind of their running thing, that she wouldn't talk to him. But she really did like him, when she would see him she would point him out, but only if he was far enough away to not realize she was acknowledging him. So when he came to visit, he asked Faye, "Do know how many words you have ever said to me?". She smiled and replied with, "Zero". He quickly got really excited and said, "Nope. Now you have said one word to me." She smiled. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">It also meant a lot to us that he would come check on us because not only does he not work at this hospital anymore, but his son was in a horrific car accident over this past summer, spent 16 days in a coma and is still in the hospital. We will forever be grateful to Dr. Thompson and what he has done for us.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">By Friday afternoon we were feeling good enough to paint a treasure box. Still no eating..... but no more fevers either.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I couldn't get Faye to take a picture without blocking her face..... so I told her that she looked so super cute and that her Dad would probably love to see a picture of her. Works every time... this girl loves her dad! And of course she loves these socks... a good friend of mine sent them to her!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">We have been able to Skype with the boys and a few friends.... she gets so excited about skyping, but then when she gets on she gets so shy!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Friends on her Facebook page asked everyone to send her cards.... you can get on the hospital website </span><a href="http://texaschildrens.org/Support-a-Patient/Greeting-Cards/" target="_blank"><span style="color: #674ea7; font-family: Verdana, sans-serif;">here</span></a><span style="color: #674ea7; font-family: Verdana, sans-serif;"> and type up a message and send a card to her. Then daily they deliver cards to the patients. People did not disappoint.....</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">These cards were full of words of encouragement and jokes! She loved reading all of them. She would first go through them to see who they were from, then she would read them out loud, (unless the nurse came in, then she would read them silently to herself). If there was a joke on one she would turn sideways so that I could not see the joke and she would read it to me.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">As of today she has received 53 cards!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">All of Faye's friends from primary (all the children she attends church with) made this card for her. She has it hanging right below the TV, so she can always see it, right in the front of her room!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Friday was the first of many Blood Transfusions. When they had this hooked up and going into Faye, she asked me, "Why are they taking so much blood out of me?". She has only seen (at least when she can remember) them taking samples of blood. So, of course, she assumed this was the same. I explained to her that people in the world donate and share their blood to help others who are sick, so this is in fact someone else's blood going into her to help her get better.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;"> Holden was a little boy who was in the hospital around when Faye was last time. His Dad told me he is now 4 and doing well, a few scares, but doing good nonetheless. Anyway, Holden's Dad coaches a soccer league and this weekend all the teams played in honor of Faye. I guess they ran through banners that said "Go Faye" and everything. He said he will send me the pictures. He brought some of the boys from the teams to meet Faye! These boys were so cute and nice to take a picture for us. They were all also 2nd graders. </span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Nick picked this shirt up for Faye this week.... she just happened to pick it out today. It is the perfect shirt for not only this picture..... but also for her situation!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">After they left I asked Faye, "Aren't you glad that we got a bath and did your hair before they came?" I was teasing of course. But she said, "Yes, I am glad because that would have been so embarrassing."</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">She has slowly been getting back her appetite. We started out with goldfish, moved up to milk, peaches and pears. And now on Sunday for lunch she made her own peanut butter and jelly sandwich. And ate the whole thing...minus the crust (she also cut off herself). I told her "my goodness you are getting so big to make your own lunch, what do you need me here for?". She just smiled and let me take these pictures!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">So, our first week is in the books! Not that we want to do it again, but we are feeling very fortunate with the way Faye has handled everything. Even through the throwing up and not feeling well, she just did what she needed to do. Sure she put up a few fights, asked to go home a few times.... and wanted her Dad! But, all in all, we are feeling good about things.</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">Last time when Faye was able to finally get out of her room, and was over the initial symptoms of chemo, she wanted to be out in the hall constantly riding her bike....</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">She could usually be found riding this bike as fast as she could go, with Mom or Dad following as fast as we could go with her IV pole, so her tubes wouldn't get pulled out! It was important to us to do whatever we could to make her happy....</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">I don't think that is going to happen this time. She can go out of the room now, but I can barely talk her into just taking a walk around the floor. So, although she may not want to go ride a bike around the floor, the mission is still the same: do whatever we can to make her happy!</span></div>
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<span style="color: #674ea7; font-family: Verdana, sans-serif;">We appreciate everything you all are doing to make this all possible. The messages, the help the meals, the support. We could not do this without all of you! Thank you doesn't even seem to be enough. But I hope you all know what each of you mean to us, even if we are not able to tell you all personally.</span></div>
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<span style="color: #38761d; font-family: "Trebuchet MS", sans-serif; font-size: large;">What the heck is Chemo?</span> <br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Basically Chemo for dummies.... which is how we understand it! ;)</span><br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Now for anyone who might not know....I know all of this can seem confusing... I know before we were thrown into this cancer world we were clueless as to what chemo actually was.... if I had to guess before I would have thought it was some sort of machine you went in, or were hooked up to or something... yep I really had no idea. So here you go I will try and explain what Faye's getting chemo means as well as I can, because we have had quite a few people ask what everything means.</span><br />
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<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">So first of all, Faye has a PICC line, which are tubes, like an IV, that are inserted in her arm and the tubes go up through her arm and just barely into the top of her heart. </span><br />
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<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">The PICC line is used to give the chemo medicine. Chemo medicine is just liquid drugs that are given through an IV. There was one dose that was given via spinal tap (just a one shot deal, not constantly). </span><br />
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<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">So last time, Faye had 4 rounds of Chemo. A round is a group of chemo meds delivered in a specified amount of doses over a certain time frame. Recovery time is included in the round and one round typically lasts 4-6 weeks. This chemo knocks her immune system down to nothing and then it takes a number of days for her immune system to build back up. For Example: The round that she is doing now consists of:</span><br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Day 0: AraC (via spinal tap), G-CSF</span><br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Days 1-5: AraC, Fludarabine, G-CSF</span><br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Days 6-29: Wait for white blood cells to go down and then for them to come back up again.</span><br />
<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">Day 29: Bone marrow biopsy to see how the Leukemia cells responded to chemo. Decision will be made shortly after about next steps (more cancer chemo or go to marrow transplant).</span><br />
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<span style="color: #3d85c6; font-family: "Trebuchet MS", sans-serif;">There are a host of other medicines she takes daily throughout but these are the specific chemo one. Now that we understand what chemo is we describe it as poison they use to try and kill stuff in your body with the hope your body can work normally afterwards.</span>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com8tag:blogger.com,1999:blog-1617084640685488084.post-3416368957837889302014-09-09T20:56:00.000-07:002014-09-10T08:39:17.859-07:00No News is Good NewsThere have not been many updates to Faye's blog lately because we have been having too much fun being normal (if that's possible). It is with a heavy heart that Stacey and I update this blog with news. Bad news. We found out on Friday, September 5th that Faye's cancer has returned. We are completely heart broken and scared. She is back at Texas Children's beginning chemo treatments with the goal of a second remission to prepare for a bone marrow transplant.<br />
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Below is the story leading up to today followed by the game plan moving forward. Which is exactly what we plan to continue doing.....<i>.moving forward</i>. I hope too that we can make clear that while we are devastated, confused, angry, etc., we also recognize our Heavenly Father has provided so many wonderful blessings leading up to this day. These blessings have and will continue to lift us up and keep an eternal perspective while facing this trial. We absolutely feel His divine love for us through those lending helping hands and offering kind words. His army of angels are around us and we cannot adequately express our appreciation.<br />
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Off and on for months, Faye has been having leg pains. They would last anywhere from 3 days up to 7 or 8 in 4-5 week intervals. Given her history we asked for blood tests almost every time. Each time her blood results looked great. Faye went to her first day of school and came home complaining. The next day (Tuesday) she reluctantly toughed it out and Stacey got a call at the end of the day from her teacher saying she had a rough day. That night we decided we needed to call the doctor in the morning.<br />
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The doctor's office recommended giving it a few days. Stacey called me and we decided to take matters in to our own hands because we knew something was up. We called right back and said we needed blood work done that day and if the results were good we need to be referred to an orthopedic doctor. The results looked good and an appointment was set up for Friday with the otrho. After a brief visit with him he thought everything seemed ok but xrays and MRI were options to dig deeper. We asked for both and had them done later that day.<br />
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A long Labor Day weekend passed while Faye was still in pain. Wednesday afternoon Stacey got a call from Faye's oncologist. They noticed irregularities in her bone marrow. She said we would need to come in for a bone marrow biopsy to rule out any of the bad stuff. They don't see enough MRIs of kids post AML treatments to know if the irregularities were normal for her or if it was something else. We were scheduled for Friday morning at 9am.<br />
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Friday morning we talked first with a oncology doc at the clinic building to discuss the MRI and what had been going on the past few months. When discussing everything I had a sick feeling that it was going to be cancer but brushed it off as my typical paranoia. After a lot of waiting she was finally taken back to get the IV, anesthesia, and two bone marrow aspirations (one in each hip). We were told to head to the food court after she awoke, get lunch, and then have them page her oncology doc. Faye did impressive work with her giant slice of cheese pizza and strawberry fanta after not being able to eat until the procedure was complete.<br />
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We waited for the doc in the oncology clinic watching Despicable Me 2. I was having such a good time with her at lunch and watching the movie that I had somewhat forgotten that sick feeling from earlier. We saw her doc approaching and knew from the look on her face. She put her hand on my shoulder and quietly said "It's not good." As I began to cry she then said "It's back". There was a long silence (aside from my crying) and Faye finally asked "Why is daddy crying?" I pulled it together momentarily so we could get her situated with a movie so we could talk at the table across the room.<br />
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Stacey had tears in her eyes but was the one keeping it together, as usual. Her doc and another with her told us how shocked they were Faye's AML was back. This far out with good blood counts is very unusual and rare. They told us they had many things in process and we could go home for the weekend and get started Monday. We did our best to pull it together and go talk to Faye. We sat by her and began to tell her that her cancer was back. She immediately began to cry. She looked up at us and said "I don't want to do it again." We calmed her down and she was relieved to find out she could come home for a couple days first.<br />
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Stacey drove us home and we called family telling them the news and crying a lot. After a few calls I decided to stop and talk with Faye. We both cheered up a bit and she said "Daddy, I wish they didn't make cancer." I think we all agree.<br />
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We had a great weekend together hanging out, watching movies, playing games, and just trying to forget. Some great friends helped Stacey find a photographer who was generous enough to help us get some family pictures on Saturday morning. Our ward (local church congregation) rallied to figure out how they could help and fill any immediate needs while we were able to sit back and just be together. The only hiccup was the little boys got sick and I had to be on sick patrol while trying to keep everyone at a distance from Stacey and Faye.<br />
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Monday was a long day at the hospital. Picc line was placed in her left arm. Consultations with doctors. Echo cardiogram. More consultations with doctors. Lot of papers to sign and disclaimers to review. Around 5:30 or so we were finally done and just hanging out waiting for them to have a room ready over at the hospital on the oncology floor. We sat in the clinic trying to come up with anything that would make her happy. She was ready to lay down and zone out. We found rows of pictures, quilts, and photographs and made a game out of guessing which was was each person's favorite. She finally got to her room around 7.<br />
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Tuesday was the first dose of chemo via a spinal tap and the other preventative medicines. Wednesday will begin the other chemo which will continue through the weekend. On day 29 they will do another bone marrow biopsy to see if it is responding to the chemo. Best case scenario is they can't see any of the AML and then we can wait for her counts to recover and head to bone marrow transplant. AML is a higher risk Leukemia with not as many good treatment options. So her immune system will be knocked down to nothing for long stretches of time requiring her to remain hospitalized. <br />
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We hate that Faye has to do this and that her brothers have to deal with the wake it leaves behind at home. However, we are so incredibly grateful for each of you that are concerned for her and offer kind words, support, and prayer. We are so sorry to have to be here but so grateful we have you to lift us up and join us in calling on our Heavenly Father for His help.<br />
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In recovery room after bone marrow biopsy.</div>
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Some of the fun papers we get to read.</div>
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Faye getting dolled up by her mommy before pictures. Some 'cheer her up' stuff from dad close by. </div>
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Some one gave her a 'heart attack'</div>
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Ready to do this!</div>
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Making a bracelet.</div>
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Someone came by the room passing out press on nails. </div>
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Waking up from the spinal tap. Not happy.</div>
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She thought it was great her nurse had the same name as mom. Even better that she wanted to have a nail painting party. </div>
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Purple with pink polka dots. </div>
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An old friend. Nurse Katie used to work here but is now at another hospital. She was nice enough to stop by and see Faye to make sure she was being taken care of. </div>
Nickhttp://www.blogger.com/profile/07116055017389063180noreply@blogger.com6tag:blogger.com,1999:blog-1617084640685488084.post-27038620512838556762013-04-11T21:42:00.004-07:002013-04-11T21:42:45.791-07:002 YEARS!<div style="text-align: center;">
<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Okay so this is a celebration post....and a get you updated post! As you have probably come to know.....that's just the kind of poster I am...combine everything!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">So one Monday we had a check-up! Everything looked great Dr. Margolin said, which was a huge relief for Nick and I. We had been very nervous about this check-up. Her last check-up was in January and she looked so great the Dr. decided that she didn't need to see Faye every two months as planned, and that we could move it to every three months! Great news right! Well it was until right before this last checkup she got sick. She had gotten a really bad cough, and even sometimes would complain of her legs hurting. It really hit me when I got a call from the school nurse saying Faye had a fever and was complaining of leg pain! To be honest I was scared. She would ask me for medicine to help her legs. Now anyone who has followed Faye from the beginning knows that when she was diagnosed we took her into the Dr. because she had a cough she couldn't get rid of, and her legs were hurting so bad she couldn't walk. Of course this time she never stopped walking...but with it being the same week as Nixon's Birthday, our minds couldn't help but flashback to just two short years ago! So you can imagine Nick's and my relief when the blood tests came back saying everything was fine!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">She even didnt cry with the finger poke! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">"Don't take my picture dad!" </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> This time she even seemed a bit interested. Telling the nurse "Thats alot of blood." </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Now here is where we start where we left off......... </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Packing to move..... everything and anything was free game! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> First time riding the bus! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> We were able to go see a Dynamo game with "Bald is Beautiful!"</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">I think it was a little warm...what do you think? </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> Faye is trying to keep "COOL" </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> Or "COOLER" </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> On September 9th we celebrated one year being home from the hospital! I remember thinking how fast time had gone by......and now we are at 2 years since everything started!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Through the hospital faye was able to participate in a fashion show! I obviously didnt get good pictures! Because she was so excited about it! THey had make-up people there to do their make-up! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">And hairdressers to fix up their hair! This picture she looks really mad! I think she just didn't want me to take her picture. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh4.googleusercontent.com/proxy/6JisKSFY3Qjte_sylbsD_oMRfIx4ama0Mxilnpmcb2503r8G7gPTgjuLszSzC4vTH2vSy6pLunJQ7FIHc92JPSBpYYjD0XmpvCIIYFtUFbxsSkWEOaoC98AiNQCBrteZFsZHqOKZx7e00OLxVi0DHTJ70Nxa-ms" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh4.googleusercontent.com/proxy/6JisKSFY3Qjte_sylbsD_oMRfIx4ama0Mxilnpmcb2503r8G7gPTgjuLszSzC4vTH2vSy6pLunJQ7FIHc92JPSBpYYjD0XmpvCIIYFtUFbxsSkWEOaoC98AiNQCBrteZFsZHqOKZx7e00OLxVi0DHTJ70Nxa-ms" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">The finished product! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">All the kids were paired up with a couple, or someone who has given a lot to the program. Faye was paired up with this sweet old lady and her daughters. They were seriously so nice. She even gave Faye this little pink purse to go with her dress. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Faye and her frined Laurel...Laurel was also paired up with them. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">We went down to Pearland to participate in a 5 K to support B.I.G Love, they were the group that would come to our room every Thursday with carts full of stuff...fun stuff, and useful stuff! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">She hasn't lost her stylish touch. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Through Make A Wish, Faye and Nick were able to go see and meet the Blue Angels. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/DbNs_CXNjaMceKIVVj9w5Ifz-fpOYSucOQKMnsIdymoBULqKGoCNPyARrI9cQc4qZ-KhgdbvWOu2bfvgEQ76dojIxBxI_FF8xeLLgeBFmYyM4mcrSHukmdZcX8yXt7bUL-zchiHvXPi87OvPSISqdppIbzF0pOc" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh3.googleusercontent.com/proxy/DbNs_CXNjaMceKIVVj9w5Ifz-fpOYSucOQKMnsIdymoBULqKGoCNPyARrI9cQc4qZ-KhgdbvWOu2bfvgEQ76dojIxBxI_FF8xeLLgeBFmYyM4mcrSHukmdZcX8yXt7bUL-zchiHvXPi87OvPSISqdppIbzF0pOc" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Halloween! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/P5CFST5v72_bpHbUF7gBaN5SwJLdsq-6FWdjXCiTNRsMRUkzlEjZ3xCoPV7EkPlwJH1QwU0OK1rnsD8-ORGvvn5pUHsQYvIRwe8RFVgS2D-lDGm4-3t0YfI9FKbQAR9O2nxnztbQLq8UYnDxEaJWbuOWKdDmmwE" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh3.googleusercontent.com/proxy/P5CFST5v72_bpHbUF7gBaN5SwJLdsq-6FWdjXCiTNRsMRUkzlEjZ3xCoPV7EkPlwJH1QwU0OK1rnsD8-ORGvvn5pUHsQYvIRwe8RFVgS2D-lDGm4-3t0YfI9FKbQAR9O2nxnztbQLq8UYnDxEaJWbuOWKdDmmwE" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Sleeping Beauty, Woody, Harry Potter </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Everyone thought Faye was Cinderella because of the Blue dress.....but if you know Sleeping Beauty she does have both! Pink and Blue...Faye opted for Blue! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">First Pony Tail........with the help of A LOT of bobby pins! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">School Christmas Party. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/01WPXsiNEFl9Qiu1TDNV59_2kjQ-bWYvPp93zCwG0b6bAsARSXN2ETD55DEloyZtt4iKNay2gxId6_1MXrjZSI2omVgSy44mVQumBNviMvB5W5tqcU-RHFgKwXrek3iY4iF_FS4vC_VKu2PEyaWxLIjp7UcGNQs" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh3.googleusercontent.com/proxy/01WPXsiNEFl9Qiu1TDNV59_2kjQ-bWYvPp93zCwG0b6bAsARSXN2ETD55DEloyZtt4iKNay2gxId6_1MXrjZSI2omVgSy44mVQumBNviMvB5W5tqcU-RHFgKwXrek3iY4iF_FS4vC_VKu2PEyaWxLIjp7UcGNQs" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Christmas morning, Santa brought Faye a wiggle car, just like she had in the hospital! Nixon was just as excited about it obviously! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Christmas PJ's...Look at the attitude they all have in this picture! Mitchell is just Mitchell, Faye is posing...and Nixon is just plain mad! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh6.googleusercontent.com/proxy/e3zf3UMVsIyg86xqpKwlCWRy6mlflvy6Z3jJhIm-U_xLuMOp1603-2ijKXuzpo3oVAn-FvDAjTPfbESWSNxVto_cbEDBA6Cu5Zv9qZcsEP-YyAOdZgjzR8fAST7iwm7dhOT2g-gBmpVG-aS4bVrhhalEyt-m-I4" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh6.googleusercontent.com/proxy/e3zf3UMVsIyg86xqpKwlCWRy6mlflvy6Z3jJhIm-U_xLuMOp1603-2ijKXuzpo3oVAn-FvDAjTPfbESWSNxVto_cbEDBA6Cu5Zv9qZcsEP-YyAOdZgjzR8fAST7iwm7dhOT2g-gBmpVG-aS4bVrhhalEyt-m-I4" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">The 100th day of school! They needed to wear a shirt that had 100 of something on it. We found this trim at Hobby Lobby with Buttons on it! Faye counted out 100 and I sewed it on! She loved that the Buttons would clang when she walked! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh5.googleusercontent.com/proxy/poTB83eIuz9t3R8OPoWxU-XwNEdNLlwGaHg3eO5NPVd_VsZQDSSqufgpw0m5KaNpHGok6accGvudZR6XK8E150u3eHfhIvrksQ6DEdQcaChZLrkRC-SjAnDE-o9HD0YJW8KcHNFYqAZ_4JRU_ykx0dNDoA-KsD8" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh5.googleusercontent.com/proxy/poTB83eIuz9t3R8OPoWxU-XwNEdNLlwGaHg3eO5NPVd_VsZQDSSqufgpw0m5KaNpHGok6accGvudZR6XK8E150u3eHfhIvrksQ6DEdQcaChZLrkRC-SjAnDE-o9HD0YJW8KcHNFYqAZ_4JRU_ykx0dNDoA-KsD8" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Picture Day! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/iksw8ZQkf-M0LA75NvcPELQoqqjcDRbJWL8LoQBjtpB0vFvsTqbjGGuzevb_dQuzqseRglDxTN1Qfpx83OFOubzuBPl3XkKjahUhT2NP7Uy3T6fN7guH0fChEcgLhO6Xz--zAxArul46ZU0ga5RoE8sR268ihOg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh3.googleusercontent.com/proxy/iksw8ZQkf-M0LA75NvcPELQoqqjcDRbJWL8LoQBjtpB0vFvsTqbjGGuzevb_dQuzqseRglDxTN1Qfpx83OFOubzuBPl3XkKjahUhT2NP7Uy3T6fN7guH0fChEcgLhO6Xz--zAxArul46ZU0ga5RoE8sR268ihOg" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">She still loves to make cupcakes......I realized she looks just the same as she did at picture day, but this is not the same day! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/bGDED3O0GyFnq_xOsv99VaQjnoa0FSjWHKY7MiLyjpj5OFcfACG7CYVzqVOXMdJvP-WIiLTTrunP7FY_9Yrci-K_DBfOxGhnucSG_AdIcHaSWpejB4JfQaj0zginHgDOijwONS9l-Ef7jlkRp9P6gvJ2DI-VSPI" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh3.googleusercontent.com/proxy/bGDED3O0GyFnq_xOsv99VaQjnoa0FSjWHKY7MiLyjpj5OFcfACG7CYVzqVOXMdJvP-WIiLTTrunP7FY_9Yrci-K_DBfOxGhnucSG_AdIcHaSWpejB4JfQaj0zginHgDOijwONS9l-Ef7jlkRp9P6gvJ2DI-VSPI" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Just had to post this...we had to go to the store...and this is how Faye got ready! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh6.googleusercontent.com/proxy/8wN0-4lvrOBEJgU_tKwOTgfcRhT0HvtsWKJe4TpHAnsAZz7Z8en1ZAzBA3FDsu8Hj21-yC7-SHi4MBns1rk5P_dmBAP5NHyLi9aGJDI9LhqeFZ9Jlt2aU_IV_WlHwdeJXimYD7TKT-KPAZe2qu8GBDN068rRCDc" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh6.googleusercontent.com/proxy/8wN0-4lvrOBEJgU_tKwOTgfcRhT0HvtsWKJe4TpHAnsAZz7Z8en1ZAzBA3FDsu8Hj21-yC7-SHi4MBns1rk5P_dmBAP5NHyLi9aGJDI9LhqeFZ9Jlt2aU_IV_WlHwdeJXimYD7TKT-KPAZe2qu8GBDN068rRCDc" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">I love this close up...see how she wrapped the necklace around her scarf! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/2TPPxnhGBvDiyj6yTRdllnEDo_wYuZjfNNe7gGVOkb6iJHwT8a7PlDsmKQOlxxKLm9k-SDJ6tJ80shyvsiiKwIRTYBMq1noBlc8llP-sDbeneqoBcC2OkNoro_9vv8Y8jIuQTAcH7Roc0QIhCV8IHDEAQ3qaCvs" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh3.googleusercontent.com/proxy/2TPPxnhGBvDiyj6yTRdllnEDo_wYuZjfNNe7gGVOkb6iJHwT8a7PlDsmKQOlxxKLm9k-SDJ6tJ80shyvsiiKwIRTYBMq1noBlc8llP-sDbeneqoBcC2OkNoro_9vv8Y8jIuQTAcH7Roc0QIhCV8IHDEAQ3qaCvs" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> Now lets talk about Mitchell for a second! As I was looking back, I cannot believe I didn't post about this....well I can! But this is something that cannot go unnoticed!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Last summer Mitchell came to Nick and I one day and said he wanted to do a Lemonade stand! At first I was very hesitant. I didn't want the neighbors to feel like they had to stop by! But against everything in me we let Mitchell do his Lemonade stand! I made some chocolate chip cookies, and he helped make the Lemonade. Nick made him write up a business plan to figure out how he was going to pay for all of his supplies, and what he was going to charge...and when he was going to do the Lemonade stand! So he looked up a recipe for Lemonade..... took the $7 he had in his piggy bank and we went to the store to buy the 12 Lemons he needed, cups and napkins. We figured ingredients for one batch of cookies was $4.00.</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">After the first day he decided homemade Lemonade was too much work, so he opted for the powdered stuff! It was much easier! He had decided he was going to work Mon-Thurs start at 5:00 (Right when Dads were getting off work) and go til he ran out!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">He did really well the first day.....which to be honest I thought it was going to be just a one day thing. So he went out again the next day. After the first couple days he made close to $100. So Nick and I asked him what he wanted to do with the money...his reply "I think I am going to give it to Texas Children's Hospital"</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"> (he decided 10% to tithing first, 15% for him...and everything else to
the hospital...unless someone came and gave him a $20 or larger...that
went straight to the hospital) </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">So again the next week he went out and sold Lemonade and Cookies! A neighbor saw him sitting out is the heat, and offered to let Mitchell borrow his tent. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh3.googleusercontent.com/proxy/VjVJ6kI1mgkPIz7cRSXWajjab-qq1bC5zn2FoGSVmjg2M0zuuDk26yPXYqmHiwWu7LT9_OBRc0PhVpxmYVri0VaBTDHAQpIsq9-gzD2uc6gC1z1yYoSGom5fRW9z1my9jcH__TSkFLd5XG6Pbx8TP779evnVbJ4" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh3.googleusercontent.com/proxy/VjVJ6kI1mgkPIz7cRSXWajjab-qq1bC5zn2FoGSVmjg2M0zuuDk26yPXYqmHiwWu7LT9_OBRc0PhVpxmYVri0VaBTDHAQpIsq9-gzD2uc6gC1z1yYoSGom5fRW9z1my9jcH__TSkFLd5XG6Pbx8TP779evnVbJ4" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Word spread that he was giving some of the money to Texas Childrens.....so someone called the news.</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh6.googleusercontent.com/proxy/6YVr-a7Qh7epVMJ-nJfWfz9rGtQQ9v_tH50RncJy6pcnWtpS49E01vzEv-B_TRBg0a_kKMSKVRcqXFQF9TRb6z-RFgS4FOuPb4gKOeTRHKRugW4QVf-L86GVyeb7RPYvvdSVdS43O3n8eUt0VdXs6dyH0TDcAJY" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh6.googleusercontent.com/proxy/6YVr-a7Qh7epVMJ-nJfWfz9rGtQQ9v_tH50RncJy6pcnWtpS49E01vzEv-B_TRBg0a_kKMSKVRcqXFQF9TRb6z-RFgS4FOuPb4gKOeTRHKRugW4QVf-L86GVyeb7RPYvvdSVdS43O3n8eUt0VdXs6dyH0TDcAJY" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">As if through everything with Faye we hadn't already seen the generosity of people....but Holy Cow what a humbling experience. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh6.googleusercontent.com/proxy/g2fwGe6pxPT-TCDjgysMGZ8dglWn0TxoGeAy5BxYxUCgfLzIyQHXlrnFHX2iZSmwzq2Dl4x6xFQggzjzIBZrdbcFveuDs17PP8_7B9zWQrKN2mr6Zi5KM4yPaYc0QKvRFeYAPk5pPZ0iAclbgoVjmPOY8_Gh1PM" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://lh6.googleusercontent.com/proxy/g2fwGe6pxPT-TCDjgysMGZ8dglWn0TxoGeAy5BxYxUCgfLzIyQHXlrnFHX2iZSmwzq2Dl4x6xFQggzjzIBZrdbcFveuDs17PP8_7B9zWQrKN2mr6Zi5KM4yPaYc0QKvRFeYAPk5pPZ0iAclbgoVjmPOY8_Gh1PM" width="320" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">A few particular stories that stood out:</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">~A lady had come every day for the first few days, and then one day she brought Nick and I a card. In the card there was a letter that said basically...."It took her by surprise when she asked Mitchell what he was going to do with his Lemonade money and she thought he would say go buy a game, and a bike...but when he said "I am giving it to Texas Children's Hospital, because my sister was there, and I want to help the other kids" This lady proceeded to write that her daughter was at Texas Children's when she was 18 months old....and is now 22 and is about to have her first baby in a few weeks. </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">~Another Lady stopped by who her husband had just passed away in February from complications with AML (what Faye had) She gave a check for $500</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">~Another man saw Mitchell on the news, he didnt know exactally where we lived, but he came looking for Mitchell, he asked our neighbors and found out where we lived, we werent home, but he left a note on out door asking us to call him. I called him, and he said he wanted to do something nice for Mitchell. So he gave a check for $750 to go straight to the hospital, then he wrote Mitchell a check for $250, he told Mitchell to take that money and go do something fun and also take his sister to the movies!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Nixon was in heaven with this Lemonade stand...fresh Chocolate Chip cookies everyday! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">For his last week he decided to have a "BIG EVENT" so he needed to make signs advertising! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">When it was all said and done he made about $2000 for the hospital. We took the money to the hospital, and they were so impressed, they grabbed Dr. Poplack who is the head of the cancer center! Dr. Poplack told Mitchell that if he ever needed anything or decided to go into the medical field, to give him a call!</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">So there you have it you are updated! Everything is great, we are doing wonderful! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Just a few more pictures....</span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">Easter! </span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;"><a href="https://lh6.googleusercontent.com/proxy/-HArt1BNBN47X8NAiUmcIFkBBYKkvcUuCuc-5LIJy5xvn37_GG6ob16ChxKeCXXPUvHMl0Tpx8MAYns1KCCf0gjz13cxDYGh8CjC3VqODnLZpQkdjCYHF1RnAvFR_llniiYA8M5ESrBChiEqppy6hqLstxvQ4IU" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://lh6.googleusercontent.com/proxy/-HArt1BNBN47X8NAiUmcIFkBBYKkvcUuCuc-5LIJy5xvn37_GG6ob16ChxKeCXXPUvHMl0Tpx8MAYns1KCCf0gjz13cxDYGh8CjC3VqODnLZpQkdjCYHF1RnAvFR_llniiYA8M5ESrBChiEqppy6hqLstxvQ4IU" width="240" /> </a></span></span></div>
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<span style="font-family: "Trebuchet MS",sans-serif;"><span style="color: blue;">I cannot tell you how incredibly blessed I feel! I am truly grateful for the strength of this little girl, and the love from all of you! </span></span></div>
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"http://images-onepick-opensocial.googleusercontent.com/gadgets/proxy?container=onepick&gadget=a&rewriteMime=image%2F*&url=http%3A%2F%2Fi277.photobucket.com%2Falbums%2Fkk65%2Fmeldrumstacey%2FBlog%2F2%2520Year%2520Faye%2FIMG_8676_zps81b0b96b.jpg" with "https://lh6.googleusercontent.com/proxy/7f723miJZylKAL1IgIB4-Tu5BQwApJ5OjXVTwnaQBE3o5OFzq7eOOsE7w-ISZ9MKeF-Nh-kK1K9WOcKb74YuvXxaKXN9B1v1OdaDJGd5DoEBhsGEjP_0pH0t_b1sDBtkHUiD2_maRFPghV-c9Fv2eZJXP0MUGkQ" -->Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com13tag:blogger.com,1999:blog-1617084640685488084.post-47607102545363775672012-09-02T18:18:00.003-07:002012-09-02T18:21:16.990-07:00Finally FIVE and getting used to this stuff!<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;"><span style="background-color: white;"><a href="http://1.bp.blogspot.com/-fPJbtoK_kw0/T_2STK-v-fI/AAAAAAAACmo/XHvMak4Ju2Y/s1600/IMG_8261.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><br /></a></span></span></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;"><span style="background-color: white;">This post Should have been posted 2 months ago....wrote it...just never posted it! </span></span></span></div>
<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;"><a href="http://www.blogger.com/blogger.g?blogID=1617084640685488084" imageanchor="1" style="margin-left: 1em; margin-right: 1em;">Last months doctors visit was a good one! Faye didnt even cry at all! She is getting to be one tough cookie! It probably didnt hurt that dad was there....and he is the master of distraction!</a></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;"><a href="http://www.blogger.com/blogger.g?blogID=1617084640685488084" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://1.bp.blogspot.com/-fPJbtoK_kw0/T_2STK-v-fI/AAAAAAAACmo/XHvMak4Ju2Y/s320/IMG_8261.JPG" width="240" /></a></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;"><a href="http://www.blogger.com/goog_525934161"><span style="background-color: white;"><br /></span></a><a href="http://www.blogger.com/goog_525934161"><span style="background-color: white;"></span></a>You have got to be kidding me....look at all that hair! </span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">Remember her birthday last year?</span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">Doesnt even look like her! Just a few days before this her eyes were basically swollen shut! This is on the uphill!</span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">This year couldnt have been more different! Faye wanted to go swimming! </span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">Then we came home opened some presents!</span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">And ate some ice cream cake! Fayes request!</span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: magenta;">This girl is amazing! She is doing so well! We feel very grateful. Last year on her birthday we were willing to do whatever for her, because we didnt know how the next year was going to go! I remember really having those thoughts, what if she doesnt make it to her next birthday? But the reality of it, is that some kids wont make it to their 5th birthday! We couldnt feel more blessed, and grateful for this beautiful girl! </span></span></div>
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Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com6tag:blogger.com,1999:blog-1617084640685488084.post-11402100493923307722012-08-28T19:42:00.001-07:002012-08-28T19:42:43.512-07:00Long Overdue!<div style="color: #351c75; font-family: "Trebuchet MS",sans-serif;">
I have many other things to post about, but I always get behind, and then don't post anything! This blog I feel more weight on my shoulders to say something amazing! So I did write a post about Fayes birthday, but I did not feel it was amazing enough to post! Silly I know! Sometime this week I will just click that little publish button and call it a day! I don't know why I get such anxiety about it!</div>
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I guess no news is good news right! We are happy to report Faye is doing amazing! In about a week it will be one year from when she got to come home! HOLY COW right! We could not be happier with the way everything is working out, and how well she is doing! </div>
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She started Kindergarten yesterday! It is such a bittersweet moment! We are so excited for her to be in Kindergarten! Especially since a year and a half ago we didn't have a clue as to where our lives would be at this point! So sending her off to school was super exciting! It is always sad to send your kids off to school, it means they are getting too big, but at the same time.....it is exciting to see this little girl grow up and pass all those darn cancer milestones she will be passing!</div>
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She wanted her hair in pigtails for the first day of school! At first I was bummed, because I wanted to be able to do her hair in some cute way for the first day of school! But then I realized having her hair long enough to put into cute little pigtails is perfect for her!</div>
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Her sweet teacher Mrs. Cook! She seems so nice, and we are excited for Faye to have her. </div>
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Sitting at this desk she seems way to grown up! She was right ready to go....sat right down in her seat and was ready to begin!</div>
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Day two! Just had to snap a quick shot, cuz she looked so darn adorable! Do you love her pose as much as I do? Look at all that hair! I still cannot believe how fast it is growing in! </div>
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<span style="color: #351c75; font-family: "Trebuchet MS",sans-serif;">So heres to going to school! I will get you updated with everything else Faye has been doing! Especially now her and Mitchell are in school! No excuses anymore right!</span>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com7tag:blogger.com,1999:blog-1617084640685488084.post-5310341314356410402012-05-08T06:19:00.000-07:002012-05-08T12:16:14.019-07:00With a Heavy Heart.....<div style="color: #3d85c6; font-family: Arial,Helvetica,sans-serif;">
This Sweet Boy........</div>
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Loves some of those Grandmas Double Chocolate Chip Cookies!</div>
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Aidan McSpadden forever changed my mind, my heart and my faith. I first met his mother, Kelli McSpadden the first week Faye was diagnosed, I was sitting in the room with Faye, (in that first week you feel like you are spinning, you know you have to fight through all of this unknown, and you tell yourself you are going to be strong, you are going to fight with every fiber of your being!) But until you meet another Mom who was in your position at one point, you are unsure if it is possible! Some of the nurses on the 9th floor sent Kelli to talk to me, she had stopped by to visit, at that time Aidan was done with treatments. Aidan was also diagnosed with AML, he had finished his 5 rounds of treatments and was at home at the time. When Aidan was diagnosed his mom was pregnant with their second son. So while Aidan was in the hospital being treated for cancer, Kelli and Jared went and delivered another baby. I cannot even begin to comprehend the amount of strain that had to put on them, their minds, and bodies being pulled in so many directions. I was grateful to talk to Kelli because I felt like I could relate to her, seeing her and talking to her realizing that it could be done and I could come out of this a stronger person because of it. Because I saw Kelli at that time and she was strong, she was in no way misleading, I could tell from her it was going to be a trial, but I felt it was something we could do! Little did I know how much strength I would gain from the McSpadden family. </div>
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At the End of July 2011 Faye and I were wandering the halls, when I saw a door decorated for Aidan. I saw his mom in the room, I didn't go talk to her I didn't know if she even remembered me. And I didn't know what to say. Aidan had relapsed, a mothers worst nightmare! So yet again they were back on the 9th floor. The new plan was to get Aidan in remission, find a bone marrow match, and take him to transplant. </div>
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While on the 9th floor, Aidan introduced us to the Butterfly Garden! Faye and Aidan had the greatest time here in the Butterfly Garden! </div>
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not working, I talked to Kelli after this happened, and she said "If I </div>
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hear the words reevaluate again I am going to scream" </div>
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This is the day we were going home for good! We had finished our treatments. Coincidentally this day was also the same day Aidan was headed down to get a bone marrow biopsy to see if the chemo was working. I remember very vividly these moments. I remember saying our goodbys, and I remember closing the door and crying into Nicks arms hoping and praying that Aidan and his family were going to receive some good news that afternoon. </div>
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Best Friends! these two thoroughly enjoyed each other. They would go on walks through the halls with each other, they would play "Guess Who I Am" and of course my most favorite Aidan memory ever was hearing his little voice yell "Miss Faye" down the hall, when he would come wandering to our room looking for her! </div>
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I could just squeeze this little boy, he took a piece of my heart from the first moment I met him. </div>
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At that time the McSpaddens received the news the chemo was working, and they would prepare to go to transplant. Aidan made it through transplant, and also was able to be home, but in March of this year he again relapsed. His new marrow was strong enough to get rid of the cancer, but also it was strong enough to fight off everything else. </div>
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A few weeks ago we were able to go visit Aidan and his mom and the 9th floor. His mom said he was sleeping for most of the day, and couldnt keep anything in on either end. I made him some t-shirts that snapped on both shoulders, so it would be easier to be hooked up to the IV tower. Poor Aidan you could tell he was not himself, it was nice to talk to his Mom, she again seemed so strong. </div>
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Here he is wearing one of the shirts we took him. He didn't say much when we were there, but Kelli texted me this picture not soon after we left telling us that he just had to put that shirt on right as he saw it. </div>
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But on May 4th I received a text, and a post went up on Aidans facebook page "Aidan is now eternally cancer free. Today at 3 pm he took his last </div>
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breath here on earth. His breathing issues worsened over night and his <br />
organs began to shut down. He is in heaven tonight looking down on us <br />
and smiling because he will no longer have to suffer. We love you to the<br />
moon and back little angel. Rest in peace." ~ Kelli McSpadden</div>
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Sharing this news with Faye I was reminded of the innocence of children. I told her Aidan had passed away, her reply was "Oh so he is not in the hospital anymore!" I told her he was not going to be with his Mom and Dad anymore, that he went up to heaven to live with Jesus. I also explained to her that one day though his family would get to be together again one day. It didn't quite click with her! But it was something that needed explained to her! </div>
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This afternoon Faye and I will attend his funeral, also when I told Faye we were going to see Aidans Mommy and Daddy tomorrow, Fayes response was "Are we going to go to the Butterfly Garden?"</div>
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So dear sweet Aidan you have stolen our hearts, may we forever remember you, keep you in our hearts and spread the joy you so freely shared with us! And make sure you eat all the Double Chocolate Chip Cookies your heart desires, and play in all the Butterfly Gardens for as long as you want!</div>
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And to those of you reading this we ask that you keep the McSpadden family in your prayers and thoughts. Because I cannot even begin to comprehend the amount of strength this new chapter in their lives will need!</div>
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Here is a link to his obituary: <a href="http://obits.dignitymemorial.com/dignity-memorial/obituary.aspx?n=Aidan-McSpadden&lc=7469&pid=157500561&mid=5095162&locale=en-US">Aidan</a></div>
<br />Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com6tag:blogger.com,1999:blog-1617084640685488084.post-91575329779892737962012-04-08T20:53:00.003-07:002012-04-09T04:29:23.309-07:00One Year Ago Today.....<div style="color: purple;">
<span style="font-family: "Courier New",Courier,monospace;">I have been writing this post so many times in my head! I have changed what I wanted to say, tried to figure out what I wanted to share, and what I wanted to leave out! And finally when it came down to it, it is something I feel needs to be shared! I don't know if this is for Faye later on in life, or there is someone out there that needs to hear this! Hopefully it all makes sense and serves a purpose, if not for anything else, but to finally get this all off my chest!</span></div>
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Last year when everything was going on I felt a whirlwind of emotions, so much going on, and Nick and I were trying to figure out how we were going to do this! We had a brand new baby, and a little girl that we were convinced something more serious was wrong, although we kept getting the advice that she was fine and that it was just growing pains. So here you go, as long as this may be, I need to share with you my side of the story.......<span style="color: blue;">Random Nick comments and additions in blue. </span></div>
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Leading up to everything:</div>
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In December we were lucky enough to go back to Utah to visit Family! Three days before Christmas Faye started complaining about her knees hurting. At a Christmas party she had got hurt while playing with cousins and said she hurt her legs. We just thought it was something to do with that. Over the next few days she would not walk at all, constantly wanted her legs rubbed, and since it was two days before Christmas we decided to take her into the ER (which is where our insurance being out of state told us to take her). In the ER they ran x-rays and found that nothing was broken or anything. The doctor told us it was probably a virus and sometimes when you get a virus it can concentrate at the joint. He sent us home told us to give her some Advil, and if it didn't go away in a day or two to come back. Well luckily enough she was able to walk again after the Advil, but something just was not the same. She wouldn't run anymore, and a task as easy as climbing onto her bed seemed like a chore for her, she just did not have the same amount of power in her legs. Christmas came and went everything was fine. When we got back to Texas she kept getting sick. At the same time Nick had just gotten offered a job in College Station (where we already were) and our options were: continue doing more schooling, or graduate and accept this job (although not in his field). We prayed about it, and decided taking this job was the right thing to do for our family! With a new job came new insurance. The insurance was not going to kick in until April first for Mitchell and Faye! So although Faye was getting a little sick it just seemed more like cold symptoms and we weren't too worried about it! But as time went on she would complain more and more about her legs. We were trying to wait it out until insurance kicked in. (While in hindsight thinking about it now, I don't know why we didn't take her to the doctor sooner, but looking back now I think everything happened how it needed to). Finally at one point she got this cough, and she wasn't able to cough because her legs hurt so bad. She would just look like she was in so much pain, and we felt so bad for her! We would spend night after night in her room, rubbing her knees all night long, and during the day constantly, it was the only way she seemed comforted! I remember one night specifically rubbing her knees and singing to her every primary song I could think of, and church hymn I could remember! If I would start to sing one I already sung, she would remind me we had already done that one, and I would have to rack my brain for a new one! She would want carried everywhere we went! Being 8 months pregnant I was not so excited to carry this little 3...almost 4 year old around! I would joke about it, and tell people "I guess I deserve this, I didn't walk til I was 18 months old! I took my first steps when my mom was in the hospital having my younger sister, so my mom had to lug me around her whole pregnancy! And I was quite the little chunk when I was a baby!" We would ask friends and family and they told us stories of other kids that had bad growing pains and that it would eventually pass. I remember sometimes getting so irritated at Faye and not understanding why she wouldn't walk! Finally one night she was so sick, she was burning up, she was sleeping next to me and Nick in our bed and I woke up to her talking some gibberish and pointing at the sky (I don't think I have ever been more scared in my life up to that point. Me and my eight month pregnant self grabbed Faye, and hurried and got her in a cold shower. She was screaming the whole time trying to get away from me but we just sat in the bottom of that shower. I held her, would not let her go, and I cried! It was that night, I knew something was terribly wrong. Nick and I looked at each other, and knew insurance or not we needed to get her to the doctor! So the next day first thing in the morning we called the doctor, and took Faye in! Nick and I that morning wracked our brains and wrote down all the information we knew up to that point, hoping we could help the doctor figure out what was wrong with our sweet girl! Here is our list of everything we could think of:</div>
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Nick and I laugh now about some of our thoughts...If only it was she needed better shoes, or that she might need to wear some braces to straighten out her legs! </div>
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We took her to the pediatrician, he told us "here is an antibiotic, lets get rid of that cough, and then we will see what we can figure out about her legs." And he sent us on our way! Once we had gotten rid of the cough...that weekend was Opening Ceremonies (for Mitchells T-Ball, they do it up big here in Texas). After the ceremonies Nick went to find Mitchell, and Faye and I were slowly making our way to the car through the crowd! I overheard two ladies talking. One was talking about her son and said that he had just went to the doctor for some reason or the other and the doctor thought he might have leukemia because of the bruises up and down his legs! I have to be honest my heart stopped for a second...Faye had bruises up and down her legs, but hadn't been running or jumping, or playing like normal little kids to be able to get those bruises! I kept that little piece of information to myself. I thought for sure there was no way, and tucked that information into the back of my mind! </div>
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Here she is at opening ceremonies! </div>
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I only attach this next picture, because it is the last time I was able to really do her hair! And I was quite proud of how it turned out! </div>
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Opening ceremonies was on a Saturday, and the next day the 3rd, I went into labor, that night we went into the hospital I labored all night, the pain wasn't too bad, but I wasn't progressing! And Nixon just was not dropping. So that following morning my doctor came in and decided since Nixon was measuring so much bigger than my other two babies and through the whole night nothing really had changed, he decided it would be best to have a C- Section! I was scared, I wanted to try and have this baby on my own, but my doctor was concerned, and Nick and I talked for a second, and decided this would be what was best! So before I knew it I was in the operating room, having a baby! </div>
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While in the hospital in my room there was a whole other bed there, I don't know if it was for the dads, or what not. But during the day, Mitchell would be at school, and Nick and Faye would come see me. Faye would lay on that bed all day long, just laying there or sleeping! She was so pale. </div>
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We had decided before having Nixon that we were not happy with our current pediatrician, and that we needed to get a new one, for Nixon and Faye to go to. So that Friday we took Nixon for his newborn checkup, and had Faye get checked out by our new Dr. Dr Pierce! </div>
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She was wonderful, she listened to everything we had to say, and one of her first thoughts was that Faye might have a vitamin D deficiency! So she sent us to go get blood taken and into get some x-rays to cover our bases!</div>
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Here is Faye one year ago today! Nicks Dad was visiting to see Nixon, and it just so happened to also be his birthday! This was after the Dr visit! This day was a pretty good day for Faye! (Isn't that how it goes when you go to the Dr.? They have all these problems until you see the Dr, then they are fine!) Nicks Dad had taken Faye to Chuck E Cheese while Mitchell was at school! You can't see in this picture, but she has pokes on both arms! The person taking her blood, was not very good at all, I waited in the waiting room, but I could hear her screaming, Nick was back there with her, and when he came out, I remember him not being happy at all with how they treated his little girl!</div>
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The very next morning! We got a call from the Hospital, telling us to get Faye tot he ER right away. Based on her levels she shouldn't even be moving! <span style="color: blue;">I was close to completely freaking out at this point. No doctor calls you on a Saturday and tells you to go to the ER. My assessment = no bueno. </span> Nick took Faye to the hospital and I waited at home with the boys for some news and to hear what was going to be happening next! </div>
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Nick said they took her blood again to be sure what they were seeing was not a lab error. A doctor came into Nick and said what Faye had they would not be able to treat her there and they would have to take her to another hospital. They gave him three options and wanted Nick to choose! But they wouldn't tell him what was wrong with her or give him any advice as to which hospital would be best to treat what she had. <span style="color: blue;">I was pretty upset they wouldn't give any sort of indication as to which would be the best place to take her. I know nothing about any of the hospitals or what she might have. The more I talked with them the more angry I got with him</span>. The doctor left and gave Nick a moment to think about it. A nurse came in and said "I don't want to be the one to tell you this but Faye most likely has leukemia and you are going to want to be at Texas Children's. <span style="color: blue;">I remember that moment very well because in the two minutes immediately after she said that I lost about 28 pounds in tears. I was so scared and just sat there holding Faye bawling my eyes out. All I could think of was to wonder how much more time we had with Faye and however much it was wouldn't be enough. The nurse was so sweet as she sat there and put her arm around me and Faye. She asked if it would be alright to pray for us. I nodded yes and she offered a prayer. When she finished she asked if there was a pastor or someone she could call for me. My mind was all over the place and I uttered bishop Garlick's name. The bishop came quickly and watched me cry for what seemed like a few more hours. He calmed me down and helped me give her a blessing. Stacey didn't know anything yet because I was too scared to call and tell her. I did not want to tell a mom who just had a baby less than a week ago that her little girl had cancer. The bishop was great and had me practice calling Stacey just stating the facts and not getting ahead of ourselves. </span>Nick called me to tell me they were taking Faye down to Texas Children's (Nick seeing Faye go trough all of this, and having to hold her alone and receive all of this information...and her being his little girl! He was kind of a mess, which who wouldn't be?), and that I should come to the hospital, bring Nick some stuff, and send them on their way in the ambulance <span style="color: blue;">(Mitchell is still upset he wasn't able to ride in the ambulance)</span>! I went down there, and when I walked in the room, Nick just looked at me and began crying. the doctor walked in, and sat me down, looked into my eyes and said: "Most likely she has leukemia!" I didn't really show much emotion! I think it was because I had seen what my little girl had been through up to this point, and I was just ready to get her fixed! Or I don't know if I had been prepared for this information! The doctors were not telling us for sure that is what it was....they told us worse case scenario that is what it is....best case it is just some virus! </div>
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Here they are at opening ceremonies last weekend:</div>
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And today! </div>
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I have so much more to share, and express to everyone, but I think for now this is enough! What a year it has been! Who knew this day would ever come?</div>
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</div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com15tag:blogger.com,1999:blog-1617084640685488084.post-54427869842017842502012-03-09T22:41:00.000-08:002012-03-09T22:41:22.354-08:006 Months<div style="font-family: Georgia,"Times New Roman",serif; text-align: center;">
As you can see we decided to really live it up, and for our six month
celebration got everything updated on this blog! If you haven't noticed there are
quite a few new posts. <br />
We cannot believe we have been home for 6
months already. Which means we have been home one month longer than we
were in, and the exact amount of time they told us we would be spending
in the hospital when everything started! The doctor told us we should
have a big celebration for every six months we make it free and clear of cancer! <br />
We are so happy to be all together, and trying to remember and focus on
what is really important. It's amazing how quickly you can get into
your old ways and take for granted every moment you have! <br />
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So
all of you who have supported us, and made this year possible, bearable,
and triumphant for this little Meldrum family, hug your sweet
families/kids a little tighter, and know we are sending hugs, love and
prayers your way just as much as we felt them from all of you! We
could not be more grateful for the friends, family, and strangers (now
new friends) we have gained/had support from.<br />
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After 11 months of every Friday, Saturday and Sunday morning and night
taking this medicine (bactrim) The doctor gave us the okay to be off of
it. So no more medicine for this little girl! Although she did get
quite good at taking it! </div>
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Still wearing all the hats she was given and dressing up. Today was Rapunzel complete with frying pan.</div>
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Taken today. Look at that hair. We can't believe how fast it is growing back. The other day I asked her if I could put some gel in it. At first she was hesitant. But I finally talked her into it. Once I had done it she couldn't stop checking her self out in the mirror. </div>
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A big thumbs up.......yup friends, we have done it! Six months down. </div>
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<br /></div>Nickhttp://www.blogger.com/profile/07116055017389063180noreply@blogger.com7tag:blogger.com,1999:blog-1617084640685488084.post-35009061958948732862012-03-09T22:04:00.003-08:002012-03-09T22:04:20.691-08:00Clinic<div style="text-align: center;">
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Our most recent clinic post was delayed a bit. We really wanted to get the rest of the Make a Wish trip before we added more posts. I really wish Nick would have come with us to this clinic visit because, unlike the last one, this one took a bit longer! But Faye handled it well!</div>
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Just a bit of coloring!</div>
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Some chair spinning waiting for the doctor!</div>
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Looking for Princesses!</div>
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the doctor visit went great! Numbers looked good! And so we were off to visit our friends on the 9th floor!</div>
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We were lucky enough to meet this little girl who was one of the recipients of Faye's clothes! This sweet little girl was diagnosed when she was 8 months old, and is now 4 and has relapsed! You hate to see things like this, but she seemed to be in good spirits!</div>
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Faye was being shy, she didn't want her picture taken! I am pretty sure I then bribed her with something to get her to smile for the camera!</div>
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Faye and nurse Maria. </div>
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A nice rain storm for the ride home. </div>
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<span style="font-family: Arial,Helvetica,sans-serif;">Always good to get another clinic visit with good news behind us. </span></div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com1tag:blogger.com,1999:blog-1617084640685488084.post-66633581934468006272012-03-09T21:56:00.003-08:002012-03-09T22:08:51.414-08:00Make a Wish Day 7 - headed home<div style="font-family: "Trebuchet MS",sans-serif; text-align: center;">
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Last day of the trip! We were so sad our trip was about over but tried to make the most of the morning by enjoying all the perks of the village. We played with some toys, rode the carousel a few times, and of course made a stop for a little more ice cream. </div>
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Faye's look here sums up our feelings of having to go home. </div>
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The attitude quickly changed when they got to go on one last ride...........The airport shuttle! </div>
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And the ever exciting luggage pull. </div>
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We had a few extra hours in Houston with a delay in the flight back to College Station so we had to bust out whatever we could to keep them, and us, from going nuts. </div>
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A last few memories to note that are worth mentioning about the trip that were neglected in other posts: </div>
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<li>When checking our tickets to board the plane the man said "Now, I know one of these kids isn't named Faye. So where is she?" He was looking right at her but her short hair didn't give her away as the dainty princess she is. On top of that many people mistook Nixon for a girl because we were wearing our purple Super Faye shirts. </li>
<li>When we landed in Orlando Mitchell said: "I will wait to scream until we get in our car!" He was so excited. I think we all screamed with excitement once we got in the car. </li>
<li>Jake (our elf on the shelf) made his way to Orlando and showed up to greet the kids every morning from a new spot in our villa. The kids had a lot of fun finding him each morning. He even brought them a gift (Muppets Movie soundtrack) the first morning. We listened to that every single time we got in the van. It is still being played pretty much every time we go anywhere. </li>
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This was a very special time for all of us and one we will remember for the rest of our lives. We are so grateful to Make a Wish and Chi-O for helping make this happen for Faye and our family. We will forever be blessed to have had this time together after such a trying experience. </div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com3tag:blogger.com,1999:blog-1617084640685488084.post-77000910437625533042012-03-09T21:43:00.003-08:002012-03-09T22:08:37.794-08:00Make a Wish Day 6 - Magic Kingdom Round Two!<div style="color: #cc0000; text-align: center;">
Day Six started off with a bit of rain! It wasn't raining when we left the villa, but we heard it might so we stopped at Walmart and grabbed some ponchos fro everyone for $16. Sure glad we did because when we were at the park we saw someone buying ponchos and spent $35 for three of them!</div>
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I thought Faye looked especially cute in hers!</div>
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Of course on our last day here, Mitchell and Faye had to ride their "Favorite" ride. The Magic Carpets! And visit with Aladdin and Jasmine.</div>
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Nixon was okay with just eating his poncho.</div>
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It rained for a good part of the morning and was pretty gloomy. But once it cleared up it turned out to be a very nice day. </div>
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With how strong Faye is, I am surprised she couldn't get this sword out!</div>
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<span style="background-color: black;"><span style="background-color: white;">A trip to Disney isn't complete without a ride on It's a Small World. Go ahead and sing the song to yourself. You know you want to. </span></span></div>
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Faye took over Nixon duty on this ride. </div>
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This was one of my favorite memories of the ride. The three of us in this picture were so excited for the tea cups. The first time we packed the whole family inside a tea cup with some moderate spinning. Stacey was not too happy with the three of us for spinning her around. Nixon didn't mind it so much. He may have even enjoyed it. </div>
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The second time we ditched the two wimps and did some real spinning. Faye and Mitchell couldn't stop laughing and I couldn't stop laughing at them. So much fun. </div>
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This is their idea of a good time. <span style="color: #cc0000;">Nixon and I had a lot of cuddle time to make up for! It was so fun this whole trip because when he would get fussy during the day I could just hold him, he would lay on me, and fall asleep for a little bit, get a quick nap in and then be ready to go!</span></div>
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We were just wandering around Fantasyland minding our own business when we got surprised by Stacey's cousin Josh, his wife Stacie, and their cute little girls. The story went something like this: One of their daughters said: "Look mom! Faye is here!" </div>
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"No, sweetie that's not Faye. You are silly."</div>
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"Yeah mom, it is Faye. She's right there." </div>
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Stacie then realized it was Faye and stopped us. The kids had a great time running around terrorizing Fantasyland for a bit. Then we all got in line to ride Peter Pan before going our separate ways. It was such a fun surprise. </div>
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Mitchell wasn't about to try Thunder Mountain but Faye was ready for an adventure. She went once with dad and once with mom. Squealing the entire time with delight. </div>
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<span style="color: #cc0000;">One of Faye's adopted princess poses! </span></div>
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<span style="color: #cc0000;">All throughout the park we kept seeing people with these giant turkey legs. Nick took it upon himself to get one before we left the park. So I went to feed Nixon, and when I came out I was greeted by Nick, Mitchell, Faye....and a giant Turkey Leg! </span></div>
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We made a pit stop at the Wish Lounge. They have a room next to the first aid station set aside for wish families to let them rest. It was set up with TV, books, toys, drinks, and games. It was nice to let Faye lounge out and Nixon crawl around and explore for a bit. </div>
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We camped out on the curb to wait for the parade. It sprinkled on us but never go too bad. </div>
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The kids loved the parade. Lots of princess, princes, and other characters waved and blew kisses to Faye. </div>
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We headed back to Hollywood studios to make good on our promise to watch Fantasmic. We got there a little early and were able to just sit and have a snack and play around waiting for the show. The show did not disappoint and the kids were very impressed. </div>
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After the show Faye said she wanted to go on the "aligator" (Faye speak for elevator) ride. I had a talk with her to tell her all about it before agreeing to take her. I told her they try and pretend like it is really scary, they tell you a story, you ride around in the elevator, and then it gets dark and goes up and down really fast. Her eyes got wide while she looked at me and nodded her head saying "Yeah. I wanna go". So we went and she loved it. Such an adventurous little one. </div>
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While they went on the ride Mitchell (the unadventurous one) and I rode Toy Story again. When Nick and Faye finished they came back to us. Faye was so excited about the ride that she wanted to go again on it with me! So Faye and I set off to the tower, leaving the boys to ride toy Story....yet again! We made the trek to the ride, but when we got there the gate was closed and there was a worker standing there saying they were closed for the night! I cannot even describe look that Faye got on her face. She was so disappointed and her eyes got teary! I grabbed her hand, and we made a slow walk back to the boys. Her head hung down the whole time.....so disappointed she wasn't able to ride it again!</div>
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Stacey did a great job of cheering her up and we headed over to Downtown Disney to let them pick out a souvenir. Faye found a sleeping beauty statue to pose next to. </div>
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So many things to choose from but she narrowed it down to a little princess set but still had a hard time picking only one. The final decision was a Tangled set. </div>
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<span style="color: black;">Mitchell chose a how to draw Disney characters book and Nixon decided he was too little and didn't need anything because it just wasn't a responsible thing to do. </span> <br />
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</div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com1tag:blogger.com,1999:blog-1617084640685488084.post-26742966319718233282012-03-09T20:21:00.002-08:002012-03-09T22:07:34.999-08:00Make a Wish Day 4 - Animal Kingdom and Epcot!<div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: center;">
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We started the day off visiting Animal Kingdom. </div>
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Meeting King Louie and Baloo.</div>
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We were all pretty excited about going on the Kilimanjaro Safari. It was pretty amazing to see all of the animals and how they make it seem like you are on a real safari. </div>
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Faye had her own personal tour guide (Mitchell) telling her everything she needed to know. </div>
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(Or everything the driver just said repeated back to her)</div>
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He would even guide her head in the direction she needed to look. What a guy.</div>
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Mitchell really wanted to see the Flights of Wonder bird show and Faye wasn't interested. Stacey took Mitchell to the bird show and Faye, Dad, and Nixon took a stroll through the Discovery Island Trails and saw monkeys, bats, tigers, birds, and a lot of areas Faye thought would be great places to take a picture of her. </div>
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Like here.</div>
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And here.</div>
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And here.</div>
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And here.</div>
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And here.</div>
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And here.</div>
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Mitchell then talked the ladies into doing the river rapids ride. Stacey wasn't too jazzed about getting wet but she was so brave and we were all so proud. </div>
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<span style="color: #cc0000;">(And I got SOAKED!!!!! Faye's shoes got wet, and Mitchell had to sit somewhat by himself...needless to say it was not one of the kids favorites once it was over!)</span></div>
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Then we had lunch at the Tusker House to dine with some of the characters. The food was pretty good with some very exotic choices. Maybe not the best place for the little ones. The only thing Faye would eat was a PB&J! Nevertheless, it was super fun getting to meet some characters and Nixon especially loves trying to grab their noses. </div>
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Or try to eat their noses. </div>
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After lunch it was off to Epcot. We left Nixon off to the left in the stroller. He was just to comfy to disturb and we couldn't pass up a picture in front of the geodesic dome <span style="color: #cc0000;">(the giant ball thing)</span>. </div>
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The first stop was to the Nemo and Friends ride and then on to Turtle Talk with Crush. There were lots of fish and little aquariums around for the kids to explore while waiting. </div>
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<span style="color: #cc0000;">It was LOVE at first sight meeting Minnie Mouse for this little guy! </span></div>
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We didn't get a picture, but right after this Nixon planted a big wet one right on her nose!</div>
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Faye and Minnie got along pretty well too. </div>
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Minnie was trying to get Faye to pose like her but Faye is about as adventurous with things like that as her mother......don't do anything to help draw attention to yourself out of extreme fear of embarrassment. <span style="color: #cc0000;">Unlike her Father....who is unbelievably comfortable with embarrassment!</span></div>
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Mitchell was all excited to do the Test Track so Faye and I went with him but once we got through the line and about to board the ride he decided he wasn't quite ready to make that commitment and we headed back to find mom and Nixon. When then attempted to see the Christmas Candlelight Processional narrated by Neil Patrick Harris but we were a little late and the show was full so we decided to call it a night and head back to the village and just hang out. </div>
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At the village you can eat at the restaurant, get take out, eat ice cream for dinner, or order pizza to the villa. We opted for a pizza night and watched a movie while we rested up for the next day at Hollywood Studios.</div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com3tag:blogger.com,1999:blog-1617084640685488084.post-59752603820021091612012-03-09T19:24:00.000-08:002012-03-09T22:08:03.442-08:00Make a Wish Day 5 - Hollywood Studios<div class="separator" style="clear: both; text-align: center;">
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<br />Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com2tag:blogger.com,1999:blog-1617084640685488084.post-3228940035133259552012-02-02T18:44:00.000-08:002012-02-02T18:49:51.005-08:00Another Month Down....<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div style="text-align: center;"><span style="color: #cc0000;">A<span style="font-family: Verdana, sans-serif;"> normal "doctors visit" day they consists of heading out early in the morning, usually about 7:00 a.m., waiting in the waiting room, getting into a room, getting tested, measured and poked, waiting some more, seeing the doctor, and then grabbing a quick bite on our way back home so we can beat the traffic. Getting home at 4:00 p.m. usually makes for a long unexciting day! But in the cancer world boring is good! While in the hospital you always were grateful the doctors didn't come check on you first thing in the morning, because that meant you were "boring". This visit Nick wanted to go with us, we had both been a little nervous about this visit. Because at the first of January Faye was looking a little more pale than normal. A week or two before her visit, at random times she would complain that her legs were hurting her. I have to admit any time I hear that little voice complain about "leg pain" my heart sinks a little, and I have to reassure myself that everything is going to be okay.</span></span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">So since Nick was coming with us, I thought it would be fun to take a picture of every hour of "doctor visit" day! That way I could show you all what a typical doctor visit for Faye is like! Wouldn't you know it.. the day I do this everything was rather quick! Maybe we should take Dad more often.</span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">7:15 a.m leave our house</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-4jEpxeMw7KM/Tyrr1yQjbQI/AAAAAAAACiw/Y7aYIu43Bbc/s1600/IMG_7362.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://1.bp.blogspot.com/-4jEpxeMw7KM/Tyrr1yQjbQI/AAAAAAAACiw/Y7aYIu43Bbc/s320/IMG_7362.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> 8:15 a.m. still on the road...doesn't the drive look exciting?</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-L5lC8fDGyEs/Tyrr6ZkOR8I/AAAAAAAACi4/-4EAdBbcpEg/s1600/IMG_7364.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://2.bp.blogspot.com/-L5lC8fDGyEs/Tyrr6ZkOR8I/AAAAAAAACi4/-4EAdBbcpEg/s320/IMG_7364.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> Faye has really been into coloring these days, which makes it nice for a long car ride!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-mi2nc-JX10k/Tyrr_tXnDHI/AAAAAAAACjA/69Gu9SanLew/s1600/IMG_7365.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://2.bp.blogspot.com/-mi2nc-JX10k/Tyrr_tXnDHI/AAAAAAAACjA/69Gu9SanLew/s320/IMG_7365.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> 9:15 a.m. Pull into the parking garage</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-12ci_zNp6Ss/TyrsE7fYbqI/AAAAAAAACjI/6WPlJRtHnts/s1600/IMG_7366.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://3.bp.blogspot.com/-12ci_zNp6Ss/TyrsE7fYbqI/AAAAAAAACjI/6WPlJRtHnts/s320/IMG_7366.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> This is where the visit got impressive! From 9:15 to 10:15, we got checked in, weighed, measured, blood pressure taken, and ready for a blood sample! Usually we spend an hour and a half in the waiting room.</span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">10:15 a.m. the dreaded poke</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-jG_gxYgFxo8/TyrsKJ4lSEI/AAAAAAAACjQ/j4sUycZ96JM/s1600/IMG_7369.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://3.bp.blogspot.com/-jG_gxYgFxo8/TyrsKJ4lSEI/AAAAAAAACjQ/j4sUycZ96JM/s320/IMG_7369.JPG" width="320" /></span></a></div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-uqZjRb960Jo/TyrsOswhs5I/AAAAAAAACjY/rdSRIQfHYiA/s1600/IMG_7371.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="320" sda="true" src="http://4.bp.blogspot.com/-uqZjRb960Jo/TyrsOswhs5I/AAAAAAAACjY/rdSRIQfHYiA/s320/IMG_7371.JPG" width="240" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> I loved this picture of Nick, looking so concerned...Dads are the best!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-KBe9TiOMal0/TyrsVWoIpvI/AAAAAAAACjg/T6vcN0uxzlY/s1600/IMG_7372.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="320" sda="true" src="http://3.bp.blogspot.com/-KBe9TiOMal0/TyrsVWoIpvI/AAAAAAAACjg/T6vcN0uxzlY/s320/IMG_7372.JPG" width="240" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> After pokes the doctor was in fairly quickly, we even were able to talk to her about Faye's future plan...which is we will go back every month until September, then every two months til the following September...and that's as far as the plan got! </span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">Dr. Margolin was also able to give us our latest lab results:</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">WBC: 4.18 (3.52 last time)</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">HGB: 13.8 (13.6) </span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">Platelets: 155 (181)</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> ANC: 1530 (1610) </span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">Monos: 10 (10.8)</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">She is looking great, everything is in a normal range (low end, but still normal) except her WBC (5.0-14.5 is normal)</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">11:15 a.m. Off to visit our friends at the 9th floor. This was an exciting trip because we got to see Nurse Owens, one of our Nurse Practitioners that we hadn't seen since we left, and we were also able to take Fayes clothes she had used while being in the hospital and we gave them to other little girls on the floor. It felt good to give all of those clothes away! They will brighten some little girls day up I hope, I know it made me smile to see Faye bouncing down the hall in all her cute clothes she was given!</span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> </span><a href="http://1.bp.blogspot.com/-HVCpT_m-98U/TyrsaYcf2qI/AAAAAAAACjo/anD0g7vmHIw/s1600/IMG_7374.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="320" sda="true" src="http://1.bp.blogspot.com/-HVCpT_m-98U/TyrsaYcf2qI/AAAAAAAACjo/anD0g7vmHIw/s320/IMG_7374.JPG" width="240" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> 12:15 p.m. Getting in the car ready to head home.</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-Ibdgf8b6j4Y/TyrsfH5XaDI/AAAAAAAACjw/Fh6kuP_liQ0/s1600/IMG_7375.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://3.bp.blogspot.com/-Ibdgf8b6j4Y/TyrsfH5XaDI/AAAAAAAACjw/Fh6kuP_liQ0/s320/IMG_7375.JPG" width="320" /></span></a></div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"></span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">1:15 p.m. Since we got done so early Nick treated Faye and I to lunch at the Cheesecake Factory, we pass the mall it is located in on our way home! I forgot to take the camera inside!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-91J0gmznCtQ/Tyr4S0U_YyI/AAAAAAAACkI/Db-r7HmjhRc/s1600/IMG_7377.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://1.bp.blogspot.com/-91J0gmznCtQ/Tyr4S0U_YyI/AAAAAAAACkI/Db-r7HmjhRc/s320/IMG_7377.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> 2:15 p.m. stopped and got Mitchell a treat for being the best big brother ever!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-G56CqfHpoOM/Tyr5BEBTgeI/AAAAAAAACkY/JtkxMrpAF9c/s1600/IMG_7378.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="320" sda="true" src="http://4.bp.blogspot.com/-G56CqfHpoOM/Tyr5BEBTgeI/AAAAAAAACkY/JtkxMrpAF9c/s320/IMG_7378.JPG" width="240" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> 3:15 p.m. Car Ride home....this is where the wearing of the day sets in! "No more pictures please" Faye says, while Nixon is ready for his close up!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-vXk_RyBUMFU/Tyr5F7hkMUI/AAAAAAAACkg/vFw6OjXXIBs/s1600/IMG_7381.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"><img border="0" height="240" sda="true" src="http://3.bp.blogspot.com/-vXk_RyBUMFU/Tyr5F7hkMUI/AAAAAAAACkg/vFw6OjXXIBs/s320/IMG_7381.JPG" width="320" /></span></a></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">And there you have it, another great visit to the doctor! At the rate we are going you all might get filled in on the trip pictures by her year mark! </span></div><div style="text-align: center;"><br />
</div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;">How cancer has changed our family:</span></div><div style="text-align: center;"><span style="color: #cc0000; font-family: Verdana, sans-serif;"> Nick the other day took Mitchell and Faye on a date to see Beauty and The Beast. Before the movie started Mitchell leaned over to Nick and said "Dad I hope they don't show that commercial of the kids in the hospital (St. Judes) it makes me too sad" Nick said back to Mitchell "me too".</span></div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com9tag:blogger.com,1999:blog-1617084640685488084.post-28581745270923380362012-01-19T19:29:00.000-08:002012-03-09T22:07:13.945-08:00Make a Wish Day 3 Universal Studios<div style="text-align: center;">
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">I know you have all been sitting on the edges of your seats waiting to see another exciting day of our trip! Sorry for the delay! Day Three (if you missed day one and two you can check them out </span><a href="http://www.fayesfight.blogspot.com/2011/12/disney-day-1-and-2.html"><span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">here</span></a><span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">) was filled with Super Heros, Wizards, and Whos! We had a wonderful time at Universal Studios. Before we went on this trip we had decided that we were going to let the kids control the trip, after all this trip was for them, for everything they had put up with, and everything they had gone through! </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">So the second we got into Universal these kids took the map and took charge!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Walking into all the fun we had to take a minute and pose in front of each animal and everything they saw...</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> "WHO" ville</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> (Did you notice Faye...she was excited for this picture!)</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> We had a great time in Whoville. There was a Red Fish Blue Fish ride that you had to listen and follow instructions going up or down to ensure you didnt get wet...little did we know that at the end it was just a guessing game, so we got a little wet to start out with, but it was fun! And all the Whos they had walking around the park, I got a big kick out of them!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Then off to the Wizarding World of Harry Potter! This was fun, it really looked like you were in the movies! </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">And we heard you can't visit without getting some "Butter Beer" so we tried a frozen "Butter Beer" it tasted to me somewhat like cream soda...but then again I only got one sip, because these two took it over! Whos trip is this anyways?</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> (I am sure if we would have let him that little guy...or should I say big guy in the side of the picture....would have drank it all too!)</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Faye was our little thrill seeker on the trip! She was all for the roller coasters, and the crazy rides! She would tell us to hold her tight, but she would giggle and scream through the whole thing! This little Harry Potter rollercoaster she went on three different times! (again another reason that little pass we got came in handy)</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">She was bummed when she wasnt tall enough to ride some of the bigger Roller Coasters..Nick went on the Harry Potter ride, he said it was awesome....ever since I have had kids those crazy motion rides give me a headache after...but it was fun hearing Nick talk about it, it sounded amazing!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Dont ask me even what this is, but Faye needed a picture taken in it!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Of course a minion...our family LOVES Despicable Me! I cannot even tell you how many times it has been played at our house! </span></div>
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<a href="http://2.bp.blogspot.com/-lU_0r4ND4vI/TxYsc0XZHDI/AAAAAAAACgw/tQcskTEXDO8/s1600/IMG_6953+-+Copy.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"><img border="0" height="320" kba="true" src="http://2.bp.blogspot.com/-lU_0r4ND4vI/TxYsc0XZHDI/AAAAAAAACgw/tQcskTEXDO8/s320/IMG_6953+-+Copy.JPG" width="240" /></span></a></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Their best GRU impersonation </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Nick and Mitchell went and saw Shrek 3D, so Faye and I had to waste some time...what else is a girl to do, we headed to the candy store and grabbed some chocolate!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">And Dora showed up right across the street where we were sitting enjoying our chocolate, Faye was all excited to go meet her, until we actually got there, then she got shy!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Fievel's playground! The kids could have stayed here forever! </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Also we went on the ET ride. I remember it from when I was younger, so I was so excited to take the kids on it with me! The plan was Mitchell and Faye would both ride the ride with me, and then they would go again with Nick! Well we went on the ride, and when we got off I asked them "Did you think that was fun?" They both replied with a very entergetic "YES" so then I said "are you ready to go again with Dad?" they quickly responded with "NO" I guess they didnt think it was as fun as they led me to believe!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Give Kids the World Village gave us a voucher for a photo. There wasnt really one that had five people in it but we loved what we were able to get with the three kids! This photo turned out perfect! The kids get a big kick out of it!</span></div>
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<a href="http://4.bp.blogspot.com/-J2-UY5R3WUk/TxbLLSOIY5I/AAAAAAAACig/7mGIV30KgXA/s1600/Shrek+001.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"><img border="0" height="640" kba="true" src="http://4.bp.blogspot.com/-J2-UY5R3WUk/TxbLLSOIY5I/AAAAAAAACig/7mGIV30KgXA/s640/Shrek+001.jpg" width="464" /></span></a></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">In case you couldnt tell: Mitchell is Shrek, Faye is Fiona, and Nixon is Lord Farquad</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">We ended the night by going back to the Village and swimming! Universal was filled with so much stuff, but a lot of it was stuff the kids weren't very interested in or big enough to ride, but we had a great time going swimming! Relaxing and playing!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Keeping true to her sense of fashion, Faye kept her headband and flower in while swimming. </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Our little Beached Whale!</span></div>
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<a href="http://4.bp.blogspot.com/-PdbqVe8j_R8/TxYtKY_kD9I/AAAAAAAACho/c0-E7tiBEhM/s1600/IMG_6977+-+Copy.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"><img border="0" height="320" kba="true" src="http://4.bp.blogspot.com/-PdbqVe8j_R8/TxYtKY_kD9I/AAAAAAAACho/c0-E7tiBEhM/s320/IMG_6977+-+Copy.JPG" width="240" /></span></a></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;"> Dads are always more fun in the pool! </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">When we got back from swimming, showered and comfy, we found faye had made her own little bed and fallen asleep behind one of the chairs! </span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">I guess the day wore her out more than we thought!</span></div>
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<span style="color: #660000; font-family: Georgia,"Times New Roman",serif;">Next up.......Day 4: Animal Kingdom and Epcot. </span></div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com8tag:blogger.com,1999:blog-1617084640685488084.post-5776424868161999522012-01-07T07:00:00.000-08:002012-01-07T09:19:07.627-08:00Another Successful Doctors Visit.....<div style="text-align: center;">I know what you are all thinking, wait a minute we missed a few days of a wonderful trip! Dont worry those posts are coming! The holidays were a bit overwhelming for me this year, I wasnt quite prepared for the holidays and it became too much! I didnt feel like I was enjoying myself as much as I should and felt there was too much to do. So the blog posts got left for a New Year! </div><div style="text-align: center;">But we had a wonderful holiday! On Christmas Eve the kids graced us with a bike show.....one of the perks of being in Texas! </div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-b7SDaP32xlg/TwhZOBL0c4I/AAAAAAAACeI/f9-1JpqH680/s1600/IMG_7195.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-b7SDaP32xlg/TwhZOBL0c4I/AAAAAAAACeI/f9-1JpqH680/s320/IMG_7195.JPG" width="320" /></a></div><div style="text-align: center;"> Mitchell and Faye were feeling charitable so they wrapped up "the old toys they didnt want to give to Nick and I" </div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-8SXpwSxI8xg/TwhZVVjgZfI/AAAAAAAACeQ/WM2wOeLLoGI/s1600/IMG_7197.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" rea="true" src="http://1.bp.blogspot.com/-8SXpwSxI8xg/TwhZVVjgZfI/AAAAAAAACeQ/WM2wOeLLoGI/s320/IMG_7197.JPG" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-kntRxLrj2iY/TwhZay9q0NI/AAAAAAAACeY/kbgdrnqpU5k/s1600/IMG_7209.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="http://4.bp.blogspot.com/-kntRxLrj2iY/TwhZay9q0NI/AAAAAAAACeY/kbgdrnqpU5k/s320/IMG_7209.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-7g622hzL8sY/TwhZhu63-4I/AAAAAAAACeg/UTRfBC30RUY/s1600/IMG_7228.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-7g622hzL8sY/TwhZhu63-4I/AAAAAAAACeg/UTRfBC30RUY/s320/IMG_7228.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-tSain91ufPo/TwhZnnY89pI/AAAAAAAACeo/RSn6s9742vI/s1600/IMG_7232.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="http://2.bp.blogspot.com/-tSain91ufPo/TwhZnnY89pI/AAAAAAAACeo/RSn6s9742vI/s320/IMG_7232.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">All ready for Church!</div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-JyQG2cmfghE/TwhZtV5TmZI/AAAAAAAACew/kQ-2qv75WCE/s1600/IMG_7297.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-JyQG2cmfghE/TwhZtV5TmZI/AAAAAAAACew/kQ-2qv75WCE/s320/IMG_7297.JPG" width="320" /></a></div><div style="text-align: center;">Christmas was wonderful, Faye is so funny! It was fun hearing her sing her favorite christmas songs around the house...or at least one line of them:</div><div style="text-align: center;">Do you See an Icee</div><div style="text-align: center;">Joy to the Prophet</div><div style="text-align: center;">Tis the season to be here</div><div style="text-align: center;">We wish you a Merry Christmas, and a Happy to you</div><br />
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<div style="text-align: center;"> On the 27th we took a visit to the doctor! She is being brave right here, but about two secodns later it was time to really get the poke in her finger...we are still working on being brave! But who can blame the girl?</div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-yJ036PJzk00/TwhZyEM-NpI/AAAAAAAACe4/3vh3-HULM7k/s1600/IMG_7313.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="http://3.bp.blogspot.com/-yJ036PJzk00/TwhZyEM-NpI/AAAAAAAACe4/3vh3-HULM7k/s320/IMG_7313.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">WBC: 3.52 (4.88 last time)</div><div class="separator" style="clear: both; text-align: center;">HGB: 13.6 (13.9)</div><div class="separator" style="clear: both; text-align: center;">Platelets: 181 (163)</div><div class="separator" style="clear: both; text-align: center;">ANC: 1610 (2870)</div><div class="separator" style="clear: both; text-align: center;">Monos: 10.8 (7.4)</div><div class="separator" style="clear: both; text-align: center;">The fact that everything is a little lower from last time makes us a bit nervous, but the doctor said she looks great! I did tell the doctor that she constantly has a runny nose, so the doctor said that that could be a reason why her White Blood Count is lower this time, because her body is trying to fight something off, so its lower because its working harder. So we will take it as another succesful month down!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Two days after the doctors visit we had a bit of an accident! On the 29th she was running in the driveway and took a spill! Getting cleaned was no fun, and she kept getting upset because "Nixon kept getting her" It scabbed up pretty good, and she kept telling us that when she blinked really hard "like this" and would show us what she meant...it hurt, made us laugh every time! Luckily it healed quickly, and she is good as new! </div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-apdcxxIZoTE/Twh9P8V6oxI/AAAAAAAACfA/BH9dx7y-NeA/s1600/2011-12-29_11-20-46_333%255B1%255D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="http://1.bp.blogspot.com/-apdcxxIZoTE/Twh9P8V6oxI/AAAAAAAACfA/BH9dx7y-NeA/s320/2011-12-29_11-20-46_333%255B1%255D.jpg" width="180" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Like I said Trip pictures are coming, dont worry, I am excited to share them with you! And share more of our trip! Its fun to look at all the pictures and relive those wonderful memories!</div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com6tag:blogger.com,1999:blog-1617084640685488084.post-3100728123584322172011-12-17T20:06:00.000-08:002012-03-09T22:06:53.796-08:00Make a Wish Day 1 and 2 Disney<div style="text-align: center;">
<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> <span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Wow to say this trip was magical would be an understatement! We had such a wonderful time. We got back on Tuesday evening and I still feel like we are recovering! You don't know how needed a trip is until you are actually on it. Getting ready for it, and packing is always stressful, but once we were on our way I knew it was going to be awesome! </span></span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">First Stop the College Station Airport</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">When they were figuring out our trip for us they asked us if we would rather leave from College Station or out of Houston.....as much as we enjoy and have the drive to Houston memorized, we were excited to take a 5 min drive to the airport to leave. </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">The kids were confused when we had to walk out to get on the plane! College Station is a small airport...therefore a small plane!</span></div>
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<a href="http://2.bp.blogspot.com/-1rdi11D_GXg/Tu1OWntUAWI/AAAAAAAACTw/WtS4c9triNk/s1600/IMG_6814.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://2.bp.blogspot.com/-1rdi11D_GXg/Tu1OWntUAWI/AAAAAAAACTw/WtS4c9triNk/s320/IMG_6814.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> It sure does make for great travel pictures though!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Notice Faye and her purse? A Rubber Chicken purse none the less! We got many smiles and comments about this little purse! </span></div>
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<a href="http://2.bp.blogspot.com/-3vF5Rqmq-sk/Tu1ObGe1ZaI/AAAAAAAACT4/V470TAFchZQ/s1600/IMG_6815.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://2.bp.blogspot.com/-3vF5Rqmq-sk/Tu1ObGe1ZaI/AAAAAAAACT4/V470TAFchZQ/s320/IMG_6815.JPG" width="320" /></span></a></div>
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<a href="http://2.bp.blogspot.com/-AP7rq85x3os/Tu1Omcc7nfI/AAAAAAAACUI/5eHjAcGchaM/s1600/IMG_6819.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://2.bp.blogspot.com/-AP7rq85x3os/Tu1Omcc7nfI/AAAAAAAACUI/5eHjAcGchaM/s320/IMG_6819.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Once we landed we were greeted by Jill who works with the "Give Kids the World Village" She was there to help us get our bags and our car and send us on our way! It was a wonderful welcome to Florida, she was wonderful! She took Faye and let her pick which car she wanted!</span></div>
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<a href="http://1.bp.blogspot.com/-ohEh4ULGe18/Tu1OgaaifPI/AAAAAAAACUA/MEk0W3unpRw/s1600/IMG_6817.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://1.bp.blogspot.com/-ohEh4ULGe18/Tu1OgaaifPI/AAAAAAAACUA/MEk0W3unpRw/s320/IMG_6817.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> (This picture was taken at the end of the trip, but this is the sign Jill was holding waiting for us!)</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Faye picked a silver van...one week was not enough time to have this van, because they were still fighting as to who was going to push the buttons to open and close the van doors!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Here is the Entrance to the village! The whole village was like a life sized Candy land! They had a Castle, Gingerbread House, Ice Cream Shop! It was amazing how much it was catered to the kids that get to visit there!</span></div>
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<a href="http://3.bp.blogspot.com/-eouYksKZuoI/Tu1RaHk4xYI/AAAAAAAACWo/RodgD7ttCGs/s1600/IMG_7142.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://3.bp.blogspot.com/-eouYksKZuoI/Tu1RaHk4xYI/AAAAAAAACWo/RodgD7ttCGs/s320/IMG_7142.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> First Stop the Lobby to get the rundown of how everything works, and get our Villa keys!</span></div>
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<a href="http://4.bp.blogspot.com/-3PsWnyiNs_c/Tu1OsF-0aXI/AAAAAAAACUQ/9O3tWmcu6rg/s1600/IMG_6820.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://4.bp.blogspot.com/-3PsWnyiNs_c/Tu1OsF-0aXI/AAAAAAAACUQ/9O3tWmcu6rg/s320/IMG_6820.JPG" width="240" /></span></a></div>
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<a href="http://2.bp.blogspot.com/-m9HEzO4OCyU/Tu1O0SUdzOI/AAAAAAAACUY/7Tswryvsmxo/s1600/IMG_6821.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://2.bp.blogspot.com/-m9HEzO4OCyU/Tu1O0SUdzOI/AAAAAAAACUY/7Tswryvsmxo/s320/IMG_6821.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> A Giant Chocolate covered Strawberry...yes please!</span></div>
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<a href="http://1.bp.blogspot.com/-zhdP4NbRFi4/Tu1PA_18uRI/AAAAAAAACUg/l8L-Mt3qA5k/s1600/IMG_6822.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://1.bp.blogspot.com/-zhdP4NbRFi4/Tu1PA_18uRI/AAAAAAAACUg/l8L-Mt3qA5k/s320/IMG_6822.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">They Gave Faye her very own Star! </span></div>
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<a href="http://4.bp.blogspot.com/-35lHjTfNf4Q/Tu1PPTKpzGI/AAAAAAAACUw/Ob6LRykUy4g/s1600/IMG_6825.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://4.bp.blogspot.com/-35lHjTfNf4Q/Tu1PPTKpzGI/AAAAAAAACUw/Ob6LRykUy4g/s320/IMG_6825.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Faye was to write her name on her star and then the Star Fairy takes it and places it on the ceiling in the Castle! All these stars are of kids that have visited the Village, each one holds a special place forever for these kids that have or are battling something!</span></div>
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<a href="http://4.bp.blogspot.com/-BkA7a4SXPCY/Tu1PYenPstI/AAAAAAAACU4/y0PgwDoWJHs/s1600/IMG_7149.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://4.bp.blogspot.com/-BkA7a4SXPCY/Tu1PYenPstI/AAAAAAAACU4/y0PgwDoWJHs/s320/IMG_7149.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> They recently had to add the addition of the turret to include more Stars, because there are so many! In here is where Faye's Star will stay forever!</span></div>
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<a href="http://3.bp.blogspot.com/-dVSK9ylDF54/Tu1Phf7GDYI/AAAAAAAACVA/TAeZk7W9SZc/s1600/IMG_7150.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://3.bp.blogspot.com/-dVSK9ylDF54/Tu1Phf7GDYI/AAAAAAAACVA/TAeZk7W9SZc/s320/IMG_7150.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> To get the picture I had to take drastic measures.......</span></div>
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<a href="http://4.bp.blogspot.com/-89EFArrEd08/Tu1PnyoBFjI/AAAAAAAACVI/4CkRMBKf5hk/s1600/IMG_7152.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://4.bp.blogspot.com/-89EFArrEd08/Tu1PnyoBFjI/AAAAAAAACVI/4CkRMBKf5hk/s320/IMG_7152.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">So Nick had to keep the memory forever!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Nothing like riding in style for a tour around the village!</span></div>
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<a href="http://4.bp.blogspot.com/-syPqT_mocis/Tu1PJj6qGLI/AAAAAAAACUo/O3n8pzbAgFQ/s1600/IMG_6824.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://4.bp.blogspot.com/-syPqT_mocis/Tu1PJj6qGLI/AAAAAAAACUo/O3n8pzbAgFQ/s320/IMG_6824.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Also in the Castle this little cave with a slide! Of course it was Fayes first stop!</span></div>
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<a href="http://2.bp.blogspot.com/-92IuIHV-Y9Y/Tu1PwIj7llI/AAAAAAAACVQ/A2vo6KacwnA/s1600/IMG_6828.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://2.bp.blogspot.com/-92IuIHV-Y9Y/Tu1PwIj7llI/AAAAAAAACVQ/A2vo6KacwnA/s320/IMG_6828.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Then right after she headed over to the Salon to get her nails done! Cant start a trip without a fresh manicure!</span></div>
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<a href="http://2.bp.blogspot.com/-ZWzcA8K62CE/Tu1Qg-csx4I/AAAAAAAACVY/igV67sd0s4s/s1600/IMG_6832.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://2.bp.blogspot.com/-ZWzcA8K62CE/Tu1Qg-csx4I/AAAAAAAACVY/igV67sd0s4s/s320/IMG_6832.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">And then ended the night with a trip to the Ice Cream Shop! Probably a family favorite of the trip! This Shop opened at 7:30 every morning and closed at 9:30 every night! You were welcome to go in there and get whatever you wanted all day long! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Our mornings usually went something like this: Eat some breakfast, then head to the Ice Cream shop to grab a treat before heading off to the parks! Nick would get a Carmel Shake every morning Faye would get Strawberry Ice cream, take about 2 bites and then take over Nicks Shake! Same routine every morning, we tried to tell her she would want a Carmel shake, but with no fail would always get Strawberry Ice Cream...and then take Dads! I personally was a fan of the Banana Splits...Don't worry though, I was informed that calories don't exist in the village!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Here's Our Villa!</span></div>
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<a href="http://3.bp.blogspot.com/-sU6OwMhSzbQ/Tu1RT3bpqaI/AAAAAAAACWg/rucbHc740Qk/s1600/IMG_7138.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://3.bp.blogspot.com/-sU6OwMhSzbQ/Tu1RT3bpqaI/AAAAAAAACWg/rucbHc740Qk/s320/IMG_7138.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What other place can you go stay and they have it decorated for Christmas for you? </span></div>
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<a href="http://2.bp.blogspot.com/-j6fNvVkdeP8/Tu1REqliDJI/AAAAAAAACWI/MtzZAPrZQrI/s1600/IMG_7127.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://2.bp.blogspot.com/-j6fNvVkdeP8/Tu1REqliDJI/AAAAAAAACWI/MtzZAPrZQrI/s320/IMG_7127.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> A local elementary made these decorations for the villas!</span></div>
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<a href="http://3.bp.blogspot.com/-2DiDoHRYH7U/Tu1RJipmlwI/AAAAAAAACWQ/mHLd79N_k9s/s1600/IMG_7133.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://3.bp.blogspot.com/-2DiDoHRYH7U/Tu1RJipmlwI/AAAAAAAACWQ/mHLd79N_k9s/s320/IMG_7133.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">When we first got to the Village they gave Faye her very own Mickey! </span></div>
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<a href="http://1.bp.blogspot.com/-VmLO5QpUKZA/Tu1RNmVnCyI/AAAAAAAACWY/63ghmK5VqCE/s1600/IMG_7137.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="320" oda="true" src="http://1.bp.blogspot.com/-VmLO5QpUKZA/Tu1RNmVnCyI/AAAAAAAACWY/63ghmK5VqCE/s320/IMG_7137.JPG" width="240" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">And the next morning Mickey and Minnie came to the Village to visit, and took pictures and signed the feet of Faye's Mickey!</span></div>
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<a href="http://3.bp.blogspot.com/-s2HdD0UA3mw/Tu1QwpkJ6VI/AAAAAAAACVw/moMSg6MtVJw/s1600/IMG_6850.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://3.bp.blogspot.com/-s2HdD0UA3mw/Tu1QwpkJ6VI/AAAAAAAACVw/moMSg6MtVJw/s320/IMG_6850.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Belle also stopped by!</span></div>
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<a href="http://2.bp.blogspot.com/-zMhVx23B1AE/Tu1Q11D3xHI/AAAAAAAACV4/tnyxoeGqoCs/s1600/IMG_6854.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><img border="0" height="240" oda="true" src="http://2.bp.blogspot.com/-zMhVx23B1AE/Tu1Q11D3xHI/AAAAAAAACV4/tnyxoeGqoCs/s320/IMG_6854.JPG" width="320" /></span></a></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> And so did Goofy and Pluto...we found them playing some basketball!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Headed to Disney World! We could not believe how big this place was it was spread out everywhere! We were amazed!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Our first stop into Disney World! To see Rapunzel! We brought the kids Halloween costumes, because Faye wanted everyone dressed up to see her! We got the pictures of the kids with her, and then quickly changed their clothes into their normal clothes! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Nick and I were both tearing up seeing Faye with Rapunzel! She played a huge part in our hospital visit! I remember numerous nights being awake at 2:00 in the morning because Faye couldn't sleep whether it be because we were getting used to people always coming into the room, because of all the fluids being pumped into her she wet the bed, or throwing up, or when she had that bout with that nasty fever! We would sit up in the middle of the night and Rapunzel usually was our go to movie! And when Faye lost her hair she would tell us "When my hair grows back it is going to be magic like Ruptunzels" </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Rapunzel even gave Faye a kiss! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I don't know why this picture will only post sideways! But this little pass was AMAZING! They gave Faye a button with her name on it to wear, and they gave Nick and I this pass! The line for Tangled was like a 45 minute wait, but someone saw Faye's button and our pass then they would got us right to the front, we didn't even have to wait at all! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">The first ride the kids went on was Aladdin's Flying Carpets! They had to go on it twice...they loved it so much! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Meeting Ariel!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Meeting Tinkerbell was a whole different story! Faye wanted nothing to do with her! Allthough Faye loves Tinkerbell...seeing a little Fairy lifesized was just too much for Faye I guess! Faye told us that she only liked seeing Tinkerbell small, and on TV!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Getting Ready to Ride Pirates...here is the boys best pirate pose!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> After the ride Mitchell says "That ride was awesome" Faye replies with "That was not Awesome for me"</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Faye and I took a ride on Splash Mountain...its one of my favorites...sure not such a fan of getting wet, but I love the inside of the ride so much it is all worth it! It was Faye's first try at a big ride, we were a little nervous about how she would do, but she did awesome! She loved it!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> All Smiles after the big Hill!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Of course we had to ride the carousel! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Some of my Favorite moments from the first day at Disney:</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">While I went to feed Nixon Nick took Faye to see the other princesses...Aurora, Belle, and Cinderella! The Disney people took pictures, but we don't have any on our camera, because we were not prepared and the battery was dying, luckily while I was feeding Nixon they had a plug for us to get it charged again, so we could get pictures of the rest of the day! But when Nick came back he told me, he couldn't go see her with Princesses anymore...too emotional! They were the only characters she would actually go up to, and take pictures with without being shy....it was wonderful to see her so happy meeting the people she went there to meet, and seeing her eyes light up with how wonderful they were to her! Nick said they probably took 20 mins with her, and made her feel so special! </span><br />
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">When we rode Peter Pan....It was Nixon, Faye and I in one of the boats together, and soon as we sat down Faye put her arm around Nixon, held him tight, and was telling him all about the ride and what we were seeing! She also kept giving him little kisses on the head as the ride kept going! </span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Seeing the excitement of these three as they would go from ride to ride! Faye loves her Dad, she wanted to ride most of the rides with him!</span></div>
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I would say one successful day at Disney! </span><br />
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<span style="color: #cc0000; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Tomorrow Universal......</span></div>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com11tag:blogger.com,1999:blog-1617084640685488084.post-65918368922655299622011-12-06T20:24:00.000-08:002011-12-06T20:25:50.328-08:00Princess Updates<span style="color: #741b47; font-family: Verdana, sans-serif;">Saturday we had the opportunity to attend </span><a href="http://aggiechiomega.com/articles/songfest"><span style="color: #741b47; font-family: Verdana, sans-serif;">Songfest</span></a><span style="color: #741b47; font-family: Verdana, sans-serif;">. This is a show the Chi O sorority puts on to raise money for the Still Creek Girls Ranch, and the Make a Wish Foundation. Faye was to be their guest of honor. We were all excited to go. We made sure to make Mitchell and Faye take naps that day, because we heard that it was going to be a late night. Before the "Fest" they invited us to a dinner they were having with the Judges for the show. Mitchell was all excited, because we also found out that <strong>Clayton Kershaw </strong>was going to be one of the judges. (Yeah I didn't know who he was either) But he plays for the LA Dodgers as a pitcher, and won the Cy Young award this year (an honor given annually in baseball to the best pitchers in Major League Baseball). Mitchell has been on the Dodgers twice now in T-ball. So he was able to take one of his hats and have Clayton sign it for him. Clayton's wife was the Songfest chair two years ago, so she was also a judge. </span><br />
<span style="color: #741b47; font-family: Verdana, sans-serif;">We were a little nervous the kids wouldn't want to sit through this whole thing, but from the moment it started Faye could not get enough! She was always so excited to see which act was coming up next, and loved it when the girls would do flips, or be thrown in the air. Mitchell liked it also...but towards the end he was getting a little sleepy (if you know Mitchell you know he is not a night person) The event went til 10:00. Basically the whole thing was full of singing, dancing, and skits. Put on by other Sororities and Fraternities. Each fraternity and sorority that participates gets money to give to their charities. The top acts at the end of the night were awarded prize money to donate to their specific charities.</span><br />
<span style="color: #741b47; font-family: Verdana, sans-serif;">Right after intermission they had a video of each Fraternity and Sorority telling what their money was going for, then after that the Chi O girls talked about Make a Wish, and talked about Faye. They had pictures of her up on the screen as they talked about her. When they were done talking about her they raised the house lights and had our family stand up. Just typing that gets me all emotional. It was such an overwhelming feeling, something I cannot even describe. When we stood the whole auditorium cheered for us (it holds about 2500 people) I couldn't stand very long because I started to cry, and wanted to sit down before anyone noticed. </span><br />
<span style="color: #741b47; font-family: Verdana, sans-serif;">I am amazed at what these girls were able to put together, I thought the event seemed like a huge success, and we were grateful to be able to be a part of it! And are incredibly grateful for the generosity of these girls to do this for Faye!</span><br />
<span style="color: #741b47; font-family: Verdana, sans-serif;">I am mad at myself I didn't take pictures of Mitchell with Clayton, or a picture of Faye with the committee girls for Songfest...I am here to promise I will make myself be better on our trip to Disney World!</span><br />
<span style="color: #741b47; font-family: Verdana, sans-serif;">We take off tomorrow on Faye's Make a Wish Trip, and we could all not be more excited! Its going to be so fun, and amazing, and emotional, and much needed! We can't wait to share with all of you our wonderful experience, and the pictures and stories of Faye meeting Princesses for the first time! But for now I leave with you Faye's Princess story. She made this up all on her own, and has shared it with very few people. Usually we have to trick her into telling it by saying something like "don't you dare tell anyone your princess story while I am gone" that usually works if she thinks she is pulling one over on us.</span><br />
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<span style="color: #741b47; font-family: Verdana, sans-serif;">Once upon a time there was a princess named Mommy, and a Prince named Daddy. They Danced and Kissed a lot, then they got married. They had Three kids Mitchell, Faye and Nixon. One day Faye got sick and was in the hospital for a long time, then she got better. The End</span>Nick and Staceyhttp://www.blogger.com/profile/13580496992802679850noreply@blogger.com6